Coming off Seroquel

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Phoebe100
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Date Joined Aug 2011
Total Posts : 1
   Posted 8/25/2011 2:55 PM (GMT -6)   
Hi
 
I wondered if anyone can give me any advice. I have bi polar disorder but really struggle with medication as I am very sensitive to medication ( I have an enzyme deficiency so can't break it down in my system) . Consequently I always get all the side effects. I had to admit defeat about two years ago as was very ill with my bi polar and I was put on Seroquel. I am on 50mg slow release as anything more than that and I am literally knocked out and can't do anything. I am in recovery from an eating disorder and the Quetiapine is triggering it off again as I feel ravenously hungry all the time. Life is much better these days, I am in a stable relationship and my partner and I are thinking about trying for a baby. I have discussed coming off the Quetiapine with my doctor for a while to see how I cope - I went down to 25mg of Quetiapine yesterday and I feel absolutely like death. I am sweating constantly, my neck feels very stiff, I have an upset tummy, very nauseous and very anxious and my heart is beating really fast. Is this normal ? Also has anyone tried for a baby and stayed on their medication ? I am thinking things through very carefully and have discussed everything with my partner but I just am not sure what is the best thing. I do feel very sedated on Quetiapine but that said, it has definitely taken the edge off my condition. Any advice gratefully received.

It's Genetic
Veteran Member


Date Joined Mar 2010
Total Posts : 1540
   Posted 8/25/2011 3:46 PM (GMT -6)   
Sorry, Phoebe, I usually post on the depression forum and had you
in thought as being on that forum at the moment. Someone on this
bipolar forum will be along soon to help you, I feel sure.

I've never taken Seroquel, so I can't be of any help at all. Others here
have taken it and can give you much helpful information.

I.G.

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 8/25/2011 8:29 PM (GMT -6)   
Coming off of Seroquel is VICIOUS and if done cold-turkey, it could be deadly.

You need to be off Seroquel for 6 months before you can try for a baby. And it might take 6 months to get off of it if you are sensitive.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Lamictal 200mg,
Seroquel 200mg,
Lithium 600 mg.

Living Well
Veteran Member


Date Joined Feb 2011
Total Posts : 1274
   Posted 8/25/2011 10:46 PM (GMT -6)   
Phoebe, I'm sorry re: the probs you are experiencing, generally the slower the tapering, the easier the withdrawals... to be honest you have me a little scared as I've just started dropping my sero last night under doctors orders but she didn't say anything about the kind of symptoms you are experiencing!!!
I am going off the sero because my weight has got too out of control and it looks like the lithium should be able to hold me up as it is.
I doubt lithium would be an option during gestation being as toxic as it is, but the person to ask would be your doctor.
I too have liver issues - lots of pathways down - 2d6, 3a4 - can't remember the others...
Because lithium is absorbed through the kidneys and bipasses the liver it might be something for you to trial when you aren't trying for a baby.
Being off all meds for a year might be an option, but one to be carefully weighed up.
Some natural products like omega 3 MIGHT (check with dr) be good for bubs brain development in vitro, and might help your bipolar.
Good luck with it Phoebe, and thanks for the heads up that coming off sero can bring probs!
Cheers,
Jade.

Annaliesa
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 8/25/2011 11:06 PM (GMT -6)   
Hi, I'm new and I don't have bi-polar, but my doc put me on 50mg. of seroquel, because I hadn't slept longer than 2 or 3 hours at a time since I quit amitriptyline cold turkey (my decision) after having been on it for 12 years. I am still having withdrawal symptoms after 2 months off. Also I am quitting Halcion because it isn't working anymore and it is bad, bad stuff.

She gave me enough for 14 days. The first night I slept for 12 hours and felt human again in the morning. It is also to help with the halcion and amitrip withdrawal. Am I going to get sero.. withdrawal after quitting this too? After only 2 weeks?

I like this med, great long involved dreams in color and with smells while I sleep with it, the whole night through too. Pricey stuff tho'.

