request your stories for an important project

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akdk
Regular Member


Date Joined Jul 2003
Total Posts : 149
   Posted 11/30/2004 11:28 AM (GMT -7)   
Hello Ladies,
I have received permission from Peter Waite to post this request.
I am co-authoring a book on Hereditary Breast and Ovarian Cancer.
It will act as a sort of guide book for individuals facing the prospect of genetic counseling and testing.
We are still looking for individuals to interview for this book. We hope to include many stories of people who have faced hereditary cancer.
We need to interview people who:
1. Have had cancer, tested for the BRACA 1 or 2 gene and received a negative result.
2. Have had cancer, with a strong family history and have decided NOT to have genetic testing.
Your story will be used only first name, only after a release is signed.
We are donating 20% of any proceeds to FORCE.
Thank you, for your interest and time..
 
Contact me at Alikenzi@comcast.net
 
Thanks, Kim
 
By the way I send all of you best wishes for the holiday!!!
Kim
"Life is what happens when you are making other plans"


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 11/30/2004 1:13 PM (GMT -7)   
Hi Kim, I don't think I qualify for your story. My daughter was diagnosed two years after I was, but that hardly qualifies for a strong family history. She seems to be doing as well as I am after having a mastectomy. Good luck with your project. Glad to see you are working with FORCE also. Hugs MK


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 11/30/2004 4:02 PM (GMT -7)   
Kim, I don't qualify for your project either. I was the first in my immediate family to be diagnosed with breast cancer, so there is no family history or reason to suspect genetic involvement. But, I wanted to wish you good luck. I think what you are doing is a great idea. Happy holidays to you, too. Hugs, Lauri

"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


akdk
Regular Member


Date Joined Jul 2003
Total Posts : 149
   Posted 12/2/2004 10:55 AM (GMT -7)   
Thanks ladies. MK if only 2 family members have had cancer that is enough of a genetic link to warrent consideration of genetic testing. Just in case you have ever thought of it.
Many decide not to test, I have interviewed numerous individuals who have decided that testing would not help and may in fact confuse family issues for them.
Many decide to test if they have children that may be affected.
I had a 2 family link, had cancer at 35 and tested gene negative.
Thanks again for letting me post here. We will let you know when the book comes out!
Hugs, Kim
Kim
"Life is what happens when you are making other plans"


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 12/2/2004 12:30 PM (GMT -7)   
I went to a genetics seminar and the counselor who held it listed a whole bunch of factors, like other cancers in family members. I talked to her one on one and she said my daughter would be the one to be tested if it was to be done, not me. Of course my daughter is not interested.................. I was not surprised. My son's daughter has two grandmothers with breast cancer diagnosis but her mother's doctors say that is not significant, altho her maternal grandmother was diagnosed at a younger age than I which is also a factor to be considered. At any rate I don't know of a story to tell other than the diagnosis age and prognosis at this time is great for both of us. Any you are a member of this board and can post here any time your heart desires. We are glad to have you. Hugs MK

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