ROLL CALL name, age, state and any other info to share

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nurse_mikki
Regular Member


Date Joined Jul 2003
Total Posts : 349
   Posted 4/30/2004 8:02 PM (GMT -6)   
Michele, 43, Michigan--see the link to my website just under my screen name

dx'd 6/97 at age 36

Invasive lobular (total tumor size 10cm, largest single tumor was 3cm) Stage IIB, neg nodes, ER/PR+

bilateral mastectomies, 4 cycles of A/C, almost 6 wks of radiation to R chest wall & axilla

tamoxifen for 4yrs 8 mo, now Femara

had hysterectomy & removal of ovaries in '00

now osteopenia, probably chemo related. Bilateral lymphedema
 
Married to an awesome man & have 2 great kids 16yoDD & 10yo DS, along with our sweet 5 indoor kitties.

LIFE IS GOOD--any day above ground is a GOOD day!


May this disease NEVER be allowed to take another wife, mother, daughter, sister, lover or friend........
~~~~~~~~~~~~~
I cannot control the wind, but I CAN adjust my sails 
 ~~~~~~~~~~~
You can choose to look UP or DOWN--it's all about putting perfume on a pig. It is still a pig and it STILL stinks, but it stinks BETTER!
 ~~~~~~~~~~~~~
Breast Cancer Chronicle Demystifying BC, one step at a time
 

Post Edited (nurse_mikki) : 5/1/2004 2:06:27 AM GMT


undefeated
Regular Member


Date Joined Jul 2003
Total Posts : 200
   Posted 5/1/2004 3:43 AM (GMT -6)   
Glenda, 55, North Carolina. Diagosed 9/97, er/pr+++, stage IIb, 2 pos. nodes, mastectomy, CMF for 6 months, radiation, tamoxifen for 5 years, now taking femara as recurrence preventative, 6yrs 7mos NED (knock wood).

Married for 34 years, 1 daughter (26). Very active in local ACS Relay for Life

Joany4Hope
Regular Member


Date Joined Jul 2003
Total Posts : 69
   Posted 5/1/2004 11:20 AM (GMT -6)   

Joany, N.Calif 50;  June 27th will be 4 yrs NEDYeah Baby

bilat masts w/trams & implants; stage III 10+nodes;er/pr+,multifocal with tumor extension into fat from large nodes. One + upper mam node. 4 ac, 4 taxotere, 30 rads, ovaries out; on Aromasin, weekly Fosamax, Celebrex and lots of prayerAngel 3 Thank you God for life!

 



beck2000
Regular Member


Date Joined Jul 2003
Total Posts : 324
   Posted 5/1/2004 11:46 AM (GMT -6)   
Becky, 55, Virginia -- DX 01/07/2000, Lump, ER/PR +, Chemo, Rads, Tamoxifen.


Janwa
Regular Member


Date Joined Aug 2003
Total Posts : 85
   Posted 5/4/2004 8:43 PM (GMT -6)   
Janice, 48, Washington state. Dx December 1997, lumpectomy & rads. Recurrance 1/2000, masectomy, A/C. 3/02 dx with mets to spine and sternum. Rads to spine. 11/02 another recurrance with implant removed and other breast removed. Taxotere and more rads. Failed arimidex, femara, tamoxifen. 1/04 started taking Xeloda along with monthly IV of zometa. Mets to liver and lung (but they are shrinking)! Married and have 2 daughters 13 & 7. Praying for that cure so they never have to go through this!!!

 


Grandma Cathy
Regular Member


Date Joined Jul 2003
Total Posts : 426
   Posted 5/7/2004 8:02 PM (GMT -6)   
Cathy, from the great state of Texas.

diagnosed on my son's 16th birthday - 11/17/02.

5 cm tumor - chemo, MRM, rads and more chemo. 7 out of 11 nodes positive.

I am pretty darn lucky! My personal philosophy is that we have to live for today - don't sweat the itty bitty small stuff because it really doesn't matter right now - take care of yourselves (for the first time) and get on with life - there is SO much to see! Thanks to all of you for being there for me!

L & H
Cathy


claramels2
Veteran Member


Date Joined Jul 2003
Total Posts : 539
   Posted 5/8/2004 4:04 PM (GMT -6)   
Libby, 61, New Jersey

1/16/97 - Infilltrating lobular - 2cm tumor - ER+ - partial mastectomy - 4 cycles CMF - 33 rads - 4 cycles CMF - Tamoxifen 5 years - NED. Thank God.
 


Margaret321
Regular Member


Date Joined Jan 2004
Total Posts : 21
   Posted 5/8/2004 5:30 PM (GMT -6)   
