New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/24/2009 12:19 PM (GMT -7)   
I am scared to death.... So, many women that I have talked to say that the steriotopic breast biopsy is painful. A friend even told me that she knew someone that something horrible happen too. She said that her friend had a stereotactic biopsy done on her left breast, she said as with all women the doctors lied and told her friend that she would not experience any pain durring the procedure. To make a terribly long story short. The woman went in to get the procedure done not even fearing any pain. The person performing the test would not listen to her when she was experiencing pain, the woman began to yell and scream...The person did not stop the test. Then the woman begged and pleaded the woman was in so much pain she began to kick her feet and move her arms. The person performing the test began to raise his voice, and stuck and grinded out more tissue again, she begged and pleaded to stop, they wouldn't the pain became so imbarrable that she lunged off of the table ripping her breast with the introdrucer. She was in horrible pain and then had to under-go plastic surgery on her breast. Even before I heard this about this woman I had nightmares that this is what would happen to me, I have called the hospital, the surgeons office repeadly to get them to understand that my fears are not that of a normal person, I suffer from fibromyalgia, chronic fatique syndrom, bi polar disorder, panic attacts and severe anxiety, and depression disorders. I have a 0 pain tolerance, and 0 tolerance for doctors who lie and say a procedure is not painful. omg, I am terrified of this procedure, I have not slept in 3 days, I have not eaten in 3 days, and I have had my heart pounding against my ribs so hard it hurts, I know you might think I am just a chicken, NO I am The chicken, In past procedures I have become terrified and vilent on those who were just trying to do their jobs, I have injured my self and others In panic attacks. I am scared that I am going to loose what is left of my mind before they take me away to torture me Friday. My husband is fearful that I will black out again and this time injure myself on that table.....If I could only be able to see what they were doing would be so much better.. I am terrified not one person (who actually went through this procedure has told me anything good about it.) has told me this procedure. The doctors are refusing to put me out, and even the radiologist is not even wanting to perform the test on me unless they sedate me somehow. can someon out there please help don't lie to me, tell me the truth if you were in pain, or if you were in no pain. Please don't lie to just help me like the medical staff is doing to me.
 

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 2/26/2009 5:25 AM (GMT -7)   
Why in the world would anyone tell you such a horror story knowing you were facing this test? Do you really think that a test would be so bad and the medical professional would be so heartless? This test takes the place of a biopsy to make things easier for you certainly not worse. Going into something so frightened serves no purpose. I suggest you talk to your doctor about doing a regular biopsy if you really believe this horror story. Even masstectomy surgery is not as bad as you described, perhaps you could plan for that and you would never have to face a steriodactic biopsy ever. If I sound like a smart aleck, believe me your "friend" telling you all this makes me feel like one. That person needs a good talking to, especially if they know your medical history. Good luck and God Bless. MK


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 2/26/2009 8:57 AM (GMT -7)   
MJ
I don't know who on earth told you that crazy story but whoever did told a whopping lie. I have had this procedure and in no way did I have alot of pain. I can't imagine that any qualified medical person would let a patient be in that much pain. They can give you a sedative just to take the edge off before even starting the procedure. I have to agree with MK what kind of a friend would tell you such a story.

Hugs, Bernadette
 
 


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/2/2009 8:30 AM (GMT -7)   
Boy can I relate. Had a questionable mammogram about 3 years or more ago. Then a suspicious ultrasound. It was my first one and I am am almost 50. I had a lot a questions about the biopsy and the fear I have of needles. And questions about some of the things I have heard about the procedure in general. The doctor ended up on the phone with me to answer my questions. At one point she told me the needle was no bigger than the needle used to draw blood and I was being ridiculous. And besides, she said they give you a needle to numb the area. She had be crying the way she talked to me. Hello? I am afraid of needles and now I find out I get more than one and that is a comfort how? So I ended up skipping the biopsy and asked for an MRI. The doctor made me feel so bad I never went back again. And haven't had a mammo since.