Annaliesa

THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 11843
   Posted 9/4/2011 6:23 AM (GMT -6)   
HI GONE FROM 1200MG AT NIGHT TO 900, TO 600 AND CURRENTLY DOWN TO 450. I DON'T SLEEP. ALIKE OTHERS IT IS MUNCHIE CITY ON THE SEROQUEL. GETS BETTER AS YOU TAPER, OR AT LEAST I AM FINDING ANYWAY. WITH HEALING COMPASSION TO YOU. JAMIE
SCHIZO-AFFECTIVE DISORDER, EMOTIONALLY UNSTABLE PERSONALITY DISORDER, BORDERLINE TYPE -AXIS 2 , RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

Annaliesa
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/4/2011 11:50 AM (GMT -6)   
hi,
Boy do I feel like a lightweight. It only took 50mgs. to put me down for 12 hours. I'm rooting for you. Hope you get down to nothing or the reduced amount you need. How are you even concious on that much and the cost!!?? I did notice a return of the sugar cravings big time. I figured out 5 fortune cookies only have a 120 calories and they take a little time to eat, plus the fortune is always entertaining. I can buy them by the bag at one of our local grocery stores. I have a whole different set of health problems than yours, except for the depression for which I take cymbalta. Just officially diagnosed with psoriatic arthritis, so now I have the whole decision about taking Enbrel. That is a very scary med as well. It seems like it just can't ever be easy. Thanks for the reply! Anna :-)

tortoise11
Veteran Member


Date Joined Jan 2010
Total Posts : 2896
   Posted 9/5/2011 9:26 PM (GMT -6)   
The lowest doses are most sedating. :)

I started having weight gain at 400 mg of Seroquel. Came off when I was down to 300 mg. Must be different for everyone. I would taper off a little more but I don't have the right pill strenghts to do it. Going to schedule a pdoc appointment someday to talk about Seroquel. I'd like to be off the stuff if Lithium and Lamictal will support me.
Bipolar 1
Borderline Personality Disorder
Post Traumatic Stress Disorder
Panic Disorder

Lamictal 200mg,
Seroquel 200mg,
Lithium 600 mg.

THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 11843
   Posted 9/5/2011 11:28 PM (GMT -6)   
yep me off it soon tooooooo!!!!!!!!!!! jamie. i found it most sedating at 1200mg.

ha ha heavy weight!!!!!!!!!!!!!!!!! lol :-)
SCHIZO-AFFECTIVE DISORDER, EMOTIONALLY UNSTABLE PERSONALITY DISORDER, BORDERLINE TYPE -AXIS 2 , RAPID CYCLING BI-POLAR DISORDER

REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

Annaliesa
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/6/2011 11:16 AM (GMT -6)   
After reading you guys, Hi...I'm Anna and I am a lightweight wuss.

Thanks, people. wink :-) :-)

Grifter
New Member


Date Joined Aug 2011
Total Posts : 7
   Posted 9/7/2011 6:22 PM (GMT -6)   
Where do I start so many questions-

I'm Bipolar 2, have been my entire life since childhood. I finally just got diagnosed and medicated.

I have been on Seroquel XR for the last 5 months, I've gradually increased to 300mg which I've been steady at for about a month. In the last month I've gained 14 pounds. I'm a small female with a petite frame, I've never had weight issues. It may not seem like much but I've gone from 120 lb to 134 lb in just about 45 days or so. Mentally I'm feeling so much better, but I feel like I'm ruining my body in exchange for mental stability.

I went to my pdoc today and he reduced my Seroquel XR from 300mg to 150mg. I'm also taking Lamictal 300mg.

I'm hoping maybe some of you can offer some stories of experience with reducing Seroquel XR by half all overnight. Hopefully some encouraging news..

Maybe the Lamictal will help keep me mentally stable? I'm not nearly as worried about physical pain, I am absolutely terrified that I will relapse into my deep dark paranoid bipolar depression.

Also has anyone had success losing weight by reducing Seroquel XR? Since the weight gain I've been exercising at the gym and calorie-counting.

I tolerated the drug well when I was moving up on it, and its done wonders for bringing me out of my bipolar depression. I'm about 80% back to normal.. I'm just saying my prayers that I don't fall back into my dark place..

Post Edited (Grifter) : 9/7/2011 7:13:45 PM (GMT-6)


allamericancrew
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/24/2013 1:21 AM (GMT -6)   
Well I was on 700 mg sq. 600 night 100 morning. Stopped cold turkey. No problems,

CamanoGirl
Regular Member


Date Joined Oct 2011
Total Posts : 276
   Posted 3/27/2013 10:21 PM (GMT -6)   
I am on 300 XR. Got the munchies all of the time! Thinking about going cold turkey......with no meds but sleeping pills. I know it doesn't make good sense, but I am just done fighting the battle.

armitchell
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/1/2013 8:49 PM (GMT -6)   
hi i just wanted to say i have been where u r. i take 800 mg of seroquel and if you try to stop taking it all of a sudden the withdraw will kick your butt.. i was not able to stop takin my meds when i became pregnant. seroquel is a class c medication. which means there have been no proven side effects to the fetus. i hope this helps i took it through my whole pregnancy and my son is a perfectly healthy beautiful lil boy.

