DANA!! ANYONE PLZ RESPOND!!!!!!!!

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sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 11/20/2005 2:40 AM (GMT -7)   
nono in this forum. sad
I hope Dana reads this have questions,
Only when you can Dana, I know you are so busy, and are in pain, and have lots on your plate too, so only respond when you can, I will understand. Thanks for anyone who may be able to offer support, or some uplifting advice.  Thanks...Love....Sheryl
 
 My dauhger was doingbetter and still is, she has strep and is being treated for it, I had to renew cpr and first aid certs today and left them (my kids with the aunt and uncle, uncle not blood related here is what I have been typing for he pyhcitirst to tell next time I see him has info on today and what I experienced. i am so frustrated, I mean I have drs. backing me up Kara needs meds, just getting the right combo is tricky, and she does have all that I tell you she has this documented, austsim, bipolar, tourettes ocd, anxiety, and adhd. So here is what I am up set about I will just copy and paste todays happening plz forgive spelling very tired and fingers hurt:
This is my journal for today to her psychiatrist: I am truly frustrated and feel like a bad parent
I am trying my best and just don't know the answers her is journal, just needed to confide and vent thanks for listening to all who are concerned and interested about Kara;

11-19-05 Kara has strep, and is taking antibiotics, she spent day at aunts, as I had to renew CPR and first aid certificates. She seems fine when I left, she has been eating good, probably the depekene but has need to eat,she is extremely thin, but active. Unfortunately she likes junk food which I try to keep to a minimum at my house occasionally I will get some. But she knows that at her aunts house they have a bunch of junk food and she will eat it, apparently uncle by marriage, said he told her no more snickers,and she did it any was, but aunt blood related said Kara was fine, her aunt told her not to do something, Kara said ok, maybe Kara doesn't like uncle, usually she does. When I went to pick her up I asks aunt9 so i was soliciting her veiw of karas day, was not solicitng what drunk uncle thought) how Kara was as she is having med changes and issue right now, aunt was telling me fine, and aunt said if it wasn't fine she would have told me so, as she wants to help Kara as much as she can. Uncle yelled at me said she is on too many med's, and he knows what he talking about he has raise three kids (oldest in jail), other two are fine, but I credit mother the aunt for this. Just a note the uncle has been drinking since 11 in the morning, so he was is an angry drunk. he said Kara was belligerent, disobedient, obnoxious, and arrogant. I have never heard Kara been described in such a manner, I was upset and walked out, yes she can be those things at times, but she has issues. I am at my wits end, is she on too much drugs, what's the magic drug that is going to help all her syndromes, I don't like her on so much drugs either, but she has so many issues, I believe I am not even going worry about the adhd , its the least of my worries, not going to worry about the tics as long as they stay at home, my biggest concern is her anxiety, aggression and obsessive compulsiveness, she tells people what they have to say, you cant even look at her side ways, she wants to be the authority and will chant an adult Kara there and an adult Kara here. she picks her self til she bleeds, not just scabs,but makes fresh wounds too. She also did this befre meds. Before any med's she was with drawn and rocked all day and could not functional at all, she became depressed, would not eat, would sleep all, day, and not play outside. I felt like this drunk man was attacking my daughter verbally and me as a parent and my parenting, I am not perfect but am trying the best I can, I do not want to have to medicate her, but I cant have her in a state where she cannot function and with out med's she cannot function, she shakes from anxiety, obsessive compulsive is even worse than it is now. My guess is if we can treat the anxiety the other will fall in place?? I think depakote helping with aggression, but not with anxiety, or the OCD, that as why I think she still needs the buspar Prozac and I guess the impermine, what else is there that could help panic anxiety OCD and not take so many med's Risoerdal she could not tolerate, very anxious even with Prozac, geodon aggression was till bad, Prozac helps abit with her at least being somewhat social at school, and anxiety and the buspar help amplify it, not sure what the impermine is going to do???
Anyways this was her day, what to do!! do I ignore this uncle or what, I just feel bad, my son see phych on monday he still haveing mood swings and periods of crying for no reason, and anger out bursts, I am weaning him of seroquel as it does nothing, and see if doc will put him on impermine for anxiety as this is a big factor, as if anxiety and moods under control I beleive anger would subside, Also they may need to up the deokote he is 130 lbs, on 250 in am and 250 in pm, he could probably stand to be on 500 in the am and 500 in the pm. Dana if you read this what do you think about all this, son is bipolar, the adhd for him is waning not so much of a factor, do you think the depakote imperine combo is worth a try or to suggest to son's phych?? And with my daughter you see whats shes on, and she has as you can see every syndrome under the sun, what would be a good combo in your opion, not asking you to be doc, but staying generic what can help her aggression, anxiety, ocd, i dont care about her adhd, or tourettes, she gets As and the tic stay at home, so I am not goging ot treat that medicinally anyway, but what about the other stuff. Depakote seem to be doing ok, prozac and buspar ok, but the impermine does this just take time, and with her taking prozac in the am is it ok to take the impermine in the pm, doc knows shes on both, but warning say something about being on both, what do you think, they seem like opposite drugs? What would you think in you opion not as a doctor just as concerned person would be a good combo for her, she cannot take resperidal make to anxious even with the proxac, cant take tenex, cant take klonipin. she can take clonidine but it knocks her out, dont want to do that,and if she not ticing bad why should I. she couldnt take the trlipital either, cant afford lamical. whats left, are we really at the point of lithium with her, i dont think so. what do you think, thanks for your comments..Love...Sheryl
by the way she got green lights at school the last two days, fisrt time in a month so the meds must be helping some. Green light is good!! yeah
***Take Care.....Sheryl***
 
