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tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/5/2010 7:24 PM (GMT -6)   
I started Seroquel XR (50 mg) this evening.  I had a bad reaction to regular Seroquel (50 mg), so my Dr. thought this version will be better for me.
 
I took it at 7:00 p.m. - 20 minutes ago.  My Dr. told me to take it at dinner time because it takes a few hours to peak.  My fiance way away this weekend and will be back tonight so I took it a little later.
 
I'm already feeling not-quite-right.  Like my head is in a vise, heart rate is fast, breathing heavier, feeling off-balance and dizzy.  I already want to cry.  Why did I take this?!

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/5/2010 7:59 PM (GMT -6)   
I asked my pdoc what the difference between seroquel xr and seroqeul is because i was wondering if it would work better for me.. he told me that xr stays in your system longer but other than that there is no difference.. i thought to myself why would i want it in my system longer? i would be drowsy all day instead of just at night when i am asleep!
let me know how the xr works out for you.. in my opinion i think it's worse than regular.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/6/2010 7:53 AM (GMT -6)   
I'm surprised. It did hit me like a freight train, I was asleep within an hour after taking it. But this morning (besides waking up with dry mouth and congestion), I couldn't tell a difference.

Knowing what to expect makes it easier. I'll try it again tonight.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

mogli
Veteran Member


Date Joined Mar 2006
Total Posts : 1190
   Posted 9/6/2010 12:44 PM (GMT -6)   
Hey tortoise,

I'm on Seroquel XR and I think I need to start taking it right after dinner because it takes hours to get that sleepiness to kick in. That's the only problem I've had with it, I think...Not sure about weight...haven't been exercising at all, so I need to do that and then figure it out. But the XR is extended release, so it does move through your body slower to last longer. My pdoc says it's better with regards to preventing relapse as well.

So far, my only prob is that my sleep isn't as great. But I cannot at all take the regular seroquel bc it was way too sedating for me.

Best,
Mogs
Mogs

Bipolar II
Anxiety Disorder/Panic Attacks

Meds-Lamictal 300 mg, Seroquel XR 100 mg, Clonazepam .5mg as needed

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/6/2010 1:13 PM (GMT -6)   

So...  I woke up this morning at 7 feeling pretty normal.  Right...  I was asleep again by 8:30 and just woke up a little while ago.  The sleepiness is frustrating, but at least I don't feel so terribly sick as with the regular Seroquel!  I did get one dizzy spell since I woke up, and I did fall down, but it was still not remotely as bad as on regular Seroquel.


tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/6/2010 7:47 PM (GMT -6)   
The rest of the day just kept getting worse. Either sleeping or being suicidal. Then it wore off about 45 minutes ago and I'm totally fine again.

My pdoc says it isn't possible for Seroquel to cause suicidal thoughts in adults, and kept saying that in trials, no one ever attempted suicide.

I've taken in twice, been suicidal twice. This is a dangerous game to play. Why does he want me to keep trying?!
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/6/2010 7:55 PM (GMT -6)   
the suicidal part is your uncontrolled bipolar.. it will go away when the seroquel begins to take effect. don't worry, after a little while the sleepiness goes away completely. now i can't even take naps in the middle of the day, i find it impossible to fall asleep if i haven't taken the seroquel (so not at bedtime).
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/6/2010 7:57 PM (GMT -6)   
The suicidalness comes on late - I think it is from oversleeping! How long for the sleepiness to go away?

I'm afraid to take it again.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/6/2010 7:58 PM (GMT -6)   
voix - are you still online? Join me in chat?
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/6/2010 9:21 PM (GMT -6)   
i'm sorry tortoise. i wish i could chat but i'm just checking the forums really quick before i go to sleep, i'm so exhausted i won't last five more minutes. the suicidal-ness won't go away if you stop taking the medication, it will only get better if you continue to take it. the sleepiness goes away in a week, week and a half
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/7/2010 8:53 AM (GMT -6)   
I didn't take it again. My relationship is on the rocks and I don't think it can handle another day of Seroquel-sleepy.

I did get in with a therapist on Thursday and inquired about 2 different organizations with mental health support groups.

