ss and dizziness

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

wsjkcj1
New Member


Date Joined May 2016
Total Posts : 2
   Posted 5/16/2016 1:35 PM (GMT -7)   
Hello, I've been diagnosed with SS for about 2 years now and most of my symptoms are dry eyes, muscle, joint aches which are manageable but lately I've been having flares which make my lymph nodes swell and I get flu like symptoms. My Dr. put me on two rounds of steroids and I'm better but the past week I've been having a lot of ear pressure where it feels like my ears are clogged up and I saw my PCP and they told me I have a lot of ear wax buildup but no ear infection. I got the wax removed but continue to have the clogged feeling and the past few days I've been feeling dizzy off and on. It sort of feels like my head is swimming if that makes any sense. Can anyone tell me if this is a typical symptom of SS? I never know what is SS or not.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1594
   Posted 5/22/2016 6:05 PM (GMT -7)   
Welcome to our forum wsjkcj1. It's good to hear that you've seen your doctor for your lymph node swelling because Sjogren's patients are at a slightly higher risk of getting lymphoma.

As for your ears and feeling dizzy, Sjogren's patients can get both ear and Eustachian tube problems. The Eustachian tube helps you keep balance and dryness in your upper airway can cause it not to work as it should which can cause you to get dizzy and have pressure or that clogged feeling in your ears. If this doesn't go away soon you might want to have an ENT examine your ears.

Also a rheumatologist is the doctor that usually treats Sjogren's, so if you haven't seen this specialist of autoimmune disorders put him on your list.

Please keep in touch and let us know how you're feeling, or just to vent. We all know how old these Sjogren's symptoms can get. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

wsjkcj1
New Member


Date Joined May 2016
Total Posts : 2
   Posted 5/23/2016 6:42 AM (GMT -7)   
Hi Butterflake,
thank you for your response. I am seeing a rheumatologist and she has me on Plaquenil. I was doing better but recently keep having flares and then the ear and dizzy problems started. It seems with every flare, I get a new symptom I didn't have before so I'm never really sure it's Sjogren's related or not. It has gotten better since my last post so I'm pretty sure it's due to that.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1594
   Posted 5/26/2016 12:19 PM (GMT -7)   
Hi wsjkcj1. Lupus is my primary disease and Sjogren's decided to tag along. I think most rheumatologists start all of us on Plaquenil and then add (try) other meds when symptoms get worse. I've been on Plaquenil about 10 years and I still feel crummy if I've forgotten to take it. The funny thing about it is I'm on other meds that are heavy duty including infusions, but I still need my Plaquenil.

You should write down your new symptoms and when you get them so you'll remember to bring it up with your rheumy. Years ago, before I was diagnosed with anything, I had awful vertigo that lasted a few months so I know how you feel. I'm so glad you're feeling a bit better now. Even a little better helps when it comes to dizziness. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1816
   Posted 9/13/2016 3:53 PM (GMT -7)   
I have SJS and problems with dizziness too. I also have trouble with allergies, so I am not sure what is causing it the allergies or SJS. Maybe it's a little of both. The allergy meds help some but not totally. It's been driving me nuts lately. I use allegra and a nasonex, I still have some trouble.

I hope you can find out what's causing your problem. In the past decongestants helped me but now they dry me out too much-:(
Sjogrens syndrome 2/15 via lip biopsy:depression, fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, metformin, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, alpha lipoic acid.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, February 22, 2017 10:54 AM (GMT -7)
There are a total of 2,763,754 posts in 304,009 threads.
View Active Threads


Who's Online
This forum has 150709 registered members. Please welcome our newest member, KatyRe.
499 Guest(s), 15 Registered Member(s) are currently online.  Details
TotesMagotes, Ides, JNF, compiler, KristenBee, modooley, Girlie, Eph, Liamb12345, Lynnwood, ravdeep, SharonZ, Betsy12, Graytech, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer