The will to live and live fully!!!

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gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 9/26/2009 7:41 AM (GMT -7)   
My husband is feeling so much better with the drugs Hospice nurses have suggested and we have tried.  The change in him from a month ago is phenonmenal.  This week he insisted he wanted to go to a big constuction equipment auction and bid on a mini excavator for when he is able to work outside again.  Call it denial or whatever, he was determined to go.  On Tuesday my daughter and I took him to look at the equipment for sale.  Chris walked with him and his walker out into the grounds to see what he wanted to see.  He was totally worn out but happy as a lark.  Thursday I took him to the sale alone because Chris had gone back home.  A large golf cart took us from the parking lot to the equipment area so he could look some more.  We had a wheelchair which I intended to push him around in, but he intended to push me around.  Now this is where it gets ridiculous, a very thin gaunt man, bald from chemo, with bones eaten up by mets wants to push me weighing almost twice as much with perfectly good bones just no abdominal muscles.  We argued and he got furious because I would not let him push me.  I made a scene and embarrassed him.  Yeah right!  Everyone around was a stranger and not that many were interested in what we were doing, but they could see this terribly ill man arguing to push the fat lady in the chair.  Who do you think they agreed with if they even cared?  LOL
 
Anyhow we get to the auction part and before they get to the equipment he was so set on buying he was in such pain we had to come home.  A 55 mile drive one way to make him happy and he was so upset because he hurt too bad to stay.  Oh well the next auction is in December there and there are others in between.  He will find his excavator.
 
He is so sure another shot of radiation will fix his hip and he wanted to get it done.  On Hospice you cannot have treatment, but one time you can be discharged and have your treatment then be readmitted to Hospice.  So I called the PA at the oncology clinic and she agreed to talk to his doctor.  She called back last night and the dr agreed that a booster might help him with pain, so next week they will set up an appointment and we will go.  Chuck is so happy you would think a judge commuted a death sentence.  He is certain this will do it and he will be well again. 
 
Keep those prayers coming!!!!  Miracles do happen.
 
Hugs MK


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 9/26/2009 8:39 PM (GMT -7)   
MK, your post cracked me up and I love your sense of humor in this whole process. Way to go!

But as for hospice, I know they don't do treatment but if a radiation boost is for pain control, I'd think they do it with no question....of if the goal is to treat pain and not treat, I hope they oblige and offer as much help as possible.

Thank for the update and the smile, we're all rooting for you and Chuck!


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 9/27/2009 6:35 AM (GMT -7)   
Oh Yes, Hospice is agreeable to the treatment for sure. They are amazed at how well Chuck has come along. They will discharge him from Hospice and when the treatment is over readmit him. That is what Medicare requires, not Hospice necessarily. We have a wonderful group of Hospice caretakers! I can't praise them enough. Have a great day! Hugs. MK Our first meeting was in Cinci in May of 1999!


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 9/27/2009 5:41 PM (GMT -7)   
Mk, I'm so glad to hear things are going so well! That is just such terrific news! Will power is an incredible thing.

Thanks for letting us know!

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


Candy
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Date Joined Jul 2003
Total Posts : 1294
   Posted 10/3/2009 3:21 PM (GMT -7)   
(((((MK)))))),
 
I do not check in very often but I am to glad I did today.  Life fully lived with Chuck seems to agree (or disagree at times) with you both.  I am so happy he is having some good days and wants to get back into the life he knows and loves to live.
 