Ellen, 60, Madison, WI.  Ovarian Cancer Stage 3C; in second recurrence and chemo failing.  Met most of you in another village and follow you but rarely post. 

MightyBeck
Regular Member


Date Joined Jul 2003
Total Posts : 206
   Posted 5/9/2004 11:24 AM (GMT -6)   
Becky from KY
Diagnosed 9/99 invasive ductal, soon found out it has spread to my spine
Was able to have 4 years with just hormonal treatment
Currently doing adriamycin and perking along with hope and faith

LindaV
New Member


Date Joined Apr 2004
Total Posts : 6
   Posted 5/12/2004 12:34 PM (GMT -6)   
My name is Linda, 55 and I live in Hollywood, FL. In the past 14 months I have had two Mastectomies, two unsuccessful expander implants, two Latissimus Dorsi Flap reconstructions and five months of Chemotherapy. What a journey it has been.
I am very blessed to be married to a wonderful man, Larry.
Words that I like:hope, love, courage, committment, spirit, friends, family, faith, dreams.

What a grand thing, to be loved! What a grander thing still, to love!
(Victor Hugo)

website: Living With Cancer
http://www.livewithcancer.net

 

Post Edited (LindaV) : 5/13/2004 2:51:30 PM GMT


LarryV
Regular Member


Date Joined May 2004
Total Posts : 20
   Posted 5/13/2004 7:13 PM (GMT -6)   
67, Hollywood, FL - Husband of Survivor LindaV - My Queen - Advocate
 
Everyone should have her courage, tenacity, motivation & attitude. As a medical professional, her goal in life continues to be to help others.
 
I would welcome talking to family or friends of other survivors.
 
It is not always what we accomplish in life, it is what we overcome.
 
 
 


Post Edited (LarryV) : 5/14/2004 12:09:30 PM GMT


ADula
Regular Member


Date Joined Aug 2003
Total Posts : 58
   Posted 5/19/2004 8:36 PM (GMT -6)   
Angela, 45, now Louisville, KY formerly Louisiana & SC. NED for 6 years as of May 14, 2004

Post Edited By Moderator (Admin) : 3/14/2006 11:54:13 AM (GMT-7)


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 5/19/2004 9:59 PM (GMT -6)   
Lauri, 58 until July 13, northwest suburb of Minneapolis, MN. Family: DS, DD and DSIL and Darling Granddaughter, and wonderful DH, and DM who likes to travel. Dxed in April 1996 with 6 mm tumor in left breast. Lumpectomy, radiation and five years of tamoxifen. 8 years NED as of April 11, 2004.

Post Edited By Moderator (Admin) : 3/14/2006 11:54:33 AM (GMT-7)


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 5/26/2004 10:41 AM (GMT -6)   
Great idea Deb to put these here.................

Sara's

http://community.webshots.com/user/sdearing101

and MK's

http://community.webshots.com/user/marykstroup


and Gail's

http://msnusers.com/BreastFriendsGatheringLouisvilleKy-May13-16-04

and Deb T.'s

http://community.webshots.com/user/cupycake3

If anyone else adds some I can edit this and add them in, too.


techer78
Regular Member


Date Joined Jul 2003
Total Posts : 59
   Posted 5/26/2004 5:36 PM (GMT -6)   

Ann, 51, IL dx June 27, 1997 invasive ductal, ER/PR+, 3 of 13 + nodes, 2 lumpectomies, AC, Taxol, rads.  Next month will be 7 yrs NED!  Off tamoxifen after 5 1/2 yrs. and on evista for ?

Mom of 2 and proud Grandma of Alexandra Leigh who will be 8 mo. on June 7th. yeah


Momof2
Regular Member


Date Joined Jul 2003
Total Posts : 247
   Posted 6/2/2004 3:22 PM (GMT -6)   
(I thought I did this already!)
 
Deb...so happy to be alive, with so much to do.... with 2 beautiful kiddos, and a smart supportive husband, blessed by friends who are strong, wise, and good.
 
Dx'ed 12/2000, lumpectomy, sentinel node biopsy revealed a micromet to 1 node, ER +, A/C, taxol, radiation, and tamoxifen. 
3 1/2 years out and counting! yeah
                  Keep a green tree alive in
                  your heart and a songbird
                  may come to sing there.
                     -  Chinese Proverb
 
 


grandmaro
Regular Member


Date Joined Aug 2003
Total Posts : 106
   Posted 6/4/2004 9:17 AM (GMT -6)   

