Sjogren's only in one climate/area?

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Mandichick03
New Member


Date Joined Oct 2016
Total Posts : 2
   Posted 10/13/2016 9:29 PM (GMT -6)   
So I have a job that's enabled me to travel all over the US for the past two years. Where I will occasionally have a day or two a month of dry mouth, but nothing day to day.
When I would visit family at home my mouth would get dry as a bone if I stayed in town for more than a week.
I recently moved home to be around family and my mouth is SO INSANELY DRY EVERY DAY. I take the pilocarpine 5mg four times a day here and still don't get much relief.
Have any of you experienced that your sjogren's is worse in one place more than others?
I have not been diagnosed with Sjogren's formally but my mouth does not make any saliva at all in this one area that my dentist prescribed me Pilocarine to protect my teeth. I get very dry eyes as well. Cut out all medications in the past with this dryness (since that's what all my ENTs say to do first) I also get sore joints, severe tiredness, GERD, IBS and headaches in bouts as well.
I've got an appointment with a well reviewed ENT in a couple weeks but I'm honestly just so miserable and considering moving again if this is all locational based, just not sure if that's even a real thing for anyone else?

Post Edited (Mandichick03) : 10/13/2016 10:11:39 PM (GMT-6)


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1643
   Posted 10/16/2016 10:16 PM (GMT -6)   
Hi mandichick03 and welcome to our forum. If you haven't seen a rheumatologist I think you should place this on your to do list. They are the docs who diagnose and treat autoimmune diseases and syndromes such as Sjogrens. This doc will order blood tests to check you for Sjogrens antibodies and assess your symptoms and history. If you have Sjogrens he may put you on medications that treat Sjogrens and your symptoms. As for geography I personally haven't read anything that states Sjogrens symptoms may be relieved by living in a particular climate. Sjogrens symptoms can appear when you are having a flare and be relieved or lessened when the flare subsides. Before you consider moving, have a rheumatologist check you out. Oh, Biotene makes great over the counter toothpaste, mouthwash etc for dry mouth. You may find that they help enough that you can stop the pilocarpine. www.sjogrens.org also has great information that you may find helpful. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

CuzIkool
New Member


Date Joined Oct 2016
Total Posts : 4
   Posted 10/23/2016 7:43 AM (GMT -6)   
I would agree with Butterflake, time to see a Rheumy, as my Rheumatologist said to me, you can have all the symptoms of something and it still not be that. So definitely get checked out and see what's happening! Also, things like arthritis, which can be related Sjogren's, can impact how you feel depending on the weather.
Crohns ~ Sjogren's (Dry Eyes, etc) ~ HNPCC/Lynch Syndrome ~ LPR ~ Amblyopia ~ ADHD ~ Dyslexia ~ Mild Hearing Loss ~ Diverticulitis~Uterine Hyperplasia~Systemic Dermatitis due to rare food allergies Nightshade (group of vegetables & fruits) & Balsam of Peru (Fragrance, All Spices, All Citrus, Chocolate,Most Alcohol)~Anaphylactic Shellfish~Env't Allergies & Chemical allergies: Glycerin, Peroxide & chloroxylenol
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