The other shoe has dropped.

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gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 8/24/2009 2:36 PM (GMT -7)   
Carolyn's numbers were up so they did another bone marrow test and found BC was active again.  No  more chemo but the dr is trying a hormonal drug and I don't know for sure what it is. 
 
Crazy day today I went to new dr and had sonogram on my gimpie leg to see if I had a blot clot.  Did not but radiologist said it was a Baker's cyst which can be from an injury or arthritis.
 
Chuck's mind is gone most of the time.  He knows us, but that is about all, he is not sure where he is and what he is doing.  He keeps talking about work related stuff or old Navy stuff.  We had a call to arms the other night.  It can sometimes be funny because he is so mixed up, but then sometimes it is so sad. 
 
Chris is needing to head home, so I am going to have Amy come back and get more help from Hospice people. 
 
Thanks for all prayers and support, MK 


LdyJane
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Date Joined Jun 2008
Total Posts : 903
   Posted 8/24/2009 3:17 PM (GMT -7)   
MK, sometimes it feels like there's just no end to the madness!, but you are surrounded by people who love you and care for you. My continued thoughts and prayers are with you.
Janice

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 8/24/2009 5:03 PM (GMT -7)   
Hi, MK... well, the good news is your gimpy leg is not life-threatening. When it rains it pours. I think we are going to need to start building you an ark! When my dad was so bad and they had him on demerol, he went back to his time in the service as well. I hope they get Carolyn's mets back under control. Think about you guys all the time.

Sending good thoughts your way.

Hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


Desertdreaming
Regular Member


Date Joined Jul 2003
Total Posts : 319
   Posted 8/24/2009 7:15 PM (GMT -7)   
Prayers and peace coming to you from SW Ohio
Annette
We have done enough "racing for the Cure"
 
 Just give us the cure already


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 8/25/2009 5:52 PM (GMT -7)   

MK, hopefully this is just a minor set back for Carolyn and nothing more. Sorry for all the problems you are going through, it is just too unfair. My thoughts and hugs are with you.

Lori



gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/27/2009 7:15 AM (GMT -7)   
The onc is looking for studies that Carolyn might be eligible for. She looks very tired and seems to be hurting more when she walks. Her bone mets are in the hips, too, just like her dad's. She drove here yesterday to tell Chris goodbye and see her dad. Meanwhile he continues to hallucinate and see things and people. Good anti-psychotic drugs work but take some time to kick in. He went to sleep about 10:30 last night and is still asleep after 9 this morning. I got a good night's sleep last night and Amy is here to help me so I expect a fairly good day. Thanks again for your love and support. Frank Sinatra's "That's Life" is running though my mind. MK


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 8/28/2009 3:49 AM (GMT -7)   
Dear MK... you know we're all there with you in spirit. Wish we could be there to help you out in person. We'd see that you were one pampered lady for a few days! Breakfast in bed, a facial at 10:00, massage and a nap at 2:00, and a mint and a rose on your pillow at night. Maybe we could fit in a manicure and a pedicure, too. Alas, I guess you'll just have to settle for a good night's sleep! And maybe our good thoughts will be fluffing your pillow at night.

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/28/2009 7:26 AM (GMT -7)   
All that sounds wonderful, but you are right, a good night's sleep would be best. I slept pretty well last night but poor Amy did not. Her room is nearer his and altho he had same medication that settled him the night before, last night it had him wound up. I don't know what we are going to do. He gets up and falls and thinks he is fixing stuff all the time, like he really used to do. Poor Amy. She said the dogs were raising cane, too. I didn't hear a thing. Oh my. How long can this go on? At least most of the time he is nice and not mean or obnoxious. Thanks for the hugs and love, I need them. Some back to you all. MK


mcjane
Regular Member


Date Joined Jun 2009
Total Posts : 285
   Posted 8/28/2009 10:07 AM (GMT -7)   

gma

Sometimes I wonder if life gives more than we can handle, yet somehow we seem to find strength to get through.

Saying prayers for relief for you and your family.

Bev

What a delightful post, even made me feel good.

 


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 8/28/2009 12:56 PM (GMT -7)   
Mk:  I am so sorry to hear all of this news. My computer has been dead for the past several weeks and just yesterday broke down and bought a laptop and got a new internet provider.
 
