New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7215
   Posted 6/30/2016 4:36 PM (GMT -7)   
Finally some news from a new neuro on my foot tingling.

Even though my Lupus and my Sjogren's are in remission, he says both diseases can present with tingling. Lupus neuropathy is generally in the large nerves, and presents more as weakness, while Sjogren's neuropathy is in the small nerves, and presents more as pain. Of course, neither presents as episodic like my feet are doing, so...

We wait for another episode, then try to get blood & nerve testing done while the symptoms are present.

The really disappointing thing is that my rheumatologist, who is supposed to KNOW about Lupus & Sjogren's, sent me to a podiatrist and didn't mention (or know?) that both diseases can cause neuropathy.

More fun with auto-immune disease...
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1595
   Posted 7/2/2016 10:31 PM (GMT -7)   
Hi Lynnwood. My hubby recently brought home a medical publication regarding the lack of communication between physicians. The conclusion was that physicians don't communicate which leaves the patient with the sometimes daunting task of ensuring each doc knows what the other is doing. The article further said patients are sick and often work hard to maintain health yet are given tasks such as transferring records, making appointments for a doc that the initial doc recommends, etc.

All of this may seem off topic, but I wonder if your rheumy even followed up with you regarding your feet. As you know, recently my different docs had me make appointments with other docs and it was up to me to let them know what the other was saying. Thank God hubby came with me to all appts and was able to relate the findings.

Well, at least what you have with your feet is interesting and you are making progress...however slow it is. Love Ya, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/24/2016 2:52 PM (GMT -7)   
Hope you feel better Lynwood!
Love, Marji


Meds--Plaquenil, Evoxac, Metformin, HCTZ, HRT patch, Voltaren gel, Klonopin, Ultram, Albuterol, Questran, pancreatic enzymes

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1816
   Posted 11/1/2016 11:24 AM (GMT -7)   
I got curious myself about symptoms and which type of nerves are affected. Here is a pretty good article. I know that people with diabetes get both pain, numbness and tingling in their feet. I believe that's a small fiber neuropathy. I think neurologists are good at this but other docs, not so much. They might recognize diabetic nerve pain b/c they see it so much.

/www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

<Edited to make link active.>

Post Edited By Moderator (Lynnwood) : 11/1/2016 1:22:34 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7215
   Posted 11/1/2016 12:25 PM (GMT -7)   
Thanks for the article -- it does point out that the small nerves may be affected by SLE and Sjogren's, which is what my neuro said. Unfortunitly, there doesn't seem to be much in the way of treatment.

And of course, now that I have a neuro "on call", so to speak, I haven't had any more episodes. Nerve conduction tests only work once the tingling/pain/etc is constant. :(
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1816
   Posted 11/1/2016 1:59 PM (GMT -7)   
It seems to me they are way behind on treatments for Sjogrens when compared to other auto immune diseases like RA. If they could target the problem in our immune system, maybe our saliva glands would start working again. Some people like alpha lipoic acid supplement for neuropathy.

It's a shame you have to be a lot worse to get tests done. That has to be frustrating. I take it they ruled out other causes for your neuropathy like diabetes, smoking, medications, etc....?
Sjogrens syndrome 2/15 via lip biopsy:depression, fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, metformin, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, alpha lipoic acid.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, February 24, 2017 5:16 PM (GMT -7)
There are a total of 2,765,106 posts in 304,123 threads.
View Active Threads


Who's Online
This forum has 150805 registered members. Please welcome our newest member, Monkey11.
413 Guest(s), 15 Registered Member(s) are currently online.  Details
borrelioburgdorferii, Jane974, Artist Mark, Girlie, AK, Alice22, Herophilus, CAGU, bigcat, MRob2, Old Mike, Lessa Rayne, Robertmp, Juju, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer