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barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 12/29/2007 5:55 AM (GMT -7)   
Saw your post under "Merry Christmas."  Not such a merry gift for your family.  I'll tell you, I remember now that JoAnnie had a number of blood transfusions, until her counts started coming back, but she felt SO much better after she had them.  They were an instant comeback for her.  I hope you will encourage Carolyn to have them when her counts are so low.  I know...she doesn't listen to her Mom all the time, and there is only so much you can do.  I just remember how glad JoAnnie was that she did it.
 
Hugs to you and yours...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 12/29/2007 1:03 PM (GMT -7)   
Hi MK, I just wanted to offer a virtual hug and to let you know that your family is in our prayers. I'm sorry to hear about the new gunk you, Carolyn and the family has to deal with now. I wish there was something I could do, for all of us women. Here's hoping that 2008 will hold new promises.

Hug,
Lauré
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/29/2007 5:29 PM (GMT -7)   
Thanks, I appreciate all thoughts and ideas. I did suggest to Carolyn that she would feel better, but she was worried about what it would cost................. They have insurance but it is not the greatest. She doesn't say much about what they had to pay for some of the tests, I think I heard $750 for the bone marrow test. She needs to get going on her SS Disability, that may help out with some costs. I think. I will let you know what she tells me after the meeting with the dr on Monday. Hugs MK


Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 12/30/2007 12:16 PM (GMT -7)   
Dear, dear MK,  I've just been going through the posts looking for more info. about Carolyn.  I'm so sorry to read how serious this is for her and for your whole family.
 
It sounds like the blood transfusions will help her feel better.  I'm hoping that she chooses to begin those very soon.
 
Re: ins:  we all know how the cost weighs us down.  SS Disability may help ease that worry for both you and Carolyn.
 
MK, you are such a good person, always right there with good thoughts and encouragement.  What a kind woman you are. 
 
Now, I think maybe we have to hold you up a bit.  Nothing is worse for a mother than to have a sick child and it surely doesn't matter how OLD that child is.  It's useless to say "be strong;" you're already doing that.  Please just know that my thoughts are with you, that I think of you often.  In fact, this morning at breakfast I was talking about you and how you are the glue that's held this board together.  Dear friend, you have a most special place in my heart.
 
Hugs as ever, Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/30/2007 3:50 PM (GMT -7)   
Thanks Luci, for all the kind words and thoughts. It is great to see you here posting, today. I think of you often, too. I know you are enjoying your grandchildren as I am my great grandchildren. Somehow we just don't post as often as we once did. We have lost far too many dear friends. Now the possibility is looming that I am going to see my own daughter fight the great battle so many have fought and are still fighting. Yesterday she helped the "boys" in the family lay some of that new hardwood flooring, they tried to keep her on easy jobs. LOL. She is quite the character. Tomorrow she will learn more about her situation. She says the doctor had some more smears done with the bone marrow to determine what course might be best.

I haven't posted a lot about Carolyn, she had swollen lymph nodes in her neck in February and the biopsy showed BC had spread. She has been hurting in her back and hips for a long time. A bone scan showed hot spots, which she informed me did not mean breast cancer, it could be arthritis, too because scans don't show the difference. Yeah right. She has been on Aridea and Femara and kept telling us how they were working, yet we learned more lesions were seen in her bone scan before this last one, which did not show any new areas. Blood work showed she was anemic, so she was given a boost of medicine I had never heard of making her feel better, but one week later the hemoglobin had dropped another half point. She is in the severely anemic range, so that is why they wanted the blood transfusions. She insists she feels ok. Just tired. Then they did the bone marrow tests and found the BC cells which she still has not told me about. She did tell Erica and so did her husband tell Erica. Erica is a real worrier, but it almost seems Carolyn is trying to keep me from being upset and worried. Like ten years of being associated with a breast cancer board hasn't prepared me for just about anything.

