Stage IV breast cancer survivors

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Alwayshopeful
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/21/2009 5:13 PM (GMT -6)   
Is anyone out there dealing w/stage IV breast cancer? 

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 1/21/2009 6:37 PM (GMT -6)   
But for the grace of god or the fates, i'm not one of them, but there are several ladies here who are...and we plan on hearing from them from time to time for a long time! Feel free to share your story with us.

Hugs,
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


Alwayshopeful
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/23/2009 10:30 AM (GMT -6)   

Thanks Bev for responding.  I was first diagnosed w/bc in 2003 and it only went as far as my lymphnodes. So they removed the cancer from my breast and under my left arm.  After that I had 8 rounds of chemo and 30 something rounds of radiation.  I was doing well until it returned in 2007 in my upper left lung. Hopkins removed it since it was the only tumor in my lungs or anywhere else.  Not quite a year later it came back in my chest wall and I have a few small tumors in both lungs.  I haven't had lots of chemo.  I had adriamycin cytoxin and taxotere in 2003 and then last year I had Navelbine and then Xeloda.  Now they have found that the tumors have grown some so they need to change my meds.  To be honest, I've been through a lot (as you all have) and I'm really scared.  I was just wondering if anyone out there has dealt w/anything similar to this???  Or if anyone can tell me what kind of chemo worked well for them? 

 


Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 1/24/2009 12:20 PM (GMT -6)   
Hi! I am not Stage IV either, but my sister is with similar mets to the lung and pleural lining. She had been on the same drugs you have been on without much success. Her newest regimen is xeloda and ixempra which has brought her tumor markers from 1500 down to 280 in about 4 months! Her onc keeps saying there are still plenty of options if this combo stops working, Good luck FK

Gypsydancer
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/6/2009 5:53 PM (GMT -6)   
Hi! I was diagnosed with stage 3 BC in April of 08. Since then I've had the chemo, mastectomy and radiation. Several things I've learned since then is
to cut way back on the sugar intake (cancer loves sugar), have your vitamin D levels checked and maintained, get some ph test strips for urine and
saliva and check to see whether your system is alkaline or acidic. Cancer thrives in an acidic environment. The chart that comes with these will tell you
where your levels should be at. Also take Indole 3-Carbinol as this halts the growth of cancer cells by turning off key enzymes that are important for
cells growth cycle. This is found also in broccoli and many other raw vegetables. Keep your immune system healthy with anti-oxidants and pro-biotics.
And keep your cells oxigenated by exercizing. You can look up any and all of this information on the internet. If you do decide to buy any of these
supplements, go to Vitacost.com as they have the best prices anywhere. Also look at Dr. Mercola's website. There is so much helpful information there.
One more interesting thing- look up the German cure for cancer. There is alot of compelling information there that makes you wonder what the FDA and
Big Pharma are holding back. Take care and good luck!

OVLady
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/13/2009 5:27 PM (GMT -6)   

I was diagnosed with Breast cancer stage IV in Oct 2007. I had malignant pleural effusion (fluid around my right lung) and spots on my rib bones. Previously in 2000, I had been diagnosed stage 2 breast cancer; had a radical mastecomy of my left breast; chemo & radiation. This time the doc had me on Abraxane and Zometa as well as AVASTIN that was approved by the FDA on Feb 28, 2008. He put me on it 2 days later. I am also receiving monthly hormone shots. I am responding to the treatments, which is all that they can do. No surgery can be done. Never referred to it as my cancer ... instead called it The cancer. I didn't want to claim ownership of it.

Latest PET scan (1-21-09) show NO evidence of the nodule (growth) in my right lung that was noted in previous PET scans. The malignat pleral effusion is gone although I do have scar tissue on my lung from the experience. My doc is delighted & says I'm responding far better than he had ever hoped. I will continue to have monthly Avastin, Zometa & hormone shots "indefinitely" as a preventive measure in hopes that the cancer cells do not grow back. My doc says that's what they are doing now. I contribute my progress to great medical care, a great support system of friends & family and most of all my faith in God.

