Hey Nickie I am so sorry that u r not feeling well I am not either. i have been busting my butt trying to get help and apparantly it isnt my reality. That is why I wasnt posting cuz, believe it or not my friggin mind is racing soooo bad as is my body. I pace, have panic attacks and it is just no way to live. I go to the salon to try to look decent for my husband who will be here on Wed. and I am getting all these beauty treatments and I didnt enjoy ANY of it!!!! LIFE SUCKS period! I fell asleep Sat. nite at 4 in the a.m. and was up at 9:00 feeling the same way! And that was after 20 mg of Valium for the anxiety!!!!!!!!!!All that said, I am happy to say that I have a friggin cold sore/fever blister on my lip.....NEVER had one before, little red pimples under my eyes, and they look like crap! You know what that means I cant even kiss my husband let alone anything else. As far as my previous post last week regarding a pdoc, remember my husband works in punta gorda (1 pdoc in the entire town) and since last year I have been living over here in Ft. Laud., which is 160 miles away (2 1/2 hours drive time). That is where all my other docs were. I went to my Gastro (who is in Ft. Laud.) and got on those darn steroids and that is why my skin is turning to crap, I cant sleep, and the headaches are unbearable! I have sooooo much else to tell you, but honey I have to go to the potty AGAIN...this makes 10 times today! Hon, dont worry u will feel better, you are too darn determined not to. I love you girlfriend, and please try to take some time for YOU. Thanks for caring about me. If it weren't for you and Shannon, I dont know what I would do. So, even if u r not able to help yourself, take pride in that you are helping me, and I am sure many others. I will talk to u as soon as I can. I hope and will pray tonite that u feel better. I am so sorry that I wasnt there when u needed me. I hope u understand.
Loving you more than I can say,
When I had racing thoughts really bad like that it usually meant I needed another med adjustment. Racing thoughts are terrible to experience. It's hard to follow any conversation when your mind is going 90 miles an hour.
I hope your thoughts slow down for you soon.
Hi, Nicki, Patti and Laura! It's good to see you posted, Patti, we have been wondering where you are!
Hey, Nickie, hon you are just a little bit hypomanic if this hasn't been the case until lately. If it is something you have started to notice, you may need either an increase in your Topomax or another stabilizer. I see that nobody ever writes in about Trileptal. I coulnd't (woulnd't) take depakote and coulnd't tolerate the side effects of lithium, no tegretol (blood tests are a pain, too many bad side effects), no Dopomax, that abuot covers the stabilizers. So my pdoc said, "well, last option is Trileptal", so I tried it and unbelievably, it worked very well! It's a form of Tegretol, but it's more effective. It's an anticonvulsant like the rest. I have no side effects at all, no weight gain like the others, no sedation, no confusion, no appetite increase. It has been a godsend for me.
Since I know you don't want to increase the Topomax, ask your doc about the Trileptal. I still don't understand why more pdocs don't use it considering the bad side effects of everything else. I will say, she started me out at a rather high dose, and the first two days were spent with severe vertigo (room spinning dizziness and vomiting) to the point I was in bed and would vomit/dry heave if I even opened my eyes. It was awful! But it went away as soon as we reduced it. It's really easy to adjust, the pills are scored (breakable) and I adjust it as needed. (Of course, don't do it without calling the doc). Just a thought. I guess I got really, really lucky with my pdoc, she is very cutting edge, keeps up with the very latest on these things. She teaches me something new evry time I see her, lol!
Hey, Nickie, I'm not going to post about the Topomax, lol, you KNOW I can't really be objective! I would just have to cut and paste the facts off the patient insert LOLOLOL!
Sorry for rambling, I do that, I guess I always will, manic or not, haha. It kinda depends on how bad the racing is; I do the same thing. If something isn't really gripping to me on TV, I coulnd't tell you anything I saw, esp. commercials. Paul will ask me "what did they just say" becuase he didn't hear it right, and I never have a clue. I can't even tell you what I am thinking about! Oh, and I still ramble. Did I tell you that? LOL.
Patti, I'm sorry you're not feeling well. You mentioned there is one pdoc in punta gorda, but you live in Ft. Lauderdale and I know there are a TON of pdocs there! I know you can find one, all you have to do is looke either on your insurance list, or in the yellow pages. have you done either yet? (Not trying to be snotty, you just have said you can't find one.)
Do you HAVE to be on steroids? You know that's a bad long term med to take, and if you aer taking it for the colitis, it isn't working anyway! Steriods are not recommended for bipolar except for very short term courses, (or anybody else who can live without them! Bone loss, eventual diabetes is a major concern also) because they play major havoc with moods! Not just mania, but psychosis and depression, too! That may be the very reason you can't get stable!
Talk to you guys, later!
Hi, Patti! Thanks for the compliment, you are too kind. I'm still waiting for a pic of you (and Nickie) *tapping foot*....... My dogs are Sophie (the fawn) and Gerhardt the black. They are my pride and joy, I love them sooooo much. They keep me sane, for sure. But, on the other hand, they are so needy, sometimes they drive me crazy too!
about the steroids, I am confused because a couple of times, last week and yesterday I believe, you said you couldn't get away from the bathroom. I'm assuming that's diarrheah. I guess I'm confused.
Anyway, I found my pdoc on the ol' insurance list. Finding a pdoc is just like shopping. You have to search for one you like and who you trust is really working with you. I had a crappy one first, and didn't feel he was really listening; so that was the first and last visit to him! I got lucky the second time - she is awesome! So informed on the very latest news and treatments and not afraid to try new things, she also know what DOESN'T work. She has also let me hang myself a couple of times, years ago when I was "in charge" of my meds, lol. I was crazy! She is always cool, tells me her opinion and busts her ass to help me; I am kinda hard treat, still have pretty good mood swings even on meds, esp. lately.
Anyway, before I start RAMBLING like I do, please don't give up. It's only a copay and a couple hours of your time. After all this is your mental health we're talking about - you're miserable now, and that won't change until you see someone. You can't just not find a doc because you don't want to see anyone that you weren't referred to! Also, I know there are TONS of pdocs on those insurance lists and in the book in big cities and surrounding suburbs and more are taking new patients than not. IMO you do not need a neuropdoc, you have docs that are treating your other illnesses and besides, they are not very common
Anyhoo, please do send a pic when you can, OK?
Yeah, Nickie I'm concerned about you. Please drop a line to us tonite, OK?
Take care you guys! (hugs)
Hey Shannon. Not too kind, just honest! I have 2 doggies too, a minature long haired dachsund..CoCo, after CoCo Chanel of course...lol. Trust me I get killed for naming her that but you know me! The other who is MY BEST FRIEND is a mutt, Shera is her name and my hubbie had adopted her before we met. When I send u a pic I will send u one with my girls (doggies) also. The only reason I havent sent u and Nickie a pic is because I am computer illiterate...LOL! So Kevin gets here Wednesday and sometime soon after that I will have him help me do it. As far as me being in the bathroom, the 1x was the time I did have a flare(colitis lingo), the rest is because I have a urinary tract infection, or kidney infection. I like the loser I am just ignored it hoping it would "go away", when I know better, its just that I am so sick of going to the doctor. But tomorrow I start antibiotics, so wish me luck! I agree that I do not need a Neuro pdoc, plus as always u r correct in that they are hard to find. But I promise you all and myself that I am not just giving up. But, being that my Gastro has such a good reputation and works at the Cleveland Clinic down here I am hoping he will have someone to refer me to. In case I am confusing you, he is my only Doctor in Fort Lauderdale, that is why I keep referring to him. Plus mysister is also trying to help as she is a CPA and has a lot of clients that may be able to help us find someone with a good rep. The only reason I do not want to go to a total stranger is because I have had such bad experiences with pdocs in the past, and knowing me I will get mad and say "F" you and walk out !! Which we both know is something I cannot do, as i really want to get better. Have u "talked" with Nickie today? I am worried about her. Please let me know honey and thanks for everything. Talk to me soon.
Yes, do send me a pic of all of you! (Your doggies sound so cute!) I think you said your hubby was coming in Wed?
Good, I am so glad your "D" is better, but shame, shame, shame on you for letting a UTI go!!!!!!! I know it sucks going to the doc, but um, it sucks more being hospitalized on IV abx for a kidney infection!!!!!!!! You make sure and take all those pills, OK?
Not sure how Nickie is doing, kinda worried about her as she said she wasn't doing well this a.m. Nickie, girl, if you get this, drop us a line, OK?
I'm going to see if I can google a pdoc in your area with a website.
Hi, Patti! Are you excited to see Kevin? What are you two going to do? (Um, I hope the obvious????) *wink*
Now that I have been sufficiently nosy, lol, about your question. A UTI is what happens first, with the frequency, urgency, pain or burning with urination, but a kidney infection is what happens if you let it go for several days to a week. It's the same but there is also pain in the lower back, where the kidneys are, that people often mistake for low back pain/strain. It's very serious, you will eventually develop fever, it makes you very sick. Worst case scenario, if not treated, the bacteria gets into the blood and it can kill you (sepsis). Of course, you will be feeling so sick before that happens, you will seek help! Just never let it go, OK?
about the Macrobid, I didn't think it was even used anymore! It's weak, but it may work if you take it for about 10 days. Too short a course, and it will only kill the weak bacteria, leaving the strong ones to multiply and boom! Repeat infection. So take them all! I really like Cipro, it's strong, but doesn't usually have the bad stomach effects the very newest ones do and works quicker. Not sure how any of them will affect the colitis; it just depends on the person.
You're making me blush with this gorgeous stuff! It's really nice to hear, esp turning 40 this year, it really sucked, lol.
You sound like you're doing good today, it's good to have your husband coming in! I guess we won't be hearing from you much while he's here, but if you can drop a line, tell us how it's going, OK? And then when he goes back, you have to divulge all the details! Joke!
I hope you have a great time, Patti, you deserve it!
I am new to the site. I have experienced the very same thing. For me the answer was a change of medication. Have you talked to your pdoc about it?
Hi, Sandra! Welcome to healingwell, so glad when a new BP joins us. As you can tell, it's a kind of small group of us, not clicky tho!
My name is Shannon, BP I since childhood, now 40 years old, been stable 1 whole year. Yes, in spite of my occupation, we are die hards when it comes to not taking/staying on meds, right?
Kittycat is away for a couple days, but should be back anytime, Stox4pat is busy with her husband, haha, Danarx, a registered pharmacist, and Nrs2B, also named Shannon. We're on here pretty much every day. I have been away from the house all day. It's usually busier than this.
Can you start a thread of your own and tell us about yourself, your story, etc. so everyone will see it?
Looking forward to hearing from you!