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/2/2009 8:52 AM (GMT -7)   
Well, my dear little star, methinks you need to think this over.......... afraid of a needle? Believe me a serious illness, not just breast cancer, but others too, require more than needles to make you well and live. You mean to tell me you are going to let you health go and possibly turn into something worse because you are afraid of a needle? At age 50???? Come on. Many of the women who have survived breast cancer have fought long and hard to survive. Many young mothers who are friends of ours have lost very brave battles, enduring all kinds of surgeries and chemos and radiation only to lose their battles and you will not even have a biopsy????? OMG I better end it here. MK


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/2/2009 3:52 PM (GMT -7)   
gma said...
Well, my dear little star, methinks you need to think this over.......... afraid of a needle? Believe me a serious illness, not just breast cancer, but others too, require more than needles to make you well and live. You mean to tell me you are going to let you health go and possibly turn into something worse because you are afraid of a needle? At age 50???? Come on. Many of the women who have survived breast cancer have fought long and hard to survive. Many young mothers who are friends of ours have lost very brave battles, enduring all kinds of surgeries and chemos and radiation only to lose their battles and you will not even have a biopsy????? OMG I better end it here. MK

You do not understand. As a young child, I needed some teeth extracted. They couldn't find a vein. And the more they tried, the harder it was for me to keep still. So they asked my mom to leave the room. And they tied my arms  to the chair. And they were not gentle about it. I woke up with bruised arms from the amount of times they tried to get the needle to work.  You do not understand the level of fear that can leave you with. Irrational to most but very real to me. The first poster's story about the woman who lunged off the table--when you are scared enough, your ability to reason isn't there. I went hysterical when I miscarried and they were about to scrape the remains of my unborn child out of me. They sedated me. I totally knew what was going on, but could no longer react. Could not speak, could not cry, could not tell them when something hurt. It was like being tied to the chair all over again. Totally helpless and totally aware. Passed out holding my daughter when she received her first vaccination.  Pass out if my dog gets a shot. You need someone to calm your fears, not to escalate them or make fun of them or to tell you not to be afraid. Cause you are afraid.  When people belittle you for your fear, it escalates the fear and you just avoid the situation. The breast dr made me feel like crap.  There were many reasons I was leary of a biopsy. Seeding of the needle track is a major concern of mine. First the dr told me there was nothing to worry about. Cancer does not seed from a biopsy. Then she told me the needle track is removed if the lump was indeed cancerous as an extra precaution to keep the cancer from spreading through the track. Huh? A little contradiction there.  And instead of doing anything to comfort my fears, she belittled me for them. Just as you did.  So I opted for a thermogram and the MRI. And to adopt the healtiest lifestyle I can so if cancer is in my future, perhaps I can delay it a bit. And if chemo is in my future, insulin potentiation therapy would be my first choice. Plus I have seen more than my share of routine tests and procedures and treatments gone bad. To name just a few--My grandmother had a test to see if the arteries  in her neck were clogged. She spent the rest of her life in bed as a result of the stoke from the test. My aunt had dye injected to check the functioning of her heart. It loosened a clot and she ended up in a nursing home partially parayzed. The inactivity coupled with her diabetes led to an amputaion of both legs over time. Friend went to get his wisdom teeth out. Needle damaged a nerve and he ended up with partial paralysis of one side of his face. Friends dad had cancer. Easily operable with an excellent prognosis. Gave him chemo to shrink the tumor before surgery was planned to preserve bladder function becasue of where the tumor was located. Chemo caused a blockage from the constipation and his intestine perforated and he died. Another friend had breast cancer. Caught very very early thanks to her yearly mamogram. Did a lumpectomy and they gave her a choice of having chemo as a precaution.  She felt the benefits of chemo outweighed the risks. She ended up with Chemo-Induced Thrombocytopenia. After the initial treatments failed, she had a bone marrow transplant. It was ultimately not successful.   An uncle threw up a lot from his treatment. Inhaled the vomit. Died from aspiration pnuemonia. Best friend died just 2 years ago of breast cancer in her early 30's. I took her to chemo. I went to Dr appointments with her. Was  there when she was told she had weeks left at best. Stayed with her in the hospital. And held her hand as she was dying. And even that is not enough to overcome my fear. At a guess, my fears will not make any logical sense to you, but they are real to me.

