Lamictal Rash? Or Sunburn?

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Zomese
Regular Member


Date Joined Apr 2007
Total Posts : 150
   Posted 5/28/2007 9:55 AM (GMT -7)   
Saturday I was swimming for a few hours, my face was sore. Sort of like a sunburn. Yesterday I woke up and my face was stinging. I had to put cold compresses on it last night just to feel comfortable. Today m face is hot and tight with lesions below both of my eyes. Is this what the lamictal rash is, or is this from the sun. Anything I put on my face makes it burn. Even Aloe Vera.
 
I called Kaiser and they can't get me in until tomorrow. The advice nurse said she wasn't sure if I should stop taking it or continue. She said to call the pharmacist. So I called the pharmacist and they said to call the advice nurse. No one is telling me what to do. Neither one of them seem confident in their advice. Now I don't know what to do. Should I take it or not?
 
Has anyone else experienced this?

2Hawaii
Regular Member


Date Joined May 2007
Total Posts : 82
   Posted 5/28/2007 11:37 AM (GMT -7)   
 
  
 
 Hi Zomese, both my husband and I were on Lamictal about a yr ago. I can't tell you anything about a rash, but I can tell you about other horrible side effects. A Dr. we were seeing for marriage counseling put both of us on Lamictal (although my husband had never been diagnosed as bipolar and I was diagnosed back in the 60s [when this disorder was 1st discovered] and have never again been reevaluated). After approx. a month we both had horrible muscle cramps. I phoned our Dr. several times, and left messages pleading for advise, but when he did respond, his only answer was to hang in there.  I felt I should not be having the side effects I was having and weaned myself off them over a few weeks, but my husband wanted to continue, hoping things would get better. The situation only got worse to the point my husband was in non stop intolerable pain with leg muscles cramps after being on it for 6 weeks. In the 7th week one day he became very easily agitated to point of sudden violence. I phone the Dr. for advise/help of some sort, but was only told to phone the police. Needless to say, we never went back to that Dr. So my husband and I worked together to wean him off the Lamictal over a period of 2-3 weeks. The next psychologist I located agreed that Lamictal was a drug we should never have been on and that there was not enough research behind it in his estimation. In my estimation, it's a horrible drug that should be taken off the market. I have not heard anything thing good about it.  I have since gone back on Wellbutrin and both my husband and I take various vitamins and herbs daily which I've researched and take for specific purposes. Please be very careful with this drug, and good luck!

Zomese
Regular Member


Date Joined Apr 2007
Total Posts : 150
   Posted 5/29/2007 10:32 AM (GMT -7)   
Well yesterday I was able to put Aveeno lotion on my face. What a huge difference! Today I woke up and my face is dry, but no more redness or anything else. So I'm happy to say it was just a sunburn. I've never had a sunburn that felt or looked like that.
 
Does anyone else experience sensitivity to the sun on this medicine? I spoke to the advice nurse today at Kaiser and she is going to talk w/ my prescribing doctor and see if they should take me off the medicine. I'm having multiple mood swings throughout the day. Rage/depression, crying/normal. She said it's rare but sometimes the lamictal can make agitation worse.
 
We'll see, they are suppose to call me later. I'll post what happens, just incase anyone else who is on this medicine is interested.

Zomese
Regular Member


Date Joined Apr 2007
Total Posts : 150
   Posted 5/29/2007 11:29 AM (GMT -7)   
I just got off the phone with the nurse and they are dropping my dose to 25mg for a couple of days and then no more after that. Then they said to call in 2 weeks and they would prescribe a new mood stabalizer.
 
What medicine is next? I've tried Risperadal-hated it. I was prescribed Seroquil and refused to take it. So now what? I refuse to take anything that causes weight gain! Fitness and my physical health is very important to me. I eat healthy and enjoy exercise and I won't take anything that will make me a couch potatoe. Especially now that summer is here.
 
What do most people take after Lamictal? They wont prescribe an anti-depressant because of my agitation/rage. I feel like a lab rat.
 
Please, any advice or personal experiences would be helpful.

olivia of course
Veteran Member


Date Joined Jul 2006
Total Posts : 1523
   Posted 5/29/2007 8:35 PM (GMT -7)   

Zomese,

I was at the beach in 2005 and didn't take heed to what my pdoc told me.  Of course I had a reaction and broke out in hives/rashes from all the sun exposure.  It went away after a few days and with the application of tons of medicated moisturizer.

My pdoc took me off Lamictal for a few days to see if things would clear up then slowly raised my dose again when things cleared up.

Actually even my medicine insert said to have limited exposure to direct sunlight, so it serves me right for not paying attention.

I am currently on Lithium (may or may not make you gain weight) and Geodon (slight weight gain), in the past I have taken Zyprexa (major weight gain), Trileptal (weight neutral).

Best Wishes!  smurf


@~ Olivia

"Don't let your yesterday, ruin your today"


2Hawaii
Regular Member


Date Joined May 2007
Total Posts : 82
   Posted 6/2/2007 3:42 PM (GMT -7)   
 
Zomese I now have very little depression and some manageable aggravation. So I'm still working on my type A personality to see what else will help there. I use a 3-4 fold approach. 1st is the general mental aspect of learning to control my feelings and behavior that I use 24/7/365.  I've learned to monitor my "self talk"..in other words I've leaned to be very aware of what I'm saying to myself. You can get your self all worked up or calm your self down just by what you are telling yourself. Try it yourself and you'll see what I mean. So I try to make sure I only say positive things to my self to help control my feelings and behavior. Now that's only a part of the over all composite of things that work together for me to help me control this disease, so thank goodness for meds, vitamins, and other mental and physical exercises I use to keep myself on an even keel.
 
On the physical level, on a daily basis, I take 300 mg of Wellbutrin and a number of vitamins and some herbs. I've spent a good amount of time reading on the vitamins and herbs to be sure I understood what they did and how much to take, etc., before my husband and I started taking them.  I can tell you what we take, and those may and may not help you...what works is so individual, but as a starting point you could read up on some of the things we take that do work for us.
 
Everyday we take 1000 mg of natural E and 200 mcg of selenium, but if we are having a bad day we will take this up to 3 times during the day (but it's rare we do that). In addition to the E & Selenium, my hubby takes 25mg 1X a day and I take 25mg in the am and in the early evening. When we're really agitated we take Kava Kava and that helps both of us a great deal. We buy the Kava Kava (225 mg) at a health food store and we take just one capsule at a time and a second one perhaps 1 - 2 hrs later if we really need it.
 
We also watch our diets. We drink no or very little caffeine or sugar. We eat very little junk food, but when I do, I always self monitor to see how it affects me. some things like tea with caffeine, make me much more agitated, so I only rarely drink tea or anything with caffeine an eating too much sugar causes about the same problem as I discoed many years ago when I used to eat lots of ice cream cones.
 
We also take about 20 other vitamins daily that seem to all help with one problem or another.  I feel they are also all react with one another and that their benefits are intensified when you add other vitamins and herbs into the mix. But again, it's all very individual. For example, both my husband and I have some problems with our joints and for me, a combination of Glucosamine and Chondroitin will work, but it wont' work on my husband. Only when he takes a combination of Gluscosime/Chondrotin/MSM will it work.
 
 We also take a good multi vitamin [which we get from Vitamin World], Ester C, folic acid, D, Flush free Niacin, Grape Seed Extract, B 12, Flax Seed Oil, [Calcium, Magnesium, & Zink], Spirulina, Omega 3, and a few others for specific problems. But let me say that we've read and understand what each one is for and the dosage to take, so before you buy any of these, do yourself a big favor and read up on these because some of them can make you feel ill if you take them in the wrong amount or do nothing at all. Also, knowledgeable employees at the health food stores we go to have been very helpful.  When you start to take a new vitamin or herb, you need to add each one in separately, over a period of days or weeks, to see how your body reacts to that new substance.
 
There are other things that I also do to help with agitation or depression. For example, exercise or a nice walk will do wonders for depression or agitation. Also, if you need immediate relief and control over agitation or racing thoughts, you can try putting your hands under warm running water and focusing on the water running over your hands... how it feels, how it looks, etc. My old psychologist also told me to try focusing on watching a clock tick off seconds, as that will slow down your heart rate and in turn your agitation or racing thoughts typically will slow down. It's rather like watching paint dry...but hey it really does work for a number of people. Learning how to control this disease and controlling it is a 24 hr a day job, 7 days week, 365 days a yr. I've had it now for over 45 years, but I know it can be gotten under control. It just takes a lot of work to find out what are your triggers and what will work to keep your self on the right path, but if you keep at it, you'll find what you will work for you.  Good Luck

DannyBoy
New Member


Date Joined Jun 2007
Total Posts : 6
   Posted 6/18/2007 11:01 AM (GMT -7)   
Hey I am on 200mg of Lamictal a day, in the beginning i couldn't stop itching, omg it was maddening. So the titrated me up to the current dose, I love the effect it has on me now. Good luck.
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