I am sorry to hear about your dd's recurrance. Hopefully there will  be some new clinical trials that can help her. What meds is she on for her hip pain. I personally have had to go to a stronger pain med for the hip and leg pain. I held off as long as I could but thank goodness they are available.
 
Please get as much hospice help as you can. You need your rest. I know that you get frustrated w/ Chuck and at the same time love him to pieces. Give yourself little breaks when you can...a quiet bath, a cup of coffee outside and listen to the birds.
 
Please know that we are all praying for each of you.,
 
Hugs
 
Debg
 


Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 8/31/2009 8:16 PM (GMT -7)   
MK, just finished reading your post. I'm so sorry to read about Carolyn. Sometimes, life is so incredibly unfair.

Right now, it seems like the news keeps getting worse and worse for you and your family.

Sounds like the idea of getting add'l hospice help is a good one. Is there any way that someone from hospice can help out at night? Sleep deprivation is a terrible thing, especially when you're already coping with so much.

I'm glad that your leg problem is manageable. Hopefully there will be a clincal trial or study which Carolyn can get into.

Now, if we can just find a way to take care of YOU long-distance. I find myself thinking about you often. I keep hoping that life will become easier for you.

Big hugs and many positive thoughts coming from me to you. Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/1/2009 6:26 AM (GMT -7)   
Luci, Hospice has been wonderful for helping in so many ways. The male nurse, Drew, is a little handicapped himself and he is so compassionate and caring about all of us. He suggested some different medications and they have worked to make Chuck sleep and help with his mind and seeing things. He has calmed down and has been almost normal at times, except for the pain and not being able to get around. Yesterday two aides came with Drew and right away they made some great helpful suggestions about a trapeze bar for over his bed and side rails for the commode to help him move better. All Hospice people sit and visit with me to hear all about Chuck from their last visit. His appetite has gone and now they are sending some meds to help perk it up, too. They are just wonderful.

Then I have Amy, the daughter of the friend who has been cleaning for me for several years now. She is great help and is here 24/7. I think she likes our country living. She does the runs to the store and other errands as well as helping me here. She spent one night all night with Chuck fighting fires aboard ship and she was "Mark". So you see she is good with him, too. Chris has come two different times, once for almost a week, then for almost two weeks. All the family and friends have been very supportive, so I am not having to work nor even handle too much stress anymore. Life is good. After all there are a lot of people much worse off than we are. Some people live their whole lives with terrible handicaps and illnesses. Some babies lose their mothers to the darn disease of breast cancer. As Chuck tells everyone, he has had a good life and he knows his time is coming and that's ok. He even jokes about a funeral.

Thanks for your concern. Love you all, MK


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 9/1/2009 6:55 AM (GMT -7)   
Dear MK...
As usual, you handle the hardest of situations with grace. You are so right, that life is good. But sometimes, it sure isn't fair.

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/2/2009 7:13 AM (GMT -7)   
Thanks for the nice comment, Bev. Last night the sleeping pill did not work so well, so this morning we are seeing people, blinds that are dripping of water. Chuck is living underground and I am on the second floor of a one floor home and just all sorts of things. He came out this morning for breakfast and I thought he had a good night's rest until he started telling me all these tales. Amy said he came into her room at 3 am wanting to know where I was and then went back to his room and yelled for the people to leave he wanted to go to sleep. I missed all that in the other end of the house. Some days are interesting to say the least. Have a great day. Hugs MK


babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 9/4/2009 4:00 PM (GMT -7)   
Oh MK!  I haven't logged on here is quite a while and just can't believe what you are going through.  You must be the strongest person in the world.  My thoughts are with you, Chuck and Carolyn, as well as everyone else who is affected by all that's going on.  I hope that things will make a turn for the better for ALL of you!
 
Much love and (((((((((((MK))))))))))))))!
L & H,
Kathy


techer78
Regular Member


Date Joined Jul 2003
Total Posts : 59
   Posted 9/4/2009 6:04 PM (GMT -7)   
MK,

Prayers, Love & Hugs heading your way.

Ann
I am somewhere where I don't know where I am.  Chemo brain strikes again!!!

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