Hello, I to am new to the site. I have this week been diagnosed with S.S and am feeling pretty fed up about it. Its not just the dry mouth and eyes, its all the other health problems that ccome with it. Also I feel that my GP does not know enough about it to give me much support. I, like you, feel very much alone in this, it is nice to have stumbled across this site.
Thankyou for your reply. It is nice to meet you. I have been to see a Rheumatologist who after a very painful lip biopsy diagnosed S.S. The thing is, no one has said if this is a serious disase or if its considered to be a minor one. My Gp doesnt seem overly concerned. I have the problem with my mouth, very dry eyes, joint pains, heart murmer, minor leaking valve, and IBS. I dont know if this is all part and parcel of the SS as all these problems have been diagnosed as separate minor conditions over the years and not as a collective thing. Can you advise please?
I am due to see my Rheumy next monday, I had another blood test a week ago to see if its ok for me to take some drug he would like me to try. I will ask him that question.
Hello Imp 36
Thankyou for making contact with me. I am sorry that you are having so much pain. Over the weekend I to have had a flare up of pain in most of my joints, which has kept me awake, due to my joints burning and becoming stiff when I am warm in bed.
Like you, I had been treated separatley for different problems, it was only when I went to the dentist for a routine check that I mentioned my sore and dry mouth that she mentioned S.S. I then also had a routine blood test which came back weakly positve with Lupus. I was then reffered toRheumatologise. Lip biopsy was done and diagnosis confirmed. I am due to start anti malarial medication soon. and will be going to physio on thursday for physio on my neck which is particlarly painful.
Are you able to tall me if this condition allows you to be registered disabled, as I am having increased difficulty in carrying shopping etc, I also have problems parking outside my house, carring my shopping down the street to my house is very painful.
Do you also know if S.S is hereditory?
I notice that a lot of people on yhis thread are on lots of medication, as you are, have you had any experience of taking Plaquenil 200mg tabs at 1 twice a fday. I ask becaurse I have just started taking this in thelast few days and I am already feeling very nausious, has anyone else found this, I am reluctant to carry on taking it due to this sick feeling.
I do hope it is worth taking in the end. welcome to jerome regards
Thankyou for your reply. i have phoned my nurse help line for advice, hoping that they get back to me soon. One of the problems is that there does not seem to be a support network in the U.K.
Is anyone out there from the U.K.?