Rozanne, 57, Ventura,California. DX 1995 with .8 cm tumor in rt breast--mastectomy. 2000 dx with 3.3 cm tumor in left breast--mastectomy and chemo. Keeping my fingers crossed.

Life is good now--one son and family in Oakland (GS is 10 months old). Second son getting married in San Diego in September. Trying to enjoy all life's blessings these days.



mastown
New Member


Date Joined Jun 2004
Total Posts : 7
   Posted 6/12/2004 6:30 AM (GMT -6)   
 Sue,47, Maine just dx with dcis 2 weeks ago waiting for my Dr. to schedule a mri on both breast. to make sure that it is only in the one spot on my left breast. I really don't like the waiting much. I am a little nervous even though I know this is very curable. I just do not want this to come back. confused

Post Edited (mastown) : 6/12/2004 12:34:32 PM GMT


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 6/19/2004 1:50 PM (GMT -6)   
Bev, 46, 123456789....10!!!! years NED. Diagnosed stage IIB invasive lobular and invasive ductal, 3 nodes positive, er/pr+, mastectomy, tram-flap reconstruction, 9 rounds of CAF.

Always think I should add this when I see MK's posts, but never do! So...formerly of Missouri, Germany, Louisiana, New York, Michigan, Kansas, New Hampshire, Northern California, Maryland, Southern California, and now living in Ohio. I never realized people actually MOVED to places like Ohio, but I must admit, I kind of like it here!

Love and hugs to my breast friends!

juliej417
Regular Member


Date Joined Nov 2003
Total Posts : 58
   Posted 6/21/2004 7:28 PM (GMT -6)   
So excited to get to see you guys !  Dublin, Ohio (Columbus) during my almost 25 year marriage ! Raised in Dayton, Ohio. Lived in Lake Placid, NY to skate and 1 year in Germany as a nanny.  Julie (Jules)  dx 11/99 at age 42 with invasive medullary carcinoma, 3+ nodes. HR/PR 1umpectomy and axillary dissection.Adriamycin/cytoxin/taxetere together over 4 treatments. 5+ weeks of radiation and in my last few months of tamoxifen.  Will most likely switch over to the new drug at that time. 4 kids, now 19, 16, 14 and 8.  Doing great at this time  !!!!!!!! Clear, Clear, Clear.  

Post Edited (juliej417) : 6/22/2004 1:34:06 AM GMT


kimmomof4
New Member


Date Joined Jul 2004
Total Posts : 4
   Posted 7/5/2004 2:16 PM (GMT -6)   
Hi all, I'm Kim from Kansas, 45 years, with 4 children ages 15, 9, 5, & 3.  I went in for a routine mammogram last Thursday and was called back for a repeat as they found several microcalcifications in a cluster in my left breast.  I think the surgeon I talked with on Friday said the cluster was about 0.5 centimeters.
 
Apparently, this can be a sign of breast cancer or it can be nothing but no sure way to tell without a biopsy.  I am scheduled for a stereotactic on Wed. morning and then wait for path results for a day or two after.
 
This is apparently in the fatty tissue on the outside tissue of the breast not in a duct or lobule.  It must be fairly small because you cannot feel it and it isn't supposed to be too far under the surface.
 
I used to have some fribroyd problems with I was younger but haven't had so much in my past years.  I haven't had a mammo in years as the past 10 years I have been basically pregnant or nursing most of the time.
 
I am worried, of course. as I am sure everyone is.  I am very concerned of how I will manage my life and the life of my children if this does turn out to be something.
 
My husband left 2 months ago and I don't have a job with not much promise of that since my youngest little one has semi-lobar holoprosencephaly (frontal lobes of brain fused prenatally).  He is a blessing but lots of work! He is a joy to live with really but he is a 24/7 job on top of the others and right now, me being sick would be really challenging as I am the only stability in their life right now.
 
I am wondering how I will manage to be sick, have treatments, etc., and still be a full-time mom with little or no help.  I am REALLY WORRIED!!! Of course, this may turn out to be nothing.
 
I really only went in for the exam because I was afraid I would have no insurance soon since no doubt a divorce is on it's way.  And I really don't know how I will ever work to be in a group to get insurance with my youngest son the way he is and I really don't want to leave him.
 
We live in a small area so we don't have the resources that some areas do.  Corey, my little one, really does well to stay out of the hospital but it is only because I know his body so well.  I can tell by looking at him when we need to adjust this or that and he hasn't been in the hospital since he was a year old because of being on top of it.
 
He also does not eat well for anyone but me so me being down and not being able to care for him will be disasterous as well I'm afraid.
 
Well, sorry for this lengthy letter and going on and on.  I'm sure I sound like I'm on a real sorry for me trip especially when I don't even know if I'm sick or not.
 
Has anyone got any tips on how you feel after the stereotactic.  I'm hoping fine!
 
Take care,
 
Kim

paulakuc
New Member


Date Joined Jul 2003
Total Posts : 14
   Posted 7/14/2004 4:20 PM (GMT -6)   
Paula, 42---New Jersey----dx at 39--atypical medullary invasive ductal carcinoma....er/pr neg....4 A/C, 4 taxol,
what seemed like a year of rads but was only 7 weeks. the drs. tell me "You're Good" but don't tell me NED or remission yet, although alot of people seem to think i'm in remission because stupid people keep telling them so
Just trying is all.


I was Turbofuel on the village and just seem to have been "absent" for too long. Hope I can still come back.

paminco
New Member


Date Joined Aug 2003
Total Posts : 14
   Posted 7/16/2004 5:21 PM (GMT -6)   
I am Pam, 46, from Colorado. Another ivillage refugee, 3 years ago I found support and great information from many of you. Not knowing any other bc survivors, my sisters of the heart there were lifesavers to me. I was dx'd with tubular carcinoma, but 7 surgeries and 3 years later life is good again...different, but good. Great to see so many familiar names here.
Hugs, Pam

put-in-my-place
New Member


Date Joined Feb 2004
Total Posts : 7
   Posted 7/21/2004 12:56 PM (GMT -6)   
Betty-60 dxNov/'99-DCIS nuclear grade 3;angio-lymphatic involvement; mast-left br, chemo-6 rounds; tamoxifen; 4.5 years out--Akron, OH

JenPossible
Regular Member


Date Joined Aug 2004
Total Posts : 74
   Posted 8/19/2004 7:40 AM (GMT -6)   
Jennifer, 32, Plymouth,Michigan

Found one lump in each breast last year, and had three swollen lymph under the arm. Had bilateral mammogram and US of right lump only (do not know why doc ordered this way). Took results to surgeon, who said there was nothing,the lymph nodes were just fat under my arm. TOld doc my mom's sister had been dx at 35 yrs, and about 54 years on other side. Surgeon said if I was worried, I should order an US in 6 moths. Got pregnant in January, at first prenatal visit pointed out lumps to new OB/GYN, then had bilateral US, mammogram, and then three different biopsies to get diagnosed.

Left side Stage IIIC, er/pr -, invasive ductal, one lump about 5cm, two other areas of concern, "peau d'orange" skin/nipple, poorly differentiated, fixed lymph and supraclavical met

Right side Stage II, er/pr-, invasive ductal, one lump about 5cm, one other area of concern, poorly differntiated, two or three abnormal lymph

Keith and I have a son , Nicholas 5 1/2 years old and a daughter Natalie, almost 4 years old. They are very excited about their baby sister, and pester me about who's room she'll sleep in and when is she coming out?

Treatment so far has been four cycles AC, four cycles taxotere, upcoming bilateral masectomy w/lymph node removal, then maybe more AC, then radiation.

Post Edited By Moderator (Admin) : 3/14/2006 11:54:57 AM (GMT-7)

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