Thyroid cancer is another gift that keeps on giving...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/13/2009 9:29 PM (GMT -7)   
So...last Friday I had a sharp pain in my right cheek that felt like a nerve flare up. I had a sore cheek all weekend but when I ate lunch on Monday, it swelled up like a balloon. I went right to my PCP's office and she said it was a parotid duct stone...a stone that develops in the salivary gland and blocks the opening. Text book case. So I go onto my handy little thyroid message board and see that a slew of people have had the indentical problem, many times it is several months afte the radioactive iodone therapy. I now have a salty taste, just like the others reported. Of course the doctors say it is not related, but we know better!
Supposedly it is common to have this as a side effect due to scarring of the glands (it absorbs the radioactive iodine). And lucky me, it can recur. 
I am still not regulated on my thyroid replacement meds, he just upped me 3 levels on Monday. I am hopeful that my eyes will not be scratchy or puffy and that my stomach will calm down.
 
Oh ladies, why oh why....it's always something...
 
Anyway, I do hope you are all well!
Lori


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 2/14/2009 5:17 AM (GMT -7)   
Lori, being in my usual grouchy mood, the first thought that came to mind was "This SUCKS". Is there anything they can do about this duct stone? Surely they just don't leave it there, waiting for it to dissolve. Anyway, hang the hell in there. It's just one thing after another with this darned disease. You're a fighter. In fact, there's more than just one lady on this board who should be "knighted" right along with being able to wear the appropriate silver spurs. So, Dame Lori, what will they do for your next?

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/15/2009 5:30 PM (GMT -7)   

Yeah, right? Cancer X2 for me...is this X3 for you now? What are the odds of all this crap...

For the stone, they gave me an antibiotic to prevent infection. If it does not resolve I will have to see an ENT for eval on size, location, etc. They sometimes can probe it out, and I guess there are other more invasive things they can do too. It is definitely better than it was, but it seems to get better one day and flare up again the next. I have chatted with a lot of people with identical symptoms several months later, they even gae a name for it, radiation sialianitis. I must say, I am sick of researching medical conditions on the internet!

Ah, this too shall pass....one day at a time. And for Dame Lori...next, I'd like a nice glass of wine. :)



Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 2/16/2009 7:04 AM (GMT -7)   
No Lori, this is X4 for me. I've also decided that I'm going to toast you with an entire bottle of a new wine I have. Now if we can just think of an appropriate to our situation toast that rhymes.

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/16/2009 5:30 PM (GMT -7)   
X4...you had another skin lesion, right? Well one time is too much, so 4, well if I can be Dame, you can be Queen :)

I am working this evening while watching tv, the common thing for me this time of year.

I am not feeling a cleverness right now, so how about just "L'chaim!" In yiddish, that means "To Life!"

Lori


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 2/17/2009 5:26 AM (GMT -7)   
Lori, I had b/c twice. The second time was not a recurrence, but a different kind of b/c, a new primary site. That makes x2. Then came the skin lesion on the lymphedemic arm, that was x3, and now this new basal cell carcinoma on the chest wall, x4. There are many things I'd like to be Queen of, but this sure isn't one of them. I do like your toast and used it during the wine "tasting". I also toasted to you and to the wish that this is the end of this crap for you. You're too young to have gone through all of this. You deserve a break.

Let me know how you're getting on with this.

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/17/2009 8:16 PM (GMT -7)   
Jo-Ann, that is sweet, thanks. Yes I am too young for this, but none of us deserves it, regardless of age. I turned 40 in December and was eager to get into my 40's. Breast cancer at 30, thyroid cancer at 39, it was a tough decade! My cheek/ gland is doing better, still getting some swelling but not as bad. My doc had told me to call for an ENT referral if not resolved in 3 days, but I am not taking her advice...she thought it was a duct stone and I am pretty sure it is a radiation thing that just has to run its course.

Yes, I knew the 2X breast cancers for you but had forgotten about the skin lesion that was #3. I tell ya, a girl loses count!
I will toast back to you the next time I have a glass, which should be any day.

Hugs,
Lori


Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 2/18/2009 8:49 AM (GMT -7)   

Hi Lori! Sorry you are have more problems! Just want to give you a little advise about the parotid stone. Remember, my dh is an oral surgeon; we see salivary gland stones all the time. You want to suck on sour candy to stimulate saliva flow to try and move that stone along. If it doesn't improve, they can try to probe the duct to get the stone. Last resort is surgery to get it out. Keep in mind that an ENT also treats salivary stones. The big difference is that if surgery is needed, an oral surgeon will approach the gland intra-orally (inside the mouth) while the ENT will more likely go extra-oral (outside the cheek) which could result in a scar. I hope the sour candy does the trick! Let me know how it resolves. Good luck! Hugs, Frayda


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/18/2009 5:59 PM (GMT -7)   
Thanks Frayda! My PCP said the same thing with the sour candy, I've been sucking Jolly Ranchers and other candy all week. The thing is that it is a possibility that it is scar tissue from the radioactive iodine therapy that I had last summer. It is getting better so I am going to hold off on seeing a doc just yet, but I appreciate the feedback on the ENT vs. oral surgeons.
Hope you're well!
Lori


jessiecat
Veteran Member


Date Joined Jan 2004
Total Posts : 693
   Posted 3/22/2009 1:46 PM (GMT -7)   
((((Lori))) I am so sorry about this for you!
I hope you are better by now, I know this post was made a while ago.
I am a 2-timer too.
First breast cancer in 2001 triple neg, ductal
Second breast cancer in 2007 lobular er/pr+++

I pray all is well with you.
Love
jessie
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 7:16 PM (GMT -7)
There are a total of 2,734,408 posts in 301,211 threads.
View Active Threads


Who's Online
This forum has 151329 registered members. Please welcome our newest member, OleMiss1990.
362 Guest(s), 10 Registered Member(s) are currently online.  Details
OleMiss1990, chrisp1, Rikky1, Sarebear89, Xmaslover, Redwing57, NiceCupOfTea, KChrispcat, poopme, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer