Peeling under tongue

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 3/8/2013 8:02 PM (GMT -6)   
So ,my mouth, nose and other mucous membrances (except eyes) have been so very dry it drives me crazy. My doctor thought I might have sjogrens and not RA. But now, parts of the inside of my mouth feel like sandpaper and then they peel. Does this happen with sjogren's.

Do many others have joint pain and fatigue with sjogren's?

It's really been crazy. I have a positive ANA, sed rate and crp but that's it. I've really been through the ringer with severe fatigue, brain fog, joint pain and dry membranes. Also, hands got swollen and stiff at one point in time but that has stopped.

I did start 50,000 units of Vit D which I think has helped a ton. Also taking a multi vitamin as of two days ago in case some of this was a vitamin B deficiency.

The dryness is hard to keep up with and stay comfortable. I do not want to have a mouth biopsy from what I've read. Not gonna do it, wouldn't be prudent-:)
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r

sayyadina
Regular Member


Date Joined May 2009
Total Posts : 435
   Posted 3/9/2013 12:46 PM (GMT -6)   
Hi jeannenc. The dryness, fatigue, brain fog and joint pain all sound very familiar to me. I was diagnosed with Sjogrens based on my symptoms and my response to prednisone and methotrexate. All my labs and lip biosy were normal.

For me the Sjogrens causes extreme dryness of my eyes, nose, mouth, throat, espophagus and skin. Biotene products, Evoxac, xylotol mints and staying hydrated have helped a lot. Also do get brain fog and fatigue. Before the medication, I was virtually crippled between extreme fatigue and joint pain. Both hands, elbows, shoulders, hips, knees, toes all very painful. The Sjogrens can also do some nervous system damage. For me, my hands and feet are numb and weak, I don't sweat normally, and I gave gastroperesis.

Can't say mouth mouth peels, but the dryness is very painful with a sandpaper like feeling.
Sicca syndrome, Gastroparasis (Seronegative Sjogrens????? RA?????)
Prednisone, Evoxac, Plaquenil

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1650
   Posted 3/9/2013 5:20 PM (GMT -6)   
sayyadina, thank you for your response. Let me ask you what products do you use for your skin and mucus membranes??

Yes, I respond well to prednisone too. It seemed that plaquenil quit working for me back when I was having so much joint pain but the joint pain has really subsided (Vit D working for me?) who knows. But, the mucus membranes are horrible, all except my eyes, so I don't know why that is exactly. If it isn't sjogren's it's something else. I know I have scleroderma of the skin, so maybe that's doing it but I've never ever read that about scleroderma of the skin affecting mucus membranes. One rheumy thought I might have mixed connective tissue disease or an overlap syndrome and actually, I think he was closest to being correct. LOL.... The cotton mouth is one thing, the other mucus membranes down below that dry out are the worst!!!! I've used tons of estrogen cream ( I am menopausal) and it has little effect. I also use a steroid cream. It's just relentless. I am going to try to go back on the plaquenil to see if that doesn't help the mucus membrane stuff. A few years back, I had to get numerous root canals. That was fun, not to mention very expensive!!!!!!!!!!!! Reminds me, I have to make a dental appt. Again, thanks for responding, I appreciate it. I wish you good luck with your sjogren's!!!
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 266
   Posted 3/9/2013 10:27 PM (GMT -6)   
i have the same problems, except the mouth peeling. If its supposed to be moist its dry. I have several health problems going on and my rheumy had me to have Rituxan infusions in Jan. It has also helped the sjorgrens.
Post lymphoma, Spleenectomy, Lupus, Sjorgrens, RA, Anti-phosphoid syndrome, Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.
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