Jackaloops
New Member


Date Joined Apr 2013
Total Posts : 8
   Posted 4/1/2013 9:49 PM (GMT -6)   
I was pregnant and was weaned off. Than got really sick, virtually suicidal, so it was deemed necessary to go back on it. Weaning process was rough, and upping dosage was tough too. I am currently on a very low dosage, 100 mg and I am doing great. I was on 150 mg during the remainder of the pregnancy. Thankfully, baby is great. You need to worry about your baby's health during the pregnancy. A lot of stress can be terrible for the baby. Work with your OB GYN, Therapist and psychiatrist as a team to service your specific needs during the pregnancy. I did, and I feel it attributed to a healthy baby and a good pregnancy once I was stabilized. Best to you!

alphatwin
New Member


Date Joined Apr 2013
Total Posts : 6
   Posted 4/2/2013 12:36 PM (GMT -6)   
I feel for you. I was prescribed this stuff two years ago, and my life has been hell since.
I gained thirty pounds, which was shocking because I've always been athletic and slim. I lost my
appetite, so why the weight gain? The medication gave me naps, not real sleep. It affected my vision; it made me shake; it made me feel bizarre and fearful. I can go on and on.

I am weaning, and I am having horrible stomach pain. Food is disgusting, but my stomach
hurts when I'm hungry. I'm concerned about you having a baby. I don't understand why medical doctors and people in the mental health field don't talk to each other. I'm sure if you communicate to your "head" doctor, you can work something out. But be PROACTIVE. Posting on this site is a good start.
I wish you luck and a solution to your problem. Be well.

brenda in new york

Paige93
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/8/2013 8:14 AM (GMT -6)   
Hi all :) I don't really know where to begin I've never joined a site before but I really need some advise!! I'm 20 years old and got diagnosed with bipolar 1 and borderline personality disorder etc when I was 14. I've been on many medications but for the last two and half years I've been on quetiapine, I get mild side effects from quetiapine such as fainting, dizziness, dry mouth and twitching of the legs?! I really want to come off my meds but don't know the safest way to do it? I tried to go cold Turky but I only lasted a day! I was being sick and couldn't sleep a wink! I want to try for a baby as I've had miscarriages and an ectopic pregnancy so I want to try to lower the risk of anything else going wrong sooo I'm really determined to come off of them! Only thing is I'm scared of how I'm going to feel when I'm withdrawing??? Can someone please help me or point me in the right direction!! Thanks Paige x

Chloe43
Regular Member


Date Joined Nov 2012
Total Posts : 327
   Posted 7/9/2013 1:33 AM (GMT -6)   
Hi Paige,

Talk to your Dr and get help coming off of it. I was on Seroquel xr for 2 years before the side effects became too difficult to cope with. My Dr was very helpful!!

I remember he told me that I would need to be off Seroquel for 6 months before trying to conceive. Ask your Dr about that too.

Paige93
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 7/19/2013 4:55 AM (GMT -6)   
Thanks for replying Chloe I did take your advise and consult my doctor. I'm on 300 and I've been lowering my dose 25mgs every three days soo at the moment I'm at 75mgs woohoo 😀 it's been a Lil hard but now I'm worried that when I get to 25 mgs and stop I've heard that's the hardest part 😰😱

amateurpsych
New Member


Date Joined Jul 2013
Total Posts : 15
   Posted 7/21/2013 5:46 PM (GMT -6)   
I am on Seroquel 800mgs. Definitely a LOT of weight gain. I was a size 4...now am a size 16/18. Boo. But, this has been my "miracle drug" in terms of my bipolar. So I stay on it. I am taking Topamax to try to combat the weight gain and have started to really watch my weight.
Dx: Bipolar type 1 with panic attacks
Rx: Effexor XR 225mgs, Lamictal 300mgs, Topamax 200mgs, Seroquel 800mgs, Xanax 0.5mgs

Paige93
New Member


Date Joined Jul 2013
Total Posts : 4
   Posted 8/1/2013 4:46 AM (GMT -6)   
Hey everyone! Last night was my first night completely medication free! I knew I probably wasn't going to get any sleep witch surprise surprise I didn't 😓 but I wasn't prepared for the unbearable itching!!!! Is it just me or is it a side affect??? Is it normal??? X

michelleishappy
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/3/2013 12:59 AM (GMT -6)   
I quit seroquel about a month ago...even though I was on 1/2 of the lowest dose, I am still sensitive. I had it backed down that low because of weight issues. It was still "getting the job done" with managing my paranoia and such. But I just couldn't stand the thought of fighting with a pill when trying to lose weight. I'm 46 years old and it's hard enough. Also I heard that it can cause breast enlargement and I have an issue there anyway lol.

