ROLL CALL name, age, state and any other info to share

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songster
Regular Member


Date Joined Aug 2004
Total Posts : 21
   Posted 8/19/2004 7:58 PM (GMT -6)   

tracy living in Liberty, Indiana, 49 years old. Biopsy last Wed. Diagnosed Monday with lob invasive. Don't know stage or if its agressive.

Gratitude list: Mother and sister are both survivors; our health insurance will cover; my 13-year old daughter is a peach; my 56-year old husband is supportive. 


LoisB
New Member


Date Joined Aug 2004
Total Posts : 6
   Posted 8/25/2004 2:18 PM (GMT -6)   
Hi I'm LoisB,I'm 53, I had a steriotactic biopsy on Aug 5/04, 2 days before my youngest daughters wedding.
On Aug 23/04,I got the results that I have a localized mass behind my right nipple and would have to have a right breast mastectomy. Overwhelmed to say the least.Monday was a blur, I still haven't really come into the reality of it all.
I live in Oshawa Ontario Canada.
I'm raising my 2 grandsons 5&7, & I'm in the transition of returning the boys back to their Mom(my daughter, we will share joint custody)& I also have 3 other daughters, 32,29 & 24.
I have a very supportive husband who is now making sure that I don't do anything, that's so funny..how he's doting on me.But I am keeping a stiff upper lip, this thing is not going to get the best of me. I'm a fighter and I'll be a survivor.
Kick me when I'm down, I'll get back up again and fight all the harder.

Nature's Spirit
Veteran Member


Date Joined Aug 2004
Total Posts : 595
   Posted 8/27/2004 9:55 AM (GMT -6)   
Jenny,31, live in Montana..
I've been coming to this site for about a yr when I got dx'd with crohn's.  Had 3 surgeries last year for it and am currently "flaring". 

About 3 yrs ago, I found a lump in my right breast and they did an ultrasound and said it was a fibroid adnoma, it was smooth, round, solid and it moved around.. so my family doc said it wasnt anything to worry about.. This year I started having pain/tenderness and while at the ER for crohns (was staying w/my friend while I healed from the surgeries in Utah) I told the doc about it~ he freaked and said "OMG, this needs to be checked NOW" scarring the living daylight out of me and scheduled a mammogram, in Jan '04.. but I moved back home before my appt,  Well it stopped hurting since and I just watched it to see if it was changing and it wasnt.. so I didnt bring it up again till a few wks ago to my family doc, she told me I had endometrisos because of other symptoms and when I said I wanted the lump checked, removed, whatever!, cuz I can't sleep at nite~ worried.... She said "Lets not worry about that right now, lets get this other stuff under control first" Soo, I left dazed and confused.. and still worried about this lump, It hurts to the point I cant even touch that breast and not to mention both breasts are now tender and I cant even hug a pillow without screaming in pain!  I take pain medicine for crohn's disease and it helps that, but doesnt even touch the pain in my breasts.. I have an appt, on the 9th of sept with a GYNO finally maybe he can put my mind at ease, I think not knowing is the worst!
Thank you for listening to my rambling, ALL OF YOU are in my prayers and I hope you all good health and many happy years to follow!
There are two days in the week about which and upon which I never worry.  Two carefree days, kept sacredly free from fear and apprehension.  One of these days is Yesterday... And the other day I do not worry about is Tommorrow.  
~Robert Jones Burdette


NevGinger
New Member


Date Joined Aug 2004
Total Posts : 6
   Posted 8/29/2004 6:08 PM (GMT -6)   
Ginger, 51 - live in Gardnerville, NV, but am currently in Carlsbad, CA until the treatments are over. DX in Nev. on 6/23/04...began as just a single site, DCIS 2cm stage 1 lumpectomy. However, when I looked into Mammosite radiation, that wasn't offered in NV, so I went to CA. That turned into extensive and thorough exam which included blood tests, bone scan, x-ray and MRI. The MRI turned up three additional areas of concern. Needle biopsies were done on 5 areas. Then 3 lumpectomies on 8/23 - Turns out to be both DCIS and invasive, stage 1 and 0 - but the lymph nodes are clear (horray) and now it lookes like it's going to be double mastectomy. I have an appt. with plastic surgeon on 9/7. It's been quite a roller coaster. I'm looking at probably saline implant reconstruction, no radiation or chemo...but maybe hormone therapy. Don't have the results of the ER +/- yet.

Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 8/31/2004 5:56 AM (GMT -6)   
Frayda, 50, New Jersey; dx 5/2000, bilateral mastectomy w/ reconstuction w/ saline implants, ovaries removed 4/2003.  Very strong family history of bc: mother (twice!), sister, 3 aunts. Cancer was found on an experimental screening MRI; previous mammo and ultrasound were normal.

carol P
New Member


Date Joined Sep 2004
Total Posts : 5
   Posted 9/8/2004 11:27 PM (GMT -6)   
Carol P, Houston, TX 50yrs, chrones fighter

BriteHope
New Member


Date Joined Sep 2004
Total Posts : 9
   Posted 9/9/2004 8:52 PM (GMT -6)   
Sue, 29, was diagnosed in March 04 when 8 months pregnant with 2nd child. Induced the next day, had mastectomy a week and a half later. Node was negative, clean margins. Did chemo for 3 months (AC) had tumor marker test Aug 30th, ca2729 was at 56. Had a pet scan on Sept 1st, cat scan on the 2nd, and they think the cancer has gone into the nodes between my lungs. Going for a second opinion next week. ca2729 was at 68 on Sept 6th. If anyone has a similar story, let me know.

cj125
New Member


Date Joined Sep 2004
Total Posts : 11
   Posted 9/11/2004 8:13 PM (GMT -6)   
Hi!
My name is Connie, I turned 50 this year, I live in Vegas but I'm from the Midwest. Born in Colo, but spent all but the last 7 in Nebraska, Iowa and Kansas. I have a wonderful husband of 18 years and 2 great children. My handsome, eligible son is 27 - and my beautiful daughter is 17. I know - what an age difference... it's my 2nd marriage.

I don't know all the lingo here yet, but I had surgery 3-31-04 - they removed the cancer thing and 3 nodules. The nodules were supposed to be cancer free, so they scheduled me for 30 full breast (external) radiation treatments and 8 boosts. I finished that last Friday - but only after having to take 2 weeks off from the 2nd degree burns I got.

I'm looking forward to learning more for all of you - I'm glad I found this place.

Sincerely,
Connie or better known as cj125
Connie in Vega$


tking
Regular Member


Date Joined Sep 2004
Total Posts : 141
   Posted 9/13/2004 7:03 PM (GMT -6)   
Tking, 47, from GA.  1st diagnosed in 1996, 2nd in 2004.  Just finished chemo last Tuesday.

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 10/15/2004 9:59 AM (GMT -6)   
Kathy, 44, living in San Gabriel, CA. Had lumpectomy and lymph nodes removed 9/30/04. 1 lymph node was pos (3.8cm), 6cm tumor with multiple satellite mets, stage IIIA infiltrating duct carcinoma, HR+, aggressive. Simple mast done on 10/21/04.  4 rounds of FEC followed by 4 rounds of Taxotere (only 3 to go!), radiation, Tamoxifen, and then Femara.

I am looking forward to the help and support of all of you courageous women!!!


Kathy

Post Edited (babyseeester) : 3/1/2005 5:13:29 PM (GMT-7)


kimmytoo
New Member


Date Joined Nov 2004
Total Posts : 1
   Posted 11/18/2004 8:32 AM (GMT -6)   
Kim, 31 when diagnosed IIB in 8/03. ER/PR+. Her2-, 12+nodes.
 
Now 32 and fighting a recurrance.
 
3 kids, great husband.

Raleigh, NC

JennyT
New Member


Date Joined Nov 2004
Total Posts : 5
   Posted 11/18/2004 9:13 AM (GMT -6)   
Jenny, 31, 2 boys (9 and 2 1/2), Ludlow Falls OH

Just doing some research because I have some tenderness/pain in one breast. Can't feel a lump myself, scheduled for a gyno exam soon. Mom died of breast cancer at 54 so I am gripped with fear right now. I can't stop pushing on the spot where it hurts! Is this how we find out? Just a tender spot all of the sudden? How do you deal with the fear and emotion? Help!

sheldon
New Member


Date Joined Dec 2004
Total Posts : 4
   Posted 12/13/2004 4:27 AM (GMT -6)   
hi my name is michelle I am 36 yrs dx in july stage 2 no lymph nodes involved mast and recon no chemo or rads now on tamoxifen. I live in the uk and have a very supportive partner and 3 girls age 11 8 and 2. 
hugs michelle (sheldon)