The relationship thing is a big deal right now. If this relationship ends, I am homeless and my son will have to live with his dad (eek!). If I lose him, I lose everything.

I recently purged my life to improve it. Now I'm continuing sorting things out to leave less of a mess behind. My desk is cleaned out. I've writted emails to be sent after my death.

I am full-steam-ahead preparing for two completely contradictory futures. I feel like I'm playing chicken with myself, and I'm scared.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/10/2010 7:33 PM (GMT -6)   
I've posted in a different thread and in my blog, but before I post what I came here to write, I need to update on my last post:  I was DANGEROUSLY suicidal and had absolutely no idea until it was over.  But it IS over, so moving on...
 
My fiance and I talked and he was upset with me because he thought is was a placebo effect (all in my head) rather than a real side effect of the Seroquel XR.

I've been fighting elevated moods and feel I need to get started on this stuff. I suggested that a crash with a friends for a few days while I start it. He sort of laughed at that as excessive and unrealistic.

So...

I have zinc supplements that are the same size and shape pill as a the Seroquel XR. I closed my eyes and he gave me either the Seroquel XR or the zinc. I was thinking it was a good idea: either I would not longer have the placebo effect, it's still miserable even if it's just all in my head, or he wouldn't be upset with me because whatever I experience would be a true side effect and he couldn't be upset with me thinking that I'm faking it or having a placebo effect.

But, now that we've done it, I'm having huge anxiety about it. I lost my balance for a moment in the kitchen and he teases me, "How's that zinc treating you?" (grrrr...)

I am SO tired. But I was tired before I took whatever-it-is. My balance and concentration are off, I'm feeling occassionally dizzy/stumbly. Which could simply be from the ANXIETY over which pill I have, if what I'm experiencing is real or not.

Here's what I get:

a) If he gave me the zinc, he teases me for life about the placebo effect. He has no idea how much that would hurt me and dissolve the trust I have in him.

b) If he gave me the Seroquel XR, and I suck it up so I don't embarass myself if it isn't the Seroquel XR, then he'll always tell me to "suck it up," and any reaction I have in the future to a medication he will attribute to the placebo affect.

Either way, I lose. And right now my stomach is a little anxious knot because of it.

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/10/2010 8:13 PM (GMT -6)   
i'm sure he gave you the seroquel, he wants you to feel better, why would he give you the zinc when the seroquel can actually help you? the side effects are yucky but you'll get over it in a few days. the best thing about being on seroquel: lay down in the dark and close your eyes. if you're not asleep in 15 minutes or less i'm a liar.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

Not2L8
Regular Member


Date Joined Apr 2010
Total Posts : 255
   Posted 9/10/2010 8:15 PM (GMT -6)   
That's not a game you need to play right now. It's unfair for him to taunt you with what you preceive as side effects from the medication. The anexiety alone is sending you into overdrive. Try and stay calm, take deep breaths and find something positive you can focus on.

Be strong
Pick battles big enough to matter, small enough to win.


Bipolar Disorder
Borderline Personality Disorder
PTSD



meds: Seroquel

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/11/2010 9:14 AM (GMT -6)   
I was really tired. I laid down with a book. I could read the book with no problems. This morning I woke up and could BREATHE. He gave me the zinc. I can't fake the morning congestion I got on Seroquel!
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/11/2010 3:21 PM (GMT -6)   
Hmmm.... guess not. I guess my stumbly-ness last night was REAL. Now I'm sorry I fought through that and the tiredness so hard. He did give me the Seroquel XR. O well. Today is fine.

I started getting tired 30 minutes and uncoordinated/dizzy after taking it, but I fought through it. I only fell on the stairs once but my fiance didn't notice.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/11/2010 5:41 PM (GMT -6)   
make sure if you're going to continue with the seroquel to take it at night at the same exact time, take it no later than 9:30pm, but as close to bedtime as you can. the stumbling clumsiness goes away. when i first started on it, my boyfriend had to walk me down the hall to the bathroom because i couldn't walk in a straight line at all. the side effects were really intense. but i used to be extremely addicted to prescription pills and marijuana so i'm used to fighting through these types of side effects.. but for someone thats never experienced them before, they're really intense. just keep fighting for a few more weeks and then you won't even feel the seroquel after you take it :) except that you'll feel better!
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/11/2010 7:32 PM (GMT -6)   
Thank you voix! :) I am taking it a 6:00 - 6:30 p.m. - because it is the extended release version. I hope today is a little better. Last night was not so bad that I couldn't deal with it.

