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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/8/2009 9:46 AM (GMT -7)   
I've been suffering lately from chocking on my saliva because of the thickness.  It happens a couple of times per day and sometimes also it will get caught in my throat and gag me.  I've been drinking lots of water to kind of thin it down, it helps some but still seems to happen.
 
I'm not taking any meds for my dry mouth besides OTC mouth moisturizers which don't really do much for the thickness.  They are good for when the dryness is pretty bad.  Is anyone else having these problems?  If so, is anyone taking Evoxac or Salagen and is it helping?
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5803
   Posted 7/9/2009 12:59 PM (GMT -7)   
Sorry we don't have any members who've come forward talking about the same experiance. This new forum doesn't have a lot of members yet.

Could you maybe get a week's worth of Evoxac or Salagen or whatever your doc suggests and do a trial run?

We hope you stop back in and let us know what's happening.
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5803
   Posted 7/9/2009 1:25 PM (GMT -7)   
I did a search on HW for the the term "thick saliva" and found a couple threads that might be helpful.

www.healingwell.com/community/default.aspx?f=29&m=894794

www.healingwell.com/community/default.aspx?f=24&m=1229924

There were a lot more threads that popped up, but I didn't check out pgs 2,3 & 4. These were the ones on pg 1 that looked like they may apply to your situation.
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/9/2009 7:03 PM (GMT -7)   
Thanks Lynnwood for the links. Yes, thats a good idea, I'm going to ask my rheumy if she has samples next time and see if that helps. I know people have different experiences with those meds, good and bad, so samples seems like the way to go.
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


NJ56Mom
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 7/22/2009 1:34 PM (GMT -7)   
I was recently diagnosed with Sjogren's and I also have very gooey, thick saliva and a white coating on my tongue and throat.  I cough and choke too. 
 
I went to an oral specialist and he said drink water, but just small sips because too much water will wash away the saliva you have left.
 
He did not give me the medications to increase saliva production, he said there's a lot of side effects.  I did start Plaquenil to see if it helps the SS and my joint and muscle pain.
 
Too early to tell yet.  But I wanted to let you know I understand your misery!

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 7/24/2009 3:29 PM (GMT -7)   
Thanks NJ56Mom, for responding and letting me know I'm not alone in this.
 
I haven't been to the doctor yet as my regular appointment will be in September (just went last month).  I was concerned about the side effects too... taking too many meds as is that causes side effects, don't want to think about trying to handle any more.
 
I'm going to try the sipping thing, usually I'm gulping down water.
 
Also, I've been on Plaquenil for a few years now and have to say that it is a great med.  I hope it works for you, remember it can take a few months for it to get to its full benefit.
 
Thanks again :-)
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 2.5 mg/day (tapering), Methotrexate 10mg/week, Hydrocodone PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


Caterina
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/4/2009 6:51 PM (GMT -7)   
Thanks for this post--now I feel not so alone anymore! I have been on Mucinex to thin the saliva, and I drink sips of water every day. I wish I could say that it always helps, but it doesn't. I have choked so hard that it makes me thow up a little sometimes. Very gross, I know, but there it is.

Djcks
New Member


Date Joined Jul 2009
Total Posts : 11
   Posted 11/6/2009 7:49 AM (GMT -7)   
Hello Everyone, I am fairly new to this site, I was on the Lupus chat but recently found out its not lupus I have, It is Sjogrens,Fibromyalgia and Rhuematoid Arthritis. My Doctor put my on Plaquenil just started it yesterday, I am also on Percocet, Gabapentin, Meloxicam,and cymbalta. I have been living with awful pain and no strength for long time. Since Janurary this year I have not been able to work. I am waiting for disability hearing which can take up to 2 years. I have had thick saliva and sore tongue due to dryness it is hard for me to swallow even liquids at times. I suffer with eye pain in mornings mostly, I was wondering if anyone has Fibro,RA, and Sjogrens on this site and recieving disability? and would be interested in knowing your symptoms your going through. I have had trouble with bladder retention and etc.
Thank you for being here to help.
Deb

bodhiboy
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/9/2011 1:41 AM (GMT -7)   
Have you tried gargling cold water until it gets warm then spitting it out?