I do suffer from side affects from the treatments. Lost of appetite; feeling weak, exhausted, absolutely no strength. And, joint pain from the hormone shots. I'm dealing with it. It helps when you get positive results. Do you have any other questions? What can I do to help? I'd love to know other Stage 4 Cancer survivors. Be Well!!!


suffer_deeply
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/8/2009 11:58 AM (GMT -6)   
In our lives, we suffer a lot.. We walk through on several trials, that causes us to give up. Sometimes we think life is so unfair because of the hindrance we've been through. We struggle a lot to survive, but when things went wrong and everything is gone, we find someone to blame on and ask "why me?"..But things are just not constant, things may come and go, if not today, tommorrow, or never. But we need to value things that comes along our way, looking back the past may serve as our guidance to a new and better path forward..

“Every problem has a gift inside. We seek problems because we want their gifts.”

www.thankgodforebooks.com/breast-cancer-parr-rud.html

dhnybny
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/21/2009 8:48 PM (GMT -6)   
I have overcome stage IV breast cancer with bone mets. I will share what I know if anyone wants the info.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 31822
   Posted 5/26/2009 5:53 PM (GMT -6)   

I do not have breast cancer but I wanted to let each of you know that I am a huge advocate for cancer victims and survivors, and their families.

My sister died on 4/30/09 of ovarian cancer and I was beside her for the 10 month battle she went through.  She was brave and never gave up the battle.  I learned so much from her.  She had a left radical mastectomy for a lump on her R breast when she had her major ovarian cancer surgery. 

My other sister and my Step Mother had breast cancer so I have walked for 14 years in our annual Bridge to a Cure.

I am always honored to have the opportunity to walk for this great cause.  

I send blessings and prayers to all of you.

Gentle Hugs

Kitt


 

Kitt, Co-Moderator:
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Dee75
Regular Member


Date Joined Jul 2005
Total Posts : 244
   Posted 6/3/2009 11:49 PM (GMT -6)   
Hi All!
I have stage 1V breast cancer. They removed the tumor and 19 lymph nodes. I had chemo and radiation. I take herceptin every three weeks until my year is up. The doctor is counting from the fist day I started the chemo. It will be up on the 15th of Sept. The doctor says they'll keep a close watch on me when the treatment is over. I worry about it returning since it's stage 1v. I feel pretty good and the doctors say I'm doing great since I'll be 80 in Oct. Best to all. turn          

Avril1
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/19/2009 10:01 PM (GMT -6)   
dhnybny said...
I have overcome stage IV breast cancer with bone mets. I will share what I know if anyone wants the info.


Hello,
My sister was just recently diagnosed with stage IV breast cancer with bone mets. Any info you can share with me would be great. thx.

myMaria
New Member


Date Joined Jul 2009
Total Posts : 7
   Posted 7/10/2009 5:08 AM (GMT -6)   
my wife was diagnosed with stage iv back in Dec. 07 (age 39). she was 20-weeks pregnant with our (now healthy) daughter at the time and doctors initially planned only to keep her alive until she reached 32-weeks, if possible.

she had mets in spine, liver, ribs, brain... she has been getting regular PET, CT, MRIs (every couple of months) since. All have been negative since spring of 08. She also gets regular blood tests of CA 27.29, Arimidex daily (Ovaries were removed during c-section), aredia monthly to repair bone (also has anti-cancer activity), and she has been doing very well until recently. minor set back, discovered carcinoma in situ in left breast (origin of cancer) and cells in a couple of her lymph nodes. mastectomy of left and under-going recon.

in addition, my wife's vision was also affected and she has double-vision due to nerve damage, but corrected with prism glasses. she also had a collapse vertebra and though reinforced with kyphoplasty, she still suffers from uncomfortable and chronic back pain, so she is also on painkillers.

anyway, she has been doing well and the medical community has been very impressed and amazed at her recovery and current status. her oncologist has decided not to resume chemo and feels that current course will be fine for now. don't want complications of chemo to affect other concerns such as optical nerves, etc. if needed, can always go to chemo... i was concerned about this change from chemo to no chemo, but as often and as well as she is being monitored, i feel a little at ease with the decision. she would have been given Taxotere, which is known to cause nerve damage.

it helps that her oncologist is one of the most celebrated and known in the region :) know that there are other options, so coordinate and be informed with your onc. don't be passive about what you are going through and what is happening in terms of new discoveries, treatments, etc.

in short, my wife is doing well.

Post Edited (myMaria) : 7/10/2009 5:13:43 AM (GMT-6)


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/10/2009 8:02 AM (GMT -6)   
Thanks for sharing your wife's story. You are obviously very proud of her, and understandably so. Sounds like she has the fighting spirit!

Take care....
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 7/10/2009 3:09 PM (GMT -6)   
Wow that is quite a story! I love to hear of miracles. Most women I have known aboout who were pregnant at the time of diagnosis did not live long. I would love to hear in a couple of years she is still doing well. My daughter has also done amazingly well with her Stage IV. She still does weekly chemo just to keep it that way, hopefully and today is her 50th birthday. She was diagnosed at 39 also, but was not Stage IV at that diagnosis. That came eight years later. Hug your wife for us and tell her we pray she will continue to improve. Mary K


myMaria
New Member


Date Joined Jul 2009
Total Posts : 7
   Posted 7/10/2009 5:31 PM (GMT -6)   
thank you...my wife is a courageous woman! very strong...

suzieq855
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/15/2009 9:47 PM (GMT -6)   
I have stage IV breast cancer with mets to my sacrum bone. So far....no where else, though it's been a while since any PET scan or bone scan. My MRI's show the same. I get monthly Faslodex shots and monthly Aredia thru medpot. I'm still walking, talking and living! I have Faith in God that He will take me when He wants to and I will gladly go. My son is 18 and has gotten into drugs thru the last 4 or 5 yrs of me dealing with this diseae. He has no one else to love him, but me and his girlfriend. i hope he is grwoing up now. He attends N/A twice a week. He stays with her most of the time. I have lost my home and am giong to an apt. The thing I crave most is family support. I have none. Daughter is bitter about somethin g with me and holding a grudge. Thinks it's all my fault my son was the way he was. My 44 yr old brother is taking advantage of my 84 yr old father. So....I have detached myself from those 3 and I'm there for my son only. I can't take the stress anymore. God willing.... will be moving out of state to a pleasant warmer climate as I cannot stand winter in Michigan anymore. Things happen for a reason and God will let me live as long as I'm still needed here. I have no man in my life. I try to eat healthier than I used to, as I cared for my mom with Alzheimers until she passed, then I became ill.

Wonderful stories on this website.

myMaria
New Member


Date Joined Jul 2009
Total Posts : 7
   Posted 7/16/2009 7:50 AM (GMT -6)   
suzieq855,

i am sorry for your cancer, but you certainly have an attitude that will help you through! btw, i think it sucks when family are unable or unwilling to be supportive. i had to go through it when my wife was diagnosed (her side of the family, that is). my wife's family live in the same metroplex, but i couldn't and didn't rely on them...

being on a forum like this can be very therapeutic and comforting. hold on and continue being strong!

moving to florida? how will this affect your health insurance and/or current treatment plan?

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/16/2009 9:58 AM (GMT -6)   
Hi, Suzieq...
Your story is a great reminder that, while we are the ones with "the cancer," it reaches out and snakes its fingers around the hearts and minds of all of our friends and family. Some of them rally to our sides and are there to support and nurture us, some of them retreat in fear and a feeling of helplessness, and some of them become angry and resentful and somehow blame us for our disease, because our cancer is a part of their lives as well. Cancer doesn't just happen to us in isolation. I'm happy to hear that your son has sought the help of NA. It sounds like you have plans for life, and that is great! Keep in touch and let us know how you are doing!

BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz

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