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gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 3/24/2010 3:43 PM (GMT -7)   
Sunday when I was in KY I called Carolyn to check on her and she was having nose bleeds.  I told her she should call the Dr but of course she wouldn't until Monday morning.  They had her come in and her platelets were down to 26 from a normal of 130.  They gave her packed cells because they did not have her type of blood available.  Tuesday she went in and had two pints of blood.  Today she was to have chemo again and her while cells were non existant, she she did not have chemo and was sent home with Levaquin.  She's still being tough and going to work tomorrow.  Can you imagine?
 
Hugs to all,  MK


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 3/26/2010 1:01 PM (GMT -7)   
Oh, my gosh, MK, she sure is pushing herself hard. But then I can understand her desire to keep things as normal as possible, too. Glad she finally is getting some blood. This cannot be an easy place you are in! Nothing to do but send you big hugs back.

BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


debbiR
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Date Joined Feb 2005
Total Posts : 730
   Posted 3/26/2010 5:45 PM (GMT -7)   

Wow, MK, your dd certainly does take after her mother! She is really a fighter. I hope that she gets those counts up really soon.

Hugs

Deb


 


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 3/27/2010 3:33 PM (GMT -7)   
Carolyn's blood counts are worse and she is in the hospital. We spent yesterday afternoon with her. Her spirits are good as usual, and we all cut up and laughed and had a wonderful visit including a great nurses assistant who was funny and full of life. Today her counts were even lower in the areas they could get lower. Her white count is non existent, her platelets are now 17. Hemoglobin and red cells are falling now, too. She is on a special diet where she cannot have fresh fruits and veggies because of the possibility of bacteria. Last night she had Potassium IV running and another huge bag to follow. Erica talked to her on the phone and it sounded like she was more tired today, which certainly stands to reason. Tomorrow I will go to see her again. She is so opposed to being treated like she is sick. I tried to help her turn her dinner tray last night and she said,"I can do it, I am not an invalid". Oh dear! Of course the kids are very upset and it is hard for me to see them with such long faces.

Today we had the memorial service for Chuck knowing Carolyn was getting worse we had decided to do it this weekend, and it ended up she couldn't be here anyhow. It was a wonderful service prepared by the grandchildren with love and music. Todd's fiancee played her guitar and sang two songs, one was Amazing Grace. Christian played Taps as Todd spread the ashes in the wind out in the corner of the farm. I thanked God for my wonderful family children, grandchildren and greatgrandchildren. I am so blessed to have them. I don't think I will have Carolyn much longer but her children will be her legacy and they are special to me and all of the rest of the family.

Hugs to all MK


debbiR
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Date Joined Feb 2005
Total Posts : 730
   Posted 3/27/2010 7:29 PM (GMT -7)   

Oh MK, I am so sorry to hear this news. I was hoping that your next post would be that Carolyn had improved. I can't imagine what you are going thru right now, but please know that we all love you and are here to support you in whatever way that we can and that you need.

Don't give up hope. Carolyn is a fighter, like her parents, and she may beat this yet. Miracles happen every day. I will put her on my prayer chain here as well as on the internet. Please let us know how she is doing and also tell her that she has our prayers and strength being sent to her.

Chuck's  memorial service sounds so beautiful. You are indeed rich to have such a wonderful family.

Much love

Deb


 


postal2
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Date Joined Jul 2003
Total Posts : 1106
   Posted 3/28/2010 11:52 AM (GMT -7)   
MK my heart goes out to all of you. This is so much to deal with. As Deb said, you never know about Carolyn, she is one tough cookie. I will be praying for a big improvement and for her strength to come back.
I think Chuck's memorial sounds perfect. I am sure he is happy that you spread the ashes on the farm, a place he so loved.
Know that you are in my thoughts and prayers, and I love you.

{{{HUGS}}}

Gail
  Be the kind of woman that when you feet hit the floor in the morning,
                     
                                    The DEVIL say's,
 
                                "Oh crap!  She's up!!


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/29/2010 7:36 AM (GMT -7)   
Went to see Carolyn yesterday afternoon. Her counts were up a tiny bit and she told me she was going home tomorrow (today). Well, she can hope but I don't see it happening. Her doctor was to see her today. Her temp was up so they were going to do a culture when I left. She got platelets, blood and is still getting potassium IV. But, she is playing Scrabble with us on her laptop. When I asked her if there was anything I could make her or get for her, she didn't hesitate a second and said, "Hamloaf and corn pudding". So that is exactly what I will do today. Along with making rolls for her dear husband who is trying to finally see her doctor today. Hopefully we will know more. Caarolyn is the toughest cookie I know and the most stubborn. I told her she even beats her dad in that department and they certainly were cut of the same cloth.