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/2/2009 5:09 PM (GMT -7)   
All I can say is that at age 50 it is time to deal with those fears and do something about it. There are doctors who can help with fear. Read the post titled Hospice. This is a woman about your age who has mets to the bone from breast cancer. She has been fighting this disease for over nine years and has had several surgeries to remove diseased bone and replaced with steel rods. She has had chemo and lost her hair something like six times. She has been fighting for her life--now compare that to not having a biopsy because of a fear of a little needle. Oh yes, I know horror stories, I have one of my own to tell--I got contaminated sutures during surgery in 1997 and live with a hernia the size of a nine month pregnancy with twins because I had to have all my abdominal muscles surgically removed. I can't stand for more than a few minutes wearing binders, compression suit and various other methods of holding my intestines from falling any further. IV antibiotics kept me alive for nearly a year while the doctors tried to save my abdomen. I walked around my home with a fanny pack with a pump to deliver the antibiotics. I never liked needles much, either, and a PIC line is no fun, but I would rather be alive. I understand fear but I don't understand why anyone would prefer to face possible consequences that could lead to a painful death rather than conquering that fear. Besides there are drugs that could make you sleepy and possibly ease the fear. I just do not understand how you could not do something to remove the fear from your life. So I guess we will have to agree to disagree..................... MK age 70


mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/5/2009 12:08 PM (GMT -7)   
Well, I called the surgeon who ordered the test, and requested some kind of sedation, he refused and passed the buck back to my family doctor. My family doctor knowing my history listened to me, and prescribed me something for pain durring the procedure and he prescribed me 2 mg. of adivan. I went to the hospital friday to get the test done. I was scared but willing to get it done. The lady who I had previously talked to on the phone told me she would be the one performing the test and would be sure to keep me numb. I tried to explain to her that I experience pain like no one I know. That when I go to the dentist just to have my teethe cleanedn I have to have severel numbing shots just to have that done, and to some degree it would still hurt. So, anyway I got on the table that lady was there, then all the sudden this man comes in, He plopps himself done real hateful like and says do you have any questions? I said no, because the lady had answered all my questions all week on the phone. The lady came back in the room, and the man went down below me and started cleaning the area to be tested. I was nervous, and I could feel my breast in the compression but that did not really bother me. Then he began to give me a numbing shot it burned sooooooo bad that my eyes were watering, I said to me omg, that burns so bad, what the hell, the woman put her hand on my back and said the burnning will go away in just a moment, then I still laid there and then I felt him begining to cut me, I screamed and I said no no no I am not numb yet please I feel that. So, then he gave me a little tiny bit more of the numbing shot, it burned it hurt I could feel it coursing through the area, then I said that hurts I know you are cutting me I can feel it, you have got to get me numb, and I was in such pain it felt like a razor blade and it was burning so bad, then the lady put her hand on my back and i heard some vaccuum sound then I felt a horrible pain, and came up off the table screamming. I fell off the bed into the floor hurting my knee and my back, and I was screamming the whole time. I felt like I was in a hitler torture chamber, them dumb azzes were going to continue that test and me telling them I felt everything and how horrible it was. I was just like that woman said a nightmare the only thing is I came off the table in time, or at least they removed the needle in time withouy ripping my breast open.
Monday morning the doctors office called, not the surgeons who don't really care, but my family doctors office, and said they had got the report of what happend. After a long talk they suggested that I go to a psychologist to get a recomendation to put out, that rely makes me mad, I did not psychologically feel what the many was doing to me, I physically felt it. At any rate, the lady from his office said that peoples pain tolerance is different, and I need this test done. and the only way they will be able to put me out for the procedure is with that recomendation of the phsycologist. This makes me mad because my own family doctor told that surgeons office to put me under versed. And now here I sit a week later still scared to death, no answers and now no medical insurance. I feel so robbed they should me out in the first place, I told them that and so did my family doctor. I guess I will never know now.