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........

Post Edited (jk) : 11/20/2005 2:46:03 AM (GMT-7)


Ellie 1
Veteran Member


Date Joined Apr 2005
Total Posts : 1291
   Posted 11/20/2005 8:39 AM (GMT -7)   
Hey Sheryl,
What is impermine. Is it the same as imiprimine? Like the tricyclic AD tofranil?
Sorry I can't be of much help. I know how it is to deal with kids without all the medical problems yours are having. I have six and it isn't always easy. You certainly have alot on your plate.
As for the drunk uncle. Have you ever noticed the more people drink the smarter they think they become? By the time they're a puddle on the floor they think they have all the worlds answers and they cant even untie their shoes. Sad really. And annoying just the same.
I hope you have a better day today.
Take care
Ellie

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 11/20/2005 6:12 PM (GMT -7)   
Thanks Ellie for your support, yes its the generic tofrinal, she is still a mess, its real hard when you child has multiple disorders, and can only offeord genreic, wish there was supplemental inurance to cover co-pays, for people who make too much money to qualify for anything else, goverment thinks we make too much but its all outgoing. i hope when Dana feels better she can help me with soem ideas. I am looking at zyprexia, it says is used with tics, yes she has mild ones, hard to treat OCD yes majorly!!! bu its usally used with prozac as well, ok she is one htat, and a mood stablizer the depaokte she is on that, if that combo woould work maybe we could drop the impermine and the buspar and she can be on less meds, but hoping insurance will at least only charge 30 not 60 for zyprexia, its been suggested before, but i cannot afford i will recheck. has anyone had any exeprience with zxprexia?? anyways thanks Ellie for respoding, sometime I feel I overwhwlm people too much her, but I am desperate and need all the info and support I can get. Uncle propbaly doesnt even remneber what he said, and guess what whole family gets to come to my house for thanksgiving, I dont drink, but have to keep sanity!!LOL!! welll thanks again...Lvoe...Sheryl
***Take Care.....Sheryl***
 
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........


Danarx
Veteran Member


Date Joined Feb 2005
Total Posts : 585
   Posted 11/20/2005 8:05 PM (GMT -7)   

Sheryl,  I am so sorry sweetie. I had some good info but I just lost it.  by accidently hitting cancel.  I will finish it tomorrow I just have a really really important interview I have to prepare for. 

As far as the medications go.  I'm not sure what you are trying to accomplish with the imipramine.  Its a tricyclic that should help with several things.  But it is similar in a lot of ways to all other antidepressants, (effexor, prozac, zoloft etc.)

As far as the zyprexa, I do think it's worth a try.  I am usually not a fan of zyprexa due to the weight gain issue.  But in your daughters case it may work well. 

