Janice - a posting for my GERD Friends

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/7/2009 3:44 PM (GMT -7)   
Hi Friends! I didn't feel it was appropriate to talk about this on the GERD forum, it is after all, a completely different issue and I didn't want go into details there.

I've been diagnosed with early stage breast cancer, the earliest possible; it has not invaded other tissues and that is a very good thing; it has been graded as high nuclear grade, which from what I understand, is a faster growing, more apt to be invasive type of cancer.

It has been found in all 4 of the samples and it's called multifocal; right now I'm looking at a lumpectomy, which is scheduled for Friday, June 19th and then following up with radiation. The radiation is a newer kind, which is only 5 days instead of 6 weeks. It's more intense and done from inside the breast as opposed to the lower dosage, external radiation, but 5 days instead of 6 weeks..yay!

I have a phone appointment with my Dr. on Wednesday, we still have some questions; I've learned a lot since we first found out, but still some questions remain and those questions affect some treatment options, so we'll see.

Compared to what some of the other good women on this forum are going through, this is not that big a deal, but I appreciate your support, friendship and hugs!
Janice

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/7/2009 6:16 PM (GMT -7)   
Janice -
You know I am praying for you and that this will be successful. I Will be doing my part rooting for your complete recovery. I will send you all the healing and positive vibes I can my Friend.

Take care,
Bill

picklepuss
Regular Member


Date Joined May 2008
Total Posts : 160
   Posted 6/7/2009 6:19 PM (GMT -7)   
Janice - I don't know what to say. I'm so so sorry to hear that. It makes me cry for you, geeze I'm so sorry.  cry
When did you find out ? I thought that the thing they found was nothing to worry about so If I misunderstood that I apologize.
Is the surgery that they are doing is to remove the lump ? How long of a surgery is that and what are the percentages of getting rid of this kind of cancer? Geeze I hate that word with a passion !!!
Man that is some sad news for me. I hate hearing of more ppl getting this disease ! It just brings memories back and tears me up.
I will put you on the prayer chain right away and please know that you are always in my thoughts and prayers.
 
God Bless you my dear,
Teala

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/7/2009 7:09 PM (GMT -7)   
The cure rate Teala is in the 90th percentile!, especially when you couple it with radiation. We still have to have some info on the aggressiveness, but that is just additional information at this point. I found out about 3 weeks ago now, and I really don't want you to feel badly about this at all! This is why you get a yearly mammogram..a digital one at that!!!

Until pathology tells us differently, we're moving forward with a lumpectomy; my Dr. will take a certain amount of tissue which will be checked right away for clear margins. You want a certain edge of normal tissue surrounding the cancerous stuff, because they found it in a couple of places, even though they may be small, the final pathology may dictate more surgery.

I didn't feel it was appropriate to talk at length about it on our GERD forum and I knew you were wondering where this was coming from, so I thought posting here was a good idea.

Do not feel badly! there are others who aren't as lucky as I am; I am grateful for our friendship and the friendship we all share on the forum!!

Bill, once you're out of the hospital you can spend energy on me!!, until then buddy...GET WELL!!!!! (You should ask if you can take Beaker home with you though!!! ha ha !!)
Janice

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 6/8/2009 7:00 AM (GMT -7)   
Yes there is a great cure rate for lumpectomy and radiation. Your doctors seemed to have covered all the bases knowing the staging, etc. first. The catch is that you must keep vigilant about check ups afterward and report anything that might show up immediately. My aunt in her 80s has lived 30 years beyond her lumpectomy and is still going strong. Take care and keep us posted. Hugs MK


JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 6/8/2009 2:30 PM (GMT -7)   
Janice, so sorry you have had to join another group on the forum. So far, all your informationl sounds really positive. One thing you did not mention was if you were having a sentinel node along with the lumpectomy. Just curious if they did mention that to you.
 
Yes, I have heard about this new 5 day radiation -- when I had radiation 4 years ago, this was just coming to my facility, so I had the full six weeks. Let us know how you do.
 
Judy

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/8/2009 3:38 PM (GMT -7)   
GMA, Judy, thank you for your notes.
about a year and 1/2 ago I was learning I needed a nissen fundoplication; I knew nothing about it at all, and the information I was getting made it a fairly frightening journey. I found forums and read, asked and listened and one by one, I dropped out, why? because of the negativity and quarreling that went on between members..except here. Healing Well has been the most exceptional place for knowledge and I don't know who named this place, but my props to them! Because of Kitt, our moderator there and the wonderful people who came before me, I got through my fears, had the surgery, the pitfalls, recovery and I'm on the other side helping where I can now.

I'm grateful for the breast cancer forum as well, I'm finding the same spirit here as on GERD, so it's a comforting place to be. People like you who come in to say hello and offer words of wisdom are priceless and I thank you for that!

---|__ (Janice getting off her soap box and walking !)

There is no talk right now about sentinel node, but we have a phone appointment with my surgeon on Wednesday. (I'm in Michigan and she is in Indiana..strange, I know, but I've been with her since she started practicing at Michigan State and then she moved to Goshen and I followed her!). I will ask her about it then.

I still have questions about the high nuclear grade vs. the architecture of the cells and the spread of the multifocal cells (did I say that right?) and how that affects the treatment decisions.