I did have dry mouth for a while this afternoon. I drank A LOT of water. lol But I saw some mouthwash for dry mouth when I was ahopping last, so if it persists, I'll try it.

And then I was crazy-tired about 4 p.m. Took a little nap and felt TERRIBLE afterwards, physically and mentally.

I'm coming out of it. I CAN'T deal with dinner and the huge pile of dishes in the kitchen. But I CAN work on laundry, ironing, and a little sewing. I already took Klonopin this morning, so I shouldn't take it again today even though I'm having anxiety and feeling overwhelmed with LITTLE things. I'm jut going to keep on doing my best and hope I'll feel better.

BTW, I'm on 50 mg Seroquel XR at least until my next appointment in 2 weeks. I'm glad my pdoc is taking it sloooow this time. I'm sick of fighting the elevated mood and worrying about it getting worse.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/11/2010 10:12 PM (GMT -6)   
Keep in mind... you might want to not combine the klonopin and the seroquel while you're still adjusting to the seroquel. it'll double the drowsiness effects. water might not be the best for the dry mouth, believe it or not soda or iced tea helps more. staying hydrated is necessary on the seroquel though so keep up with the water regardless of the dry mouth.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/12/2010 9:48 AM (GMT -6)   
Last nigth I didn't have problem at all. The last 2 times, I started getting TIRED and uncoordinated about 30 min - 1 hr after taking the stuff. What I didn't know the first time is that it would wear off quickly - I went to bed right away when I felt that. The second time, I fought through it and it went away before bedtime.

Last night - no effect. Took it at 6:30, went to bed - not overly tired - at 9. That's when I try to go to bed anyway. I had a harder time waking up again today, but I think that is because I'm wearing a sleep mask and it is so DARK.

I don't feel any effects this morning. I wonder if my afternoon sleepiness yesterday was because I had a busy day or because of the Seroquel XR?

I'm doing fine, so I'm betting that my pdoc will up it to 100 mg at my next appointment.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/12/2010 10:12 AM (GMT -6)   
That's great :) i'm really happy to hear that the side effects are going away already.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/12/2010 5:48 PM (GMT -6)   
one thing i forgot to mention, and i know this makes no sense, but the 50mg dose is actually the dose that will make you the sleepiest. for some reason the lowest dose of seroquel is the one that has the most powerful sedative effect. its sometimes prescribed as a sleeping pill at that dose. but as it gets higher it won't make you sleepy anymore.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/12/2010 6:32 PM (GMT -6)   
If I'm tolerating the 50 mg well, you don't think it will be a problem to jump up to a higher dose?

Sleepiness is mostly OK. I'm getting tired late afternoon - a couple hours before the next dose is due. That doesn't make sense to me. Yesterday I thought it was because I was active all morning. Today I sat around all day to see if I would get the same effect. Not as much, but still there. Came out and being crabby. :( I hate being crabby.

G2g take it again right now!
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Depakote, Abilify - FAIL; Seroquel - Epic Fail
Lamictal 200mg, Klonopin 0.5mg as needed, starting Seroquel XR 50mg soon

Voix
Regular Member


Date Joined Mar 2010
Total Posts : 218
   Posted 9/12/2010 7:13 PM (GMT -6)   
I think you would be fine if you took 100mg. just dont jump straight from 100 to 200, give that some time. and definitely give it a lot of time if you're going up to 300mg.
i'm a crazy french girl with bp II
i take 300mg of seroquel every night and 0.5mg of ativan.

puddincups
New Member


Date Joined May 2010
Total Posts : 9
   Posted 9/12/2010 10:17 PM (GMT -6)   
most people get a bit tired in mid afternoon.... haven't you seen the advertisements "are you tired of that 2:30 feeling" try a handful of nuts preferably before you get tired....
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