Sjogren's Syndrome post on Perez Hilton's site

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pennstate71
Regular Member


Date Joined Mar 2010
Total Posts : 90
   Posted 4/8/2010 7:37 AM (GMT -7)   
Hi everyone.  I haven't posted on this forum before, as I have Fibro and CFS, but tested negative for Sjogren's (I suffer from Chronic Dry eye which is why I was tested) - but anyway, sometimes I get into those little celeb gossip sites (I know - bad habit) - but today I noticed that on the first page of www.perezhilton.com, there is a link about Sjogren's Syndrome as the "worthwhile cause" he sometime's posts about.  Gives the basics about the disease and a link to sjogrens.org.  Just thought it was great the word is getting out there to a wide group of people who may have never heard of it!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/16/2010 8:14 PM (GMT -7)   
from what my rheumy told me, is that if your in the early stages of sjogrens you might not tests positive.
But, on the other hand it's something we don't want either...
my lip biopsy was not inflammed enough, but my rheumy is treating me for sjogrens...
Hope that info helps...
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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