Cindy802
Regular Member


Date Joined Dec 2004
Total Posts : 70
   Posted 12/28/2004 8:31 PM (GMT -6)   
Hello. My name is Cindy. I am 53 years old. I was diagnosed in August, 2002. I had a 3-5cm tumor, grade 3, extensive angiolymphatic invasion, er/pr/her2-, lumpectomy and rads and then bilateral skin-sparing mastectomies (prophylactic on the left), with reconstruction. 4 AC and 4 Taxotere. I suffer from all over body stiffness, sinus headaches, arthritis, sciatica and two herniated disc...all from the taxotere. Chemo ended 4/28/03, rads ended 7/15/03. Mastectomies and recon was done on 2/17/04. Revisions were done in July. I am now finished with everything and trying to make my life as close to normal as possible, though I understand that I will never be the same. If I could just get all of the aches to go away, I could feel pretty good. As it is, I am in discomfort everyday sad   Blessings.
 
Cindy


Breast cancer has become an epidemic. After all of the these years and billions of dollars donated for research...WHERE IS THE CURE???
http://www.truefacesofbreastcancer.org

Post Edited (Cindy802) : 5/29/2005 2:58:07 PM (GMT-6)


MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 2/28/2005 3:58 PM (GMT -6)   
Mia in North East Ohio 40 years old at diagnosis.
 
Found a lump in right breast less than a week after marrying the man of my dreams 10/04.  It was small (size of dried pea) so I waited to see if it was still there after next menstrual cycle in November.  It was, so I had to tell new hubby.  He went with me to see surgeon in December.  He said it was probably nothing to worry about since I had a lump removed in same breast 9 years ago.  So we opted to wait until after the holidays for lumpectomy.  Had that done January 18, '05 but by that time the lump was larger and there was another one.  Surgeon called me himself to tell me it was Invasive Lobular on January 24.  I was home alone and had to wait 2 hours for my DH to make it home from work (he works 100 miles from home).  Thank God my best girl friend was in town and came to be with me while I waited. 
 
Had partial mastectomy with lymph node dissection on January 31.
 
Stage I, 1.6 cm., lymph node negative, ER/PR +
 
Waiting on results from Oncotype DX to know if I will have chemo.  Will be having radiation and tamoxifen for sure though.
 
The scariest thing for me was telling our children.  They were so strong though. I am incredibly proud to be their mother/step-mother!
 
Blessings;
DH who is my best friend in the whole world, 15 year old son, 9 year old daughter, 16 year old step-son, wonderful family and in-laws, great friends, fantastic church and Our Heavenly Father.
Mia


emmeria
New Member


Date Joined Mar 2005
Total Posts : 15
   Posted 3/18/2005 2:41 AM (GMT -6)   
Emmeria, 42 dx 02-05 stage 2b invasive bla bla bla ,-hr, Xeloda and taxol with surgery to follow then radiation

Skky
Regular Member


Date Joined Mar 2005
Total Posts : 146
   Posted 3/22/2005 5:51 PM (GMT -6)   
Michelle 34 Howell, MI
dx 3-17-05, 2cm-grade III invasive ductal carcinoma.Surgery to be scheduled first week in April(lumpectomy).genetics testing-chemo-more poss. surgery, and rads. I have a wonderful husband of 16 yrs., and two beautiful children(14 and 20 mnths.).

janismarie
Regular Member


Date Joined Mar 2005
Total Posts : 44
   Posted 3/25/2005 5:48 PM (GMT -6)   

Janis - 57, till May 8th!  Monroe, NC ....divorced 12 years....1 daughter, Kelly who lives in Washington, DC

Had gone 5 years (yes, I know) without mammogram.  Had one in November, '04, had biopsy in February, '05, diagnosed with infiltrating lobular March 9, 05 with lumpectomy.  Going back April 13th, '05 for another lumpectomy.  Will (for sure be taking cancer drug for 5 years .....still discussing which one, 6 weeks of rads and depending on what they find for chemo.

As time goes by, since all of this started, I am not afraid.  I think it is because of this website and my sister, Sharon, who has been with me all the way.

 

yeah   yeah

 


Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 3/30/2005 3:21 PM (GMT -6)   
Susan 38-Just turned. NY Married to an amazing man.  No cancer, but atypical lobular hyperplasia. Or Lobular Carcinoma in Situ OK, what does that mean? I thought Carcinoma was cancer?? Will go to the High Risk doc Monday to determine whether to go on Tamoxifen. Don't want to...it may hinder my ability to have kids. Nervous but happy I found this place.


Susan


janismarie
Regular Member


Date Joined Mar 2005
Total Posts : 44
   Posted 3/30/2005 3:36 PM (GMT -6)   
My understanding is that in situ means it is contained and can be taken out easily, possibly with a biopsy only. I have the invasive kind and that means it has gone into the tissue.
 
Good luck.
Janis

Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 3/30/2005 4:11 PM (GMT -6)   
Thanks for the reply-it was taken out, but Carcinoma is cancer and this is not cancer...I don't get it.

Susan


janismarie
Regular Member


Date Joined Mar 2005
Total Posts : 44
   Posted 3/30/2005 6:26 PM (GMT -6)   

The hyperplasia means abnormal cells........same thing they thought I had too......not cancer, but bad cells, that if given time, will become cancer.    You can have this and it never becomes cancer, but who would want to take that chance?  There are several website you can go to that explains each type of cancer.  Most people have the garden variety, Invasive Ductal Carcinoma.....around 80%....I have invasive lobular carcinoma ....around 10% have this kind and then there are about 5 or 6 different kinds......but the hyperplasia and the carcinoma are not the same thing.  One is cancer and one is not, but could become cancer.  Carcinoma is cancer, for sure.

Hey girls, is what I'm saying correct? 

 I knew nothing about breast cancer until about 3 weeks ago.......very scary, but very interesting. 

 

Good luck.....Janis


kmonke
Regular Member


Date Joined Jul 2003
Total Posts : 352
   Posted 4/2/2005 12:44 PM (GMT -6)   
Kmonke - Kitty - 57 -live in SW North Dakota - diagnosed 7/99 after DH finding lump over Memorial Day. Had lumpectomy, 13 nodes (3 were positive), ER/PR neg, 2.5 CM Invasive Ductal diagnosis. Adriamycin and Taxotere as part of a study - 4 treatments over 13 weeks, followed by rads twice daily for 4 weeks.  Have lymphedema in right arm, shoulder and back since shortly after surgery.

Family consists of DH (married 6/68), 3 DS, 2 DIL, waiting for 2 DGB's. Everything has been good these past 6 years, but just got a "ReCall" on mammogram, so now the worry starts over again.

This and former BC sites and friends from these sites are very near and dear to me. ALWAYS!

cgm
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 4/13/2005 2:08 PM (GMT -6)   
scool Hi my name is Christine 34 , MO Dx in 2003 while pregnant with my 3rd child. Had chemo and radiation until feb 2004. Had ovaries removed in april 2004 and was resently dx with breast cancer in the liver. Started chemo again in January. It is really hard this time because I thought it wouldn't come back like it did. I am getting chemo treatments every 3 weeks can't wait until I am done.

Post Edited (cgm) : 4/13/2005 7:37:19 PM (GMT-6)


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 4/13/2005 5:33 PM (GMT -6)   
Hi. I'm Laure' (sounds like LaRay) and I just moved to No. NJ. I'm 40 until June, happily married with two great boys aged 7 & 10. My surgeon had been following discharge for 5 years and the 2/05 mammo showed cancer. I had a 1.0cm x 0.7cm invasive ductal carcinoma tumor removed on 3/05. Also have extensive DCIS extending from nipple to antinipple. Nodes negative. ER+/PR+ On 3/30 had a partial mastectomy (the size of an orange) removed in VA, but due to the extensive DCIS had mastectomy in NJ on 5/6/05. Chose bilateral mastectomy for prophalactic reasons, and some cells in the non-BC breast already showed changes. Definitely the right choice.

Took the Oncotype DX test which showed very low score; therefore chemo was not indicated. Anti-estrogen therapy is indicated. Started Lupron 16wk injections on 5/26/05 to stop my ovarian production of estrogen. Also taking Arimidex daily to stop all other estrogen in my system.

16wk injections of Lupron didn't work. Went to monthly double dose of Lupron and continuing with Arimidex. Periods continued for several months, but the latest double/double dose of Lupron seems to have done the trick we're praying.
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---

Post Edited (Lmmackey) : 1/17/2006 5:41:14 AM (GMT-7)

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