This is something I have been doing for years (I believe it is a yoga practice). Try gargling cold water in this way 3 times and spitting it out.

It is helpful as lots of thick saliva comes out with the water.

Due to the increasing thickness of the water/saliva solution I am forced to spit it out well before the water gets warm but it really does the job.

Try it in the morning and before meals so that food can get down okay.

Simple but effective.

Hope this helps.

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 12/13/2011 10:30 AM (GMT -7)   
I have problems with what feels like a constant swollen throat and am assuming it really is thickened saliva so, I am going to try your idea. It couldn't hurt either way. I will let you know how, or if, it worked for me.

Also, want you to know that you responded to a thread that is over 2 years old. The people involved in the thread may not be here any longer.

I would like to welcome you and ask that you start a new thread and introduce yourself to us so that we can get to know you better.

Hope your having a good day and looking forward to hearing from you.
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

MinnyMouse
Regular Member


Date Joined Jun 2010
Total Posts : 193
   Posted 1/6/2012 2:55 PM (GMT -7)   
Thick saliva and lack of fluid is part of the sjrogren progression according to my rheumy. I am being treated with Plaquinil for the sjrogrens and and been on it for over a year. You have to be really good at taking it and not missing doses but I find it does help. It took about 4 months to get into my system where I could tell it was helping. The dry mouth and issues with thick saliva I have had to deal with for aobut 8 months now. I went on Evoxac and it really has helped me in that respect alot. Again, you have to take it. I sometimes have issues now with drooling too much at night that I have to sleep with a towel to absorb the extra saliva. I know , gross but better than the dry. I would check with your doc to see if that's an option for you. I would never go back to NOT using the Evoxac. It's made that much difference for me.
Good luck
Stephani
 

epeter
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/29/2013 11:52 AM (GMT -7)   
I've suffered ropey saliva/mucus for over two years. Lots of coughing, gagging, spitting etc. Have seen two ENT's and a Pulmonologist to no avail. However, my PCP suggested using Advair and Spiriva concurrently and the symptoms cleared. (He gave me samples). I tried only Spiriva but that did not help. I have found that Advair alone works quite well, but I still do not have a diagnosis.

JohnnySeville
New Member


Date Joined Aug 2013
Total Posts : 12
   Posted 8/29/2013 7:19 PM (GMT -7)   
I have used both. Evoxac is the new stuff, supposedly better with less side effects. Works, so, so. Not every time, best to take on empty stomach. I have a bad side effect, caused right leg weakness, was limping for 2-3 days after taking a dose, doctor had no idea why, so had to drop.

Now am using Salagen. First time I took it, had headache, but worked well. Should take on empty stomach, double the amount of saliva for me. After first day, no more headaches. Seem to work every time now, for a few hours, so sticking with it.

Your experience as usual may differ, so give them both a shot.

The best solution is Low dose oral interferon lozenges. that actually reverses the damage that is being caused, have not heard of any side effects so far from people using it. It is not FDA approved and you have to get your doctor to help you with FDA permission to get it from Canada where it is made.
I am trying right now. I know a woman that has been using it for 12 years, no dryness at all.

JohnnySeville
New Member


Date Joined Aug 2013
Total Posts : 12
   Posted 8/29/2013 7:27 PM (GMT -7)   
Another alternative may be Low Dose Naltrexone. I have been in contact with a number of people on it. For some does nothing, some get either eye or mouth improvements, some others get everything better. Have to try it to see if it works for you. Currently am just about to try it out, just got the stuff and waiting to clear out some meds before using. Would be nice if it worked, but I am not that lucky, or else I would not be here. :(
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