Stage IV BC to Lymph nodes and small spot on Sacrum

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BCdaughter
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/22/2010 10:02 AM (GMT -7)   
My Mother was diagnosed with Stage IV BC to Lymph Notes and Sacrum - just wanted to get some similar diagnosis stories and what treatments worked?  Did everyone have their main cancer removed via lumpectomy/mastectomy?  Comments please, need support!

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 3/22/2010 8:30 PM (GMT -7)   
We've had members here who have lived for many years with Stage IV Breast Cancer. Treatments vary from person to person, depending on the specific properties of the cancer (ER/PR status, HER2NEU status, etc...), so to say what treatment "works" is not that simple; your mom just needs to find an oncologist she trusts. There is no "cure" for breast cancer. But even Stage IV can be very manageable, especially when mets are to the bones.
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


debbiR
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Date Joined Feb 2005
Total Posts : 730
   Posted 3/22/2010 9:13 PM (GMT -7)   
Hi. I am glad that you posted. I also have Stage IV bc, mets to the bone. A very small spot was found on my sacrum and after a biopsy, it was found to be the same cell as my bc.
 
I was first diagnosed w/ bc in 2001. I have a modified, radical mastectomy. I had 19 of 21 lymph nodes positive. I went thru 6 months of chemo and 36 radiation treatments. I was fine for a year and then one of my blood tests showed that there was cancer again. I am currently on a 6 week regiment of chemo. It is a very easy chemo and I have very few side affects. I will continue to be on this until it stops working (8 yrs so far and all is good). But there is another treatment waiting that has been proven to work.
 
it is very important for your mom to find an oncologist that she really trusts..one that feels he/she can help her. She can't be afraid to keep interviewing until she finds the right one. Have her make a list of questions. Take a small tape recorder if you have one and record the interview. Also, it is a great advantage if one or more persons go w/ her to the appointment. There will be so much info given that it takes more than one person to remember everything.
 
This is NOT a death sentence. She will have her ups and downs but it sounds as though she is going to have a wonderful support system. She has you, her daughter, that has taken the time to find us and ask questions. Don't hesitate to come back and ask anything that you want. No question is to silly to ask.
 
Sending prayers and lots of positive thoughts
 
Deb
 


BCdaughter
New Member


Date Joined Mar 2010
Total Posts : 2
   Posted 3/23/2010 5:59 AM (GMT -7)   
Thank you both very much for the response. She is ER/PR + and HER - Neg, which the Doctors say is a good thing. Found a good doctor who does not believe it is a death sentence in the city and says ladies live with this for a long time - I think we're going to go for a partial mastectomy w/axillary dissection and oophorectomy since no menapause yet. Have you had this? Any suggestions for a helpful recovery? Also, is Chemo just one kind or are there many kinds with different drugs? Are there many women you know who survive a long time with Stage IV/I am not sure if there are alot of people who have this or not. Thanks for all of the answers and support!!

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/26/2010 5:43 PM (GMT -7)   

I am glad to hear that your mom found an oncologist that she has faith in. That is very, very important.

There are many different types of chemo. It will all depend on what they find when they do the surgery as to what type your mom will receive. Make sure that the oncologist explains everything to your mom and whomever goes w/ her to the appointments.

The most important thing that your mom can do for her recovery is to (1) Rest and eat healthy foods  (2) when she is in the shower, have her gradually walk her fingers up the wall. She is not to do this and cause a great deal of pain. This is to keep the muscles loose and help her keep her arm mobile. (3) Don't lift anything heavier than a gal jug of milk.

You, as her family, can treat her like a princess for a few weeks. Don't let her do laundry or run the sweeper, etc. Make sure that she laughs but also understand that she may need some "me" time w/out anyone around. She may not want to talk on the phone or have company. Just respect her and try and go w/ her moods.

Hugs

Deb


 

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