So I just quit seroquel and trazodone cold turkey. I don't miss the trazodone...but after this long period of time, my fears and paranoia are making a comeback...bigtime. And...I've gained a few pounds and have terrible munchies. Go figure. Could be stress. It started when I ate yogurt then omeletes. Protein does that to me. I am going to a gym when I am physically able (also have a painful rare neurological thing called cluster headaches. Neurologist prescribes topamax for that).

I am fighting the paranoia and fear with prayer. Helps. But at next psychiatrist appt will discuss adding something else in place of seroquel. I absolutely MUST lose weight and keep it off.

BP1
Schizoaffective 1
Paranoid personality disorder (ya think?)
Meds: Trileptal

Butterflywings79
New Member


Date Joined Dec 2013
Total Posts : 16
   Posted 12/6/2013 7:29 AM (GMT -6)   
Tortoise I'm sorry but you're wrong on a few counts. Seroquel is category C which means it should be avoided while pregnant, but doesn't mean it has to be. My best friend gave birth to a healthy boy 10 years ago while being on 300mg a day.

I currently take 200mg a day while pregnant and was told absolutely not to stop it. I also work as a psych nurse and have watched doctor after doctor put women who are pregnant in hospital until they agree to go back on seroquel while pregnant because there are no studies showing damage to human babies. The reason it's classed as pregnancy category C is because there are no studies into the effect on human babies but there has been serious birth defects found in animal studies. So there may be a risk but not all animal data can be accurately put over onto humans.

Also, lower doses of seroquel are NOT more sedating. People are usually prescribed low doses (25-50mg) to just help them chill out during the day (for anxiety etc). After the initial few times, it shouldn't be sedating at all. I've been on up to 600mg and looked after patients up to 1200mg and I a guarantee, the higher up you go, the more sedating it is.

It is awful to come off, but I have that coming up in the last month of my pregnancy because I refuse to let my baby have to go through withdrawal when she is born. I'll taper myself off and deal with the consequences so she doesn't have to.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32595
   Posted 12/6/2013 12:30 PM (GMT -6)   
BW,
 
I am going to kindly request you look at the dates of the posts by members before you make comments re their information in their posts.
 
Tortoise's comments were made in August of 2011 and she has not been seen on the forum since January 2013.
 
We do ask our members to feel comfortable in posting their own personal opinions as well as sharing their own experiences and knowledge.  However, we try not to call out someone as being "wrong" as perhaps their information came from a different source.
 
A friendly debate is good for the soul as long as all the members keep in mind that we are peers and not medical Drs.  We should respect all points of view.
 
Thank you for your input.

 
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

Butterflywings79
New Member


Date Joined Dec 2013
Total Posts : 16
   Posted 12/7/2013 3:01 PM (GMT -6)   
Kitt telling people seroquel can't be taken during pregnancy is actually dangerous. It can put people's life at risk. There really is no "different" accurate sources. Seroquel IS a category C class drug no matter what source is used and as such it's best to avoid during pregnancy but can be taken if needed and should always always always be discussed with a medical professional before stopping taking it.

Same with the sedating effect... I am yet to find any clinical study that has found lower doses to be more sedating and there are hundreds of clinical studies out there.

Opinions are fine, and yes there are people who experience paradoxical side effects (I get that with the SSRIs and the older anti psychotics) but paradoxical side effects are rare.

It's ok to say "I found it more sedating on lower doses" but not ok to say "IT (seroquel) is more sedating on lower doses" - one is opinion, one is an attempted statement of fact, which in this case is disproven by research.

Plus, lots of people go back and read old posts... if people get serious misinformation, the date on the post isn't going to make a difference.

Anyway... another important reason I've commented is because I've been abused by idiots recently for taking seroquel while pregnant because they read misinformation on forums saying it can't be taken during pregnancy. I'm tired of hearing "well I read on a forum it can't be taken during pregnancy and therefore you're a bad mother for doing so". Made all the more frustrating because I had to give up an awful lot of medications before starting trying to conceive precisely because my baby's health comes first, and several of the medications I take for physical health conditions (like rheumatoid arthritis) genuinely are dangerous during pregnancy, as well as giving up all painkillers once falling pregnant so being abused by people who read incorrect info online about medication safety in pregnancy is really frustrating when I live with chronic severe pain precisely because I did give up all the unsafe meds.
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