Tomorrow we also are supposed to close on the sale of our old house. One year it has taken to sell it and already the closing was moved ten days. We are hoping to get it closed on the last day of 2007 so it won't carry over into 2008 for taxes, etc. The woman who is buying is going through a divorce so the lender is insisting on her parents being on the mortgage until the divorce is finalized.

So tomorrow is a big day. I hope things go exceptionally well to finish out 2007. And here's to a great 2008 for all of us.

Love and hugs, MK


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 12/31/2007 6:43 AM (GMT -7)   
Dear Mk...I think the cost of blood transfusions can be greatly diminished if friends/family donate blood in her name.  Here in Cincinnati, I think the Hoxworth Center does this.  Have her check.  I don't think it even has to be her blood type...they just trade blood for blood.  I know I have a friend who donates regularly, and he would put her name on it if I asked him to.  I would just need her last name...call or email.
 
Have her call Hoxworth and find out how it works...I know we can't give, but I know she surely has friends/family here who could.
 
Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/31/2007 2:19 PM (GMT -7)   
Yes that is true here also. I think it might be a nationwide thing. My brother donates regularly in WV and he said he could transfer credit to her. I told her that. Her father has the same type blood and has offered to give her his blood if they will let him. I am still waiting to hear about her dr visit today. She told Erica she expects her blood count to be up today since she feels so much better than she did. She is drinking a glass of Blackberry wine a day to help her blood count because she learned somewhere it is good for anemia. Her appointment was at 1:30 and it is now almost 3:30. Maybe the dr told her to get to the hospital and get that transfusion???? Will post later when I know something.

We have also been waiting all day for the call to come and sign papers for the closing of our house and that call has never come, either. Funny how when you expect calls the phone never rings......... all day not one call. I called Erica to see if she had heard anything.

Hugs MK


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/31/2007 3:23 PM (GMT -7)   
OK Just talked to Carolyn. The onc is putting her on Zoloda also, just like Joannie. She said it was spelled with an X, but I spelled it the way it sounds. Xeloda? Her blood count was back up a little to 8.4 and the onc told her if she felt ok she didn't have to have a transfusion until she felt she needed it, but that range was really low. He told her there has been some confusion about the HER factor. One area shows it +3 and another a -2. So they are going to ask for a retest on the lymph node biopsy or do another one in the same area. I don't know if she has a clue what she most likely is facing. Maybe it would be best if she doesn't. She would not let Michael go with her today so we won't know any more than she is telling us. She told Erica she would tell her when it was time to worry, but she is fine. She has to go for blood work every week now. That's all I know. Hugs MK


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 12/31/2007 4:29 PM (GMT -7)   
MK, thanks for the update. I've been thinking of you today. Yes, Xeloda is with an X. Once she gets teh Her2 test, perhaps it would be good to go for a second opinion at a major cancer center? You know I am a big fan of 2nd opinions, even if they just confirm the local doctor's treatment plan.

It sounds as if she wants to focus on her health and not her illness, so as we know...it is harder for those loved ones to watch...but she is actively fighting the disease and also actively living life. She's in control, so just sit back and enjoy her too, and let us know when you need a pick me up. In the mean time, here's to 2008!

L&H,
Lori


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/31/2007 5:40 PM (GMT -7)   
Yes Lori, you are so right. she is focusing on health. She is the one who hates doctors, hospitals and medicine so she tends to go online and learn all she can. Getting her to a second doctor for another opinion just would not happen. She wouldn't have gone to the onc if not for the lumps. She missed yearly mammos and has not gone to a regular doctor in ages, even when I told her her blood pressure was horrid. She made it a point to tell me today it was 122/70 which was most unusual. She never tells me when it is 145/98. LOL She is tough and will fight it all the way, but in her way. Actually her onc is supposed to be the best in Fort Worth and she trusts him so I guess that will have to do.

Thanks for the offer of help to pick me up. I have hated losing every one of our friends here so much, I can't imagine her going through the battles they have. I keep picturing Mel the last time Jo-Ann and I went to see her. She was tough as they come and hung on tight to her life as long as she could.

Hoping 2008 is a year for good things, especially a cure for cancer!!!! MK

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