God's Blessings to you both,
 
Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 10/4/2009 8:47 AM (GMT -7)   
I guess I should come back and say the radiation did not help him any. He was so sure it would but yet it seems to have made him feel more pain. The day before we went for radiation he was in so much pain in his chest even the hospice nurse called 911. There were no signs that it was his heart but we wondered if the gall bladder had kicked up again. Seems neither was the problem. The ER doc said he felt it was the mets in the sternum causing the pain. So we came back home from the local hospital and got up and under way to FW at 7 the next morning for the radiation. The rads dr hit the sternum, the hip and a new place on the femur with the heavy duty one dose radiation. We got signed back into hospice so he could be helped by them again. He really seems to hurt a lot. Yesterday he was trying to remove a long screw and it took three times at least of lying back down in his bed and getting up to take a few more turns. I got him a laptop some time ago but he wanted a printer to use in his room, so we got that and he was trying to fit it to the desk three feet from his bed, so that was why he was trying to take out the screw. Now this is the guy who swears he is going to use a new shop to work on his farm machinery this winter. He met with the guy to close in the shop and insisted on giving him a check for half the amount. OK now where is the man? Haven't heard from him again. It's only been a week but he said he wasn't busy and could get to it right away. Grrrrrr If he had just listened to me and waited until he was feeling better. But no he wanted to be ready to go when he was feeling good. And Carolyn is just as stubborn. Things do not sound good with her, but don't tell her that. She had bloodwork done on Wed and they were to call her with tumor markers and liver enzymes. No call but she got a letter in the mail they were going to do another CT scan. Why the letter????? Why no call????? Chris will be back next week for another week. Bless her, she is such a big help. Amy is resting at home waiting until we need her again. Meanwhile I am trying to rest and not do too much. Hugs MK


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 10/5/2009 2:36 PM (GMT -7)   
MK, the load you are carrying... I don't how you keep from worrying yourself to death. You are so good at making like a duck and just letting it roll off your back! I think we're all doing enough worrying for you. Take care, and know we're thinking about you and sending good thoughts your direction.

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 10/7/2009 3:13 AM (GMT -7)   
Please don't worry for me. Worry doesn't help it only hurts you. One of my favorite quotes from the Bible and I am no scholar for sure goes something like this, God takes care of even the little sparrows. Another, everything works out for the best. Chuck is doing ok. His pain has not lessened, he still can't be out of bed for any length of time because he can't walk nor sit for very long.

OK I had the MRI on my knee. You know how everyone complains about the tech not telling you anything? Well the tech told me there was something there that was not just what the dr suspected, something else that might need to be taken care of soon. She said to make an appointment for my followup with the dr, but be sure they had a good phone number to call me if the dr needed to see me sooner. She said once the radiologist reads the MRI he may contact the dr and the dr may need to call. OK that's great, what could it possibly be? We know there is a Baker's cyst, we know the bursa is very tender to touch and the dr suspected a miniscular tear, but she said it was none of those, something new. The crazy part is that my knee is not hurting nearly as bad as it did. I told her that and she asked if I was babying it. Well, of course I am, I don't want it to hurt like it did before. The thing that keeps running in my mind is bone mets. Does an MRI show that? A blood clot way inside my knee? That would cause immediate concern. Who knows? But I am following my own advice and not worrying until I have something to worry about.

Our son showed up at the door Monday evening completely by surprise. He goes home tomorrow, so this morning we are meeting Carolyn and Erica and family that can be there for breakfast at IHOP. We have over an hour's travel to get there, Carolyn has chemo at 11 so we are meeting on her way to town. Erica has school and this was the only time we could all be together. Chuck most likely will want to stay home, and I worry about leaving him for so long. He will be ok if he doesn't do something stupid like decide to go outside and the dogs get out around him, which is easy for them to do. Three Hospice people were here yesterday at one time. It is not likely any of them will be back today.

OK it is 5 am and I woke up at 3 thinking of things I needed to remember before I leave this morning. They are done, so I decided to look at the computer. Mistake, huh? No more sleep this morning. I will go back and lie down now, tho.

Hugs MK


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 10/7/2009 3:33 PM (GMT -7)   
Mk, you know we're going to worry about you... just may as well get over it! You just handle what is thrown at you with such a level head... Let us know about that knee. As for the techs... I usually find that they say just as much as they can without stepping over the line.

Take care, lady.

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz

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