Wondering what happened when your daughter took klonopin and with her anxiety issues she can't tolerate benzos. 

I will address this again.  This is just a bad time.

You are in my prayers.

I just really need to prepare for my interview. 

love,

Dana


 ~ With Love ~ Dana, Pharm. D.
 
~ Diagnosed with Lupus in May of 2004 and Bipolar II in April of 2001. 
 
Disclaimer:  On any medical information I provide, please bring your concerns to your physician.  I have no financial interests in any drug or drug company.  I will try be as objective as possible.  If I am giving my opinion I will state it first. 


Ellie 1
Veteran Member


Date Joined Apr 2005
Total Posts : 1291
   Posted 11/20/2005 9:28 PM (GMT -7)   
I know with my bp I CANNOT take imiprimine. That was my first true manic episode. This was back before it was diagnosed. Everyone told me how it would make me sleepy. I had one friend on the stuff they were giving meds to help her stay awake because the tofranil sedated her so. With me it was like cocaine. I was awake for days at a time. They were giving me xanax to help me sleep and all that did was give me waking nightmares. They (the docs) told me they were nightmares but I guarantee i wasn't asleep. I lost alot of weight and I was told it was just a med side effect. I stayed on it a couple of months but eventually became so unstable mood wise, and horribly irritable that I discontinued it. It wasn't even prescribed for depression. The military doctors gave it to me for migraines. Big disaster. The point of this whole story is I wonder with your daughters bp that this could be causing MORE anxiety, tics etc. If shes having anything near my reaction could it be making things worse. I know meds are a very individual thing but you never know. It might be a question to bring up to the docs.
Ellie

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 11/21/2005 4:22 AM (GMT -7)   
Thanks Ellie, thanks thanks Dana, good luck with your interview, I will be praying for you, please post how it all turn out, take yu time on my info. I will still be here LOL!! I am wondeing about why he suggested impermine too, I think i may have to un suggest it. When Kara took that one dose of ritilin last week, sh ewas like she was on cocaine for 48 hrs, poor baby. But when she drinks coffee, or coca cola, she is calmed instantly, what up with that, her mood imptoves she I guess as close to normal as possible??? I think he is targeting the adhd with the impermine, and you know what i could cae less about the adhd, (teachers might think differenetly, but she is straight A student, so I am sorry, the adhd is goign to have to go on the back bruner, so are the tics, as long as they remain at home I dont care, neither does she. I just dont want her on any meds that are going to worsen her bipolar or her tics, but do want phychotic epeidoses, and mood swings to subdide, and anxiety level to subside, and her stop telling us we can tbreath etc etc, and that the is goignt otake my face off etc. Or bite the cats ears etc. some things I can live with some I cant, I can live with the hypersexualness as long as she keeps it at home and I can igonroe the best I can. (when she is 16 this my be a different storyLOL!, but tight now its one day at a time.)
Dana she can not take klonipin becasue when we gave it to her she climbed the walls( and she probably litterally did climb them! LOL!). I dont think that was what we were shooting for!! Clonidine works but why give her somethat knocks her out just to treat a few tics she was still agression on it, just in slow motion til she would finally crash. And she does not have a problem going to sleep. And she would not be able to take it at scgool. I give it to her on rare occasions when she is so out of control and she is home not goign anywhere, when she really does need to be knocked out, due to I am afraid dhe will hurt herself or someone, but I only give the clonidine on very rare occasions.
Cant afford zyprexa 60 co pay and if she needs twice aday like the geodon it would be 120.oo a month cant do it.
Anyways ladies thanks again for your help, experience and advice,
Dans good luck preparing for your interview....Love...Sheryl
***Take Care.....Sheryl***
 
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........


domaincat
Regular Member


Date Joined Nov 2005
Total Posts : 59
   Posted 12/1/2005 6:35 PM (GMT -7)   
Hi, sorry you are having such a rough time and your family's pain is felt as well.

First, I was for a short time on Zyprexa and found it very helpful to help fix my brain after the pill Remeron screwed it up more. Zyprexa I had free as samples. REQUEST SAMPLES from your psychiatrist!! They usually give out samples why haven't they done that for you especially with your children? Those meds are strong ones especially that Buspar very strong are you sure it is safe for children?? Well the Zyprexa I got off later as I had to keep adding more and more of it, and it did not last or hold for me. It worked for a few hrs then it stopped working. Depakote ER the TIMED RELEASE Depakote is that what is being used there is a difference a big one, on the other one that is not timed release. ASK for samples as the psychiatrist most definitely can find some samples for you from the Depakote Company - I KNOW, I spoke to the Depakote people to two people recently as they were in the office, I thanked them and praised their Depakote as that works and has worked and they have provided me with samples for a few years. (You have to be low income or no income whatever for that). Many psych meds you can get from the pharmaceutical companies! Did you not know that? Did the psych dr not tell you that? Gee that's rough having to try to cover all that expense yourself! If you are of course with a big income or with prescription coverage, then you wouldn't get the Depakote free. You'd have to fill out a simple form and have it faxed into the company and the doctor of course has to prescribe it. JUST ASK for it okay??

Instead of Buspar, have they tried Lorazepam or Klonopin which are anti-anxiety meds and less strong than the Buspar. That Buspar I haven't tried fortunately not that bad. Klonopin does have its draw backs being it is addicting, so that should only be for temporary use instead the anxiety gets less. Lorazepam is not that expensive at all and it really truly does help!! And Lorazepam is not an addicting one.

You need to remember that you need the right dosage and the right combination of the psych meds. And you may need blood tests to check for any damage to the liver. Watch carefully for side effects.

Also get some healthy vegetables in her! And get in some Omega 3 and Fish Oils as that is to help Bipolar believe it or not, some mental health issues may get worse or may be a cause if you don't have fish oils!!

And get lots of sun (sorry it's winter now how can we do that), but the weather makes a huge difference at least for me. Have lots of light turned on. Some say light therapy works too you may wish to try that, that's if you are able to afford it.

Well I'm not Dana and I don't know who Dana is, I hope you don't mind my speaking up anyways.

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 12/2/2005 4:13 AM (GMT -7)   
Hi Domaincat, thanks for responding, oh yeah we tryed the whole gamut, we cannot afford the heavy co-pays on the new drugs, and we make too much  to get any help form the companies, so we have to stay generic. yes she has been tryed on kloinpin she literally climbed the walls, so paradoxial effect there. And its ok your not Dana, I just wanted someone to respond, and sometimes thats a bit dificult!!( yes I think I am BP and adhd as well, sigh!!! redface
Yep tryed the omega three, no differece, been thru the diets. Cant afford depakote extended release. Although the goverment thinks we make to much eyes we have more out goign then incoming, and with ourselves and two children we were pushing 600 to 700 in co pays alone with docs and meds, we just cant do it, and the newer genration drugs werent wroking anyway!!! Thats the problem she is having with the buspar I think is the same problem you had with zyprexia, last for a coule hours, then rebound, plus the buspar kind makes her even more hypersexual then she already is, but its the only things that seems to help enhance the effects of the prozac, she is currently on 5 mg s of the buspar in the am, and 5 in the pm, thinking about having to do lunch time or up the dose, but I realy have allready tired that on my own not really see much of a difference, its hard when you have achild with multiple issue, she is bp, mildly autsitc, tourettes and adhd, anxiety, and Obcesive coplusive disorder. Been doing alot of role playing with puppets to try and get more info from her and how she feels and whats goign on. I am trying everyithing!!
Son is bp, adhd, we find we cannot medication wise treat either for the adhd, that will have to be on the backburner med wise, as the adhd meds worsens there other ptoblems. If she couldnt take klonipin, I am doubting she could take lorazapam either, as it is in the same class, but will see what doc says when I bring her back monday, i will post what he says if you want, and let you know. I would rather her  on that ( lorazapam) as well, lasts longer less rebound. so we will see, and thanks so much for taking the time to respond....Love.....Sheryl smurf


***Take Care.....Sheryl***
 
SERENITY PRAYER: "GOD GRANT ME THE SERENITY TO ACCEPT THE THINGS I CANNOT CHANGE; COURAGE TO CHANGE THE THINGS I CAN; AND THE WISDOM TO KNOW THE DIFFERENCE........

Post Edited (jk) : 12/2/2005 5:29:37 AM (GMT-7)

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