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/6/2009 6:28 AM (GMT -7)   
I really know what that all feels like. You know yourself. And they won't listen to what you know about yourself. And the reality is everyone I know who has had a biopsy has said it is painful. Some said manageable pain, and others were in tears and it shook them up for days. I always like to know the truth about what to expect.
Here is an article that talks about using an MRI to distinguish between non cancerous and cancerous legions. http://www.webmd.com/breast-cancer/guide/breast-cancer-mri
There are many such articles on the internet. The article also says the use of an MRI can cut out the amount of biopsies being performed. For many reasons, I did not want a biopsy. And the MRI showed my little growths were not cancerous. It is hard to explain, but something in my head was screaming at me that biopsies are right for most, but very wrong for me. Every inch of my being screamed do not do this. And it is not liked I ignored the lumps, I just searched for and used alternative means other than a biopsy to check them out further.

mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/8/2009 9:10 PM (GMT -7)   
now, get this ladies, I got a call from my doctors office the other day. He is now refusing to be my family physician if I do not get either the open biopsy, or the stereotactic procedure done....OOOOHHHH, anyway he says he has searced high and low for a doctor willing to do the procedure with me under general anestsia but no doctor or surgeon, radioaligist will do it.... But, here is a flare in my azz... I called to make an appointment (a false one for my husban to get a testical biopsy and told all the hospitals in the area that we were doing the calling because we just wanted to make sure that he could be put out for the procedure) They said that wont be a problem, he can choose either local or general anestsia for his procedure.....Could some body tell me is there a medical reason why a woman can't be put out but a man has the choice.
My doctor wont see me no more because he says I am gambling with my life choosing death over life. I tried to explain to him I don't control these panic attacks if I did I all out would not have them, and I can't help that my body feels everything even with lidocain or what ever that was, it wasn't enough at all. So, really to me I think the medical field gives a man the choice to be put out so he may choose life, because not all men would do that awake. But, I guess I am not as good a man. I must die because I refuse to be tortured awake.

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/9/2009 8:38 AM (GMT -7)   
So how about asking for an excisional biopsy, they do use anesthesia for that. That is all they did before the needle biospy was invented. Also how about seeing a breast specialist to have it done. MK


mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/9/2009 5:28 PM (GMT -7)   
I did ask about that, infact they suggested that but then they told me I would have to be awake for the wire, and also that the scar could be as large as 3 to 4 inches at the very top of my brest so any type of a little low cut shirt would show the scars.

mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/9/2009 5:32 PM (GMT -7)   
little star,
I understand your fears completley. I hate that anyone else out there has the fear panic depression and anxiety as I do, but know now I am not alone. Terrified but not alone. My doctor comfirmed to me today he will no longer be my physicean. My husband said write Dr. Phil maybe he can get you a doctor who will put you out. So, I just wrote to him, that would be awsome and a relief if Dr. Phil would help me out with this. Because again today I spent the entire day on the phone looking for a doctor or surgeon who would give me general anestisia. Oh, I know my spelling is way off, sorry I can't think it has be 3 days since I slept or ate anything. Well, Hope some out there can help me.

ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/9/2009 6:15 PM (GMT -7)   
It always amazes me how dr's do not listen. I tell them I pass out with needles. They won't let me sit down for a tetanus shot. I pass out from a standing position. Told the pediatrician I pass out from needles. He said I was not getting the needle so nothing to worry about. Passed out with my infant daughter in my arms. Had to get an mri with contrast. Told them I pass out from needles. Passed out during the test and they start running all kinds of tests to see what made me pass out. Lots of $$$ later, they told me I seem to have a fear of needles. Some people have a different sensation of pain. A former neighbor had to have an emergency c-section. They asked her if she felt anything when they touched her stomach. She said she could feel the touch. They told her she was numb, and she was just feeling pressure. Then they made the incision and she was not numb. It doesn't seem like it should be such a big deal to just put you out for the procedure. If the dr really cared, he would do what is right for you so you can either put this all to rest or decide how best to fight. (((((((((((((((((hugs)))))))))))))))))))))

mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/11/2009 10:13 AM (GMT -7)   
Here I sit 2 - 3 weeks later. All I can think about is that I have to get this test done. I wish I could just do it but I know that I can't I tried, I tried with all my might. Now I am seriously loosing my mind, my doctor refuses to see me, my insurance has ran out. I have called ever hospital in the state to be put under for this and still to no avail. I am so desperatley depressed and feel so alone. I guess I might as well face it, I am going to die if this is what the doctor fears it is. I don't understand how they can threaten me not to be my doctor and tell me it is my fault, I can not control my panic disorder. I even spoke to a professional of mental health he was not helpful either. I guess I am doomed with this thing of just not knowing what those calcifications are. No one will help me with my problem, they just act like it is no big deal to get the procedure for me it was the most traumatizing medical experience I have ever had. It was painful and hurt and they hadn't even got the giant thumb size needle in that was just them laying me there not numbing enough and slicing into me, and acting like nothing to it. I don't get it. How on earth do women go through that and say it wasn't that bad. Well, I never did know how women live through having babies either. My low pain tolerance, and fear of dying durring childbirth also lead me to never having kids. Thank goodness I didn't they too would have been plagued with my low tolerance for pain, and fear of procedures. Sometimes I wish I was not even here.

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/12/2009 7:08 AM (GMT -7)   
There are forums on Healingwell for Panic Disorder and Anxiety and also Depression that may be more helpful to you than this breeast cancer forum. The women here do all we can to survive breast cancer and do not understand panic disorders, etc. When you get to the breast cancer part if it is indeed cancer perhaps we can be of more help here. MK.


mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/14/2009 9:35 PM (GMT -7)   
Well, I have talked to what seems like a million places that performs stereotactic breast biopsies. I have talked to many nurses who have have actually shared the fact that some women do experience horrible pain with this procedure. Many of which say that they themselves would never do the stereotactic procedure they would just go straight for the open biopsy where they can be put out. One nurse even kept my number and called me from her cell phone to warn me that this procedure is definatley not for everyone, that there are other things that can be done. Another nurse told me it really does matter who is performing the test, and that person needs to be one who cares of your discomfort, so that they are ready and willing to administer more of the numbing agent, she also went on to say that there are certain people that she will not assist with procedures because they do not care how bad a patient is hurting. Any way I did find a place but it is a 36.5 hour drive from Ohio that does offer IV consious sedation for the stereotactic biopsy. There website goes on to say that they do that because they care about there patience and what there pain levels. More places need to be like that, caring about the whole person how they feel, there fear and anxiety about the procedure and there results. They also give you your result in as little as 2 days. Longest being 3. I hope to contact them Monday and share more of what they say.

mj800
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/15/2009 7:10 PM (GMT -7)   
For all the people out there maybe it was not on this site but have been looking for a video of a stereotactic breast biopsy http://www.brustzentrum-wen-mak.de/englisch/brust_mak_dia.php#

postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 3/15/2009 11:55 PM (GMT -7)   
I agree with MK. Ask for the excisional biopsy where they put you out.
That is what I had, and it was not bad at all. I went home the same afternoon.
Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:33 PM (GMT -7)
There are a total of 2,732,772 posts in 301,054 threads.
View Active Threads


Who's Online
This forum has 151206 registered members. Please welcome our newest member, KrazyKorean5.
327 Guest(s), 13 Registered Member(s) are currently online.  Details
Katie95, Wdan, Bololidat, Lymepilot, jennydancingfish, Teamchris, Serenity Now, NiceCupOfTea, Poppie, HeyNoodles, Broncofan18, julymorning, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer