What the onc had to say about the Miracle Girl

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gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted Yesterday 9:39 AM (GMT -7)   
He said there is no record of anyone having a clear test after bone or bone marrow breast cancer.  Now how far that 'ever' goes I don't know, but even if it is just within his office that is saying a great deal because he is in one of the biggest oncology groups in the DFW area.  He said because there is no knowledge of this ever happening before he has no idea what would happen if chemo was discontinued, so he wants Carolyn to continue on her regular schedule which is Abraxane for three weeks and one week off.  One of those weeks Avastin is combined with the Abraxane.  She said the amount of the chemo is very small maybe 4 oz.  It must be given very slowly because she is at the clinic for a few hours each week.  She has had very few ill effects from this combination.  The worst being her blood pressure elevated, so she was put on BP medicine.  She is also very tired, but she still manages to carry a full load, working.
 
He used her last year as a case study and he told her that again this year she would be his case study.  He called her a miracle and a phenomena!  So as someone said in the last thread, this does indeed give women hope that a cure is coming sooner rather than later. 
 
Carolyn was disappointed he wasn't going to stop her treatment and since she is pretty headstrong I felt I needed to tell her about JoAnnie.  She had bone marrow breast cancer and was on a different chemo because that was several years ago and these are new.  She was having a terrible time with the chemo side effects and was really miserable.  Her onc let her take a break and during that break her cancer increased with a vengence that took her life in two weeks.  I just couldn't watch that happen to my daughter so I felt I had to tell her.
 
Thanks again for all the prayers and kind thoughts,
Love you all,
MK


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted Yesterday 6:47 PM (GMT -7)   
Wow, a wonderful bit of news, a real miracle. I am so pleased to hear this and so happy for you and your family. HOORAY!!!

Sending continued prayers and hugs,
Lori


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted Today 5:56 PM (GMT -7)   
Just excellent news for you, MK and for Carolyn, and for all of us! I'm glad you got through to her, though I'm so sorry it had to be because of another brave soul's death. Continued prayers for both of your girls and families!

Lauré
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


lemonz
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Date Joined Jul 2003
Total Posts : 1090
   Posted Today 7:12 PM (GMT -7)   
That really is such good news. Please tell you daughter I am so happy for her. I know you are smiling. So nice to hear something nice. Congrats! Prayers and kind thoughts coming your way, Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 12/7/2008 5:20 AM (GMT -7)   
Dear MK...
What a great holiday gift for you and your family!  I agree with you and the onc, though.  If there are few side effects to the chemo, and they are manageable, then stay with it!  I'm so glad you told her about JoAnn.  As you know, she had mets to bone, lungs, and liver, too, so Carolyn is way ahead of her in the game, but they thought hers had been eradicated from the bone marrow, which is why they let her take a break from the chemo.
 
Miracles do happen.  We've got walking, talking, typing miracles right here among us!
 
Love and hugs...
BEV     
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/7/2008 9:44 AM (GMT -7)   
Bev I had told her about JoAnnie but I did not tell her how quickly or why she lost her battle. I did not realize they thought she was clean, tho. So I will make sure Carolyn understands that, too. I don't know about her bone and if the cancer is still showing there. Her tumor maarker is way down to something like 26, so that indicates a lot, too.
She has no mets to soft tissue that I am aware of. Thanks for more information!

Hope you all have a wonderful Christmas, full of hope and miracles.

Mary K.


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 12/7/2008 11:56 AM (GMT -7)   
So happy to hear this MK!! Great news!

L&H, Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 12/8/2008 3:30 PM (GMT -7)   
She only got an "all clear" on the bone marrow, MK...never the mets to the bones, lungs or liver. I didn't mean to put a damper on your good news...but like I said, if the chemo has few side effects, keep it going! I often wonder if they hadn't taken JoAnn off the tamoxifen if she wouldn't still be here giving us all a hard way to go.

love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz

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