If you can think of other questions I should, please let me know what they are!
Thank you!!
Janice

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7167
   Posted 6/9/2009 6:10 PM (GMT -7)   
Dear Janice,
You're approaching this challenge with wisdom and common sense--learning what you need to know, and keeping a positive attitude. I'm sure it's a challenge to stay in the now, and not waste energy worrying about all the "what ifs". Your choice of a positive attitude allows your body to have all the energy and focus it needs to work with you and your doctors and move you towards healing.

You are a wonderful role model for all of us, (((((Janice)))))!
You know I join all your friends here in wishing you the very best experience and outcomes.
We're with you, and you just have to ask, and we'll do whatever we can for you!

Thanks again for all you did to help me through my surgery and recovery.
Heal well!
Denise

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/9/2009 6:24 PM (GMT -7)   
You make me smile Denise! I'm blessed and thankful for you and all the friends we have. Thank you for the beautiful note! (I'm still very concerned about your breathing though!!)

Janice

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7167
   Posted 6/10/2009 3:12 AM (GMT -7)   
Hi Janice,
Actually, my breathing is finally better. Although I had a bad bout of allergic asthma (requiring antibiotic and sadly, prednosone), since then my asthma has improved markedly. I'm being really careful about pollen exposure...staying in most of the time. I am venturing out for some afternoon activities, and so far things have been good.

There is no doubt that the surgery has made a HUGE difference in the health of my lungs. The past four years or so, they were in a constant state of inflammation, with lots of wheezing and large amounts of mucous. Whenever I'd get an allergic challenge, or a respiratory virus, I'd be thrown into a terrible asthmatic cycle.

Also, I'd always cough and wheeze after a large meal--especially when I ate too late at night. The next morning, I'd always be coughing my guts out. No more of that, thankfully.

I'm glad I had a good family doctor who kept nudging me towards the surgery. My asthma doctor also supported that route, and between the two of them, I finally found Healing Well, and got the courage to move forward.

Unfortunately, because of my allergies, I'm still on some pretty powerful inhaled steroids. The treatment I've received with inhaled and oral steroids, have caused adrenal insufficiency, so I'm experiencing some health issues due to that. After the allergy season, my doctors are going to try really hard to get my steroid exposure way down. I've got the thinning skin/bruising/tearing tht comes with it. My arms are covered with ugly bruises that are usually reserved for the elderly. Right now I have the skin of a 90 year old. My arms seem to be affected the worst. They're really ugly and embarassing.

I've been on allergy shots for probably close to 20 years. Although they help, they're not doing the job for me. I may end up trying the Xolair route, if I continue to struggle so much. My allergist is going to try to adjust my serum this winter. He hasn't been able to do it the past couple, because I've been in GERD related asthmatic challenges each time he was planning to try it.

Thanks, Janice, for your concern. You're very sweet.
Take care, and best of luck with your surgery.
Denise

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/12/2009 1:02 PM (GMT -7)   
Janice -
Just wanted to drop by and say howdy. Hope things are going well. I am getting better , so my thoughts and prayers are focusing on you more now. I am going to my first tournament with the softball team in almost a month. I hope I have the energy to keep up with those 13 year olds!
Take care my Friend,
Bill

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7167
   Posted 6/12/2009 3:15 PM (GMT -7)   
Hi Janice...
What a trooper Bill is, huh? I was thinking of you, and wondering how you're doing. Do you have a lot of pre-op appointments? Hopefully you're feeling well, and resting to get ready for your surgery.
Take care,
Denise

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/12/2009 6:26 PM (GMT -7)   
Denise & Bill, you are the best! Thank you for continuing to think of me and watching over me! Bill, we are so glad that you are home and getting better..you just continue to do that. Denise, seriously think about xolair, I remember them wanting to try that on me, but we tried another route; it is meant for the most complex situations and you fit that, so please think about it!
Hugs,
Janice

dencha
Forum Moderator


Date Joined Feb 2009
Total Posts : 7167
   Posted 6/12/2009 7:12 PM (GMT -7)   
Thanks, Janice. I am definitely considering it. The reality is that the shots aren't doing it. If it weren't for my severe allergies, my lungs would be so much better. I know that Xolair is meant for allergic asthma that is unresponsive to typical treatment.

What did you do to control your asthma? Did the surgery solve the problem for you? My allergy/asthma doc gave me a script for the blood test last fall, but then I opted for the surgery, so I didn't go in that direction. I just don't know why my allergies are so bad.

Anyway...hope all is well. Take care and thanks again, Janice, for your caring and concern.
Denise

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/18/2009 5:20 PM (GMT -7)   
Janice - Good luck tomorrow. You are, as always, in my thoughts and prayers. Take care my Friend. please keep us updated when you are ready to.
take care,
Bill
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 10:18 PM (GMT -7)
There are a total of 2,735,742 posts in 301,326 threads.
View Active Threads


Who's Online
This forum has 151429 registered members. Please welcome our newest member, terrance.
273 Guest(s), 7 Registered Member(s) are currently online.  Details
terrance, Scaredy Cat, Sheeks175, joavila92, Sarakt, puppylover, Peter A


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer