new to bipolar board, need some help

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bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/10/2007 8:05 PM (GMT -7)   
this is not my first time on healingwell but it is my first time posting here. im kind of going thru a rough patch right now and i need some help. fist off for my bipolar i had a huge psychotic breakdown about a year ago and it has taken until a few months ago plus a a buttload of head meds to get me feelin almost normal. but now things are happening that are starting to ruin my progress.
i have crohns disease and it had flared up again. im on steriods and theyre trying to change around my other medication to see if itll help at all. im so worried about it becasue there arent many other choices as far as meds to treat it if the remicade does not help.
second i have many symptoms of MS. i wont bore you with all of them but i use a cane and i cant do very many things. i just had a neurologist appointment where i was supposed to find out whats wrong with me and the answer basically came back as i dont know. this is the 4th time its been this answer and i was so hoping this would be the day i would find out. he cant rule out MS so ill have to be scanned every 6 months but basically i dont know what to do becasue i dont have an answer or a treatment plan.
third im just depressed about my life situation. im 26 years old and i live at home becasue until now i cant hold down a job mentally or physically. i want to substitute teach so i am looking for a job that i can do part time where it wont interfere with the days when they will hopefully call me. its relaly hard to find something that i can handle physically so its been really hard to even get any ideas. but other than that i do nothing, i dont have many friends and they dont live around me. if im not out at PT or able to catch my family when they are around im alone and doing nothing. i do my art which helps but this empty life is getting to me. i just dont know what to do.
 
anyhow i guess i am looking for some sympathy and im not sure where else to go. im so worried that this situation is going to make my BP go down the tubes. from reading the board i see that you guys are somforting and welcoming and it seemed like this would be a good place to just let it all out. thank you so much to anyone who reads this and for just letting me vent. i wish you all well
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


serafena
Veteran Member


Date Joined May 2007
Total Posts : 3715
   Posted 9/11/2007 9:06 AM (GMT -7)   
Hi bunnypucker:

Wow, it does sound like you have an intense amount of stress on your shoulders right now. I have a friend who was in a similar place -- spending months waiting out an MS diagnosis, so I can sympathize with how frustrating that can be. (Incidentally she doesn't have it... Let's hope the same for you.) Having your meds limited is frustrating too. The constant, undiagnosed pain can be really dispiriting though. She still doesn't have a diagnosis either.

What kind of support system do you have? Do you have a talk therapist? Friends and family who can help you? Could you do something nice for yourself to help you relax and enjoy yourself a little bit? These illnesses have a tendency to take over our lives and multiply. How about a massage?

Welcome,
serafena
Ask me about my Bipolar Disorder!


loving frustrated wife
Veteran Member


Date Joined Jun 2007
Total Posts : 865
   Posted 9/11/2007 10:57 AM (GMT -7)   
Bunny, I know what it is like to not feel well and have it take the doctors so long to "figure it out" that other things go awry. It is a very miserable place to be. Hang in there. If you stick to getting ALL the help, eventually it will balance out. I am not a BP, but a spouse to one and a mother to another. I also have severe fibromyalgia that went undiagnosed for 15 years as they told me I was "doing it to myself", so I was in therapy for 20 years trying to figure out why I was doing this "thing" to myself. I had therapists saying to me that I had amazing coping skills and in their professional opinion, there was something real happening and it wasn't in my head, and I was NOT doing this to myself. Some even offered to go to the dr. with me because they became so frustrated with how easily they disregarded looking farther. The reason I bring it up...eventually I was properly diagnosed and learned how to manage the condition - only to then be told that the pain in my back for 14 years was my fibro...it was not. I had DDD, and was missing a disc in my spine, which was just fixed a year ago. I woke up from surgery with a paralyzed leg from nerve damage. Today, I am finally walking around on my own two feet again, have had loads of rehab for my body and feeling better than I have felt in YEARS. Not perfect, but good! I am in less pain than I have been in close to 20 years. I am now able to work out 4 times a week safely without causing myself problems. (I was a professional dancer in my late teens and early twenties and slowly had to stop because of what was happening in my body…so this is big.) MY point is ....HANG IN THERE. You will find all your answers; it just will take time and perseverance on your part. You will become balanced on all the meds you need to get back to your life. It can and will happen. I am living proof. SO, figure out how to help yourself feel better in the little things daily, write in a blessing journal daily to remind yourself you DO have them, and KEEP GOING! Hang in there. LFW

bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/11/2007 12:28 PM (GMT -7)   

thank you so much for your replies! as far as support goes i do have my family which is a lot to say. they dont always understand though they try and i give them credit for that. i have a therapist i go to and i konw that she has almost saved my life. just going there and being able to talk about myslef for 45 minutes without feeling guilty is just amazing. thanks for sharing your stories with me, although i wouldnt wish this kind of stuff on ANYONE it is comforting to know that there are others who have been through what i am going through. and thanks for listening, i needed a place where i can just vent and have people listen and understand. so imna keep on trying and ill take it day by day, some are worse then others but sometimes its pretty good. all depends on what i do that day.

so thanks again :)

bp


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 

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