Yes, Chuck's service was very special. Todd is in college studying for the ministry. Also I neglected to add that almost four year old Hailey sang a song she made up about rain at the ashes spreading. It was very hard to hear her because she is shy and sings and talks very softly. I think she is following in her uncle Christian's footsteps in being musical. She has made up three songs now, Rain, Butterflies and Fishies. She also sang with Sam and her guitar in the house.

Thanks for letting me talk this all out. It does help. I feel Carolyn's time is very limited and I have to be strong for the kids.

Hugs MK


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 3/30/2010 7:08 PM (GMT -7)   
MK, it must be so hard, knowing that your time with Carolyn is limited. And to have to be strong for everyone else when you have been through so much yourself lately. Maybe Carolyn takes after you as much as she does her dad!

You hang in there, and know that we are thinking of you.

Love and Hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


sdearing
Veteran Member


Date Joined Jul 2003
Total Posts : 700
   Posted 3/31/2010 7:47 AM (GMT -7)   

MK, My heart breaks to hear about Carolyn.  I pray for you daily, you have been through so much lately.  I'm glad you are so blessed by family and friends.  I just found out yesterday my Mother has cancer, not sure about any more than that, we have an appointment this coming Tuesday.  It's not breast cancer, at the time it's in her Uterus, but we don't know if it has spread. 

Sending hugs to you and I'll keep you and your family in my prayers.

L&H

Sara

 


Sara Dearing
 
Today is a gift, that's why they call it the present!


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/31/2010 4:53 PM (GMT -7)   
Sara, so sorry to hear about your Mom. Is she about my age? You know it is usually easier for old gals to accept cancer.

I sat and wrote a big long answer about Carolyn this morning on my netbook and somehow moved and erased it all. I spent yesterday afternoon with her and she was very upset that Erica and I had called the Drs nurse to see if she should be driving with her counts so low. Oh yes, the idiot dr sent her home. They did not do the culture, sent her home with a slight fever and still very low white cells, altho the red cells and platelets came up some after four pints of blood and a couple bags of packed cells. She came home with a very distended abdomen which looks something like mine, hurting so badly from the hardness and pressure. She called it edema, but the swelling in her legs went down some in the calf altho the thigh was still swollen. I asked if the dr had seen her abdomen before he released her and she said the nurses knew about it and told me about one nurse who tried to pull her out of bed hurting her even more. I asked again if the dr had examined her and found it. I don't think so, altho she wouldn't straight out say so. I told her several times she should not be in pain from this and she needed to call the office, so finally she did just before closing time. The dr was gone and the nurses didn't want to give her more diuretic because she already took some for high BP. So they set an appt for today at 11 for the Dr. They told her NOT to drive herself and then she went ballistic again on how everyone wants to tell her what to do and she was capable of making decisions herself. So I let her rant and rave and told her it was only because we love her that we care. I told her over and over to ask the Dr if she should drive. Then she started in on if she couldn't drive she couldn't work, so again I told her to ask the dr about working. Her appt was 11 am and she promised she would call and tell me about it. It is now 8 hours later and I have not heard one word from her. Needless to say I am really concerned, because I feel like the fluid is in the peritoneal cavity called ascites and it is much like pleural effusion in that it has to be drained and can carry cancer cells. So where is she? Getting more blood and cells, getting a paracentesis procedure? I am so afraid they have not called because she is so upset and having a meltdown. I'll let you know when I know something. I keep thinking about all our sisters here who have gone through this. Names avoid me sometimes, but I am thinking of a young woman from MO who traveled and camped with her husband but her problem was in the pleural cavitiy. More later.


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 4/1/2010 12:27 PM (GMT -7)   
MK, I am so sorry everything is such a mess. I am sure that Carolyn is scared, even with her toughness, and having a hard time being strong. She must feel that everything is getting totally out of her control, and I am sure she doesn't like that, nobody does. {{{{MK}}}} you are such a good mom and I know this has got to be very hard for you.
I remember the woman you are talking about, but can't remember her name either. It wasn't a "Betty" was it? I can't remember if we had more than one Betty or not....

I hope you hear something soon. We are all praying for Carolyn and all of you.

Love,
Gail
  Be the kind of woman that when you feet hit the floor in the morning,
                     
                                    The DEVIL say's,
 
                                "Oh crap!  She's up!!


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 4/2/2010 6:31 AM (GMT -7)   
MK, like everyone here, I feel for you having to go through this. It's been a tough year looking back for you. I'm so glad that you have so much family and love around, during Chuck's memorial and each week. It must be so difficult to see your daughter going through this, plus her wanting to be in control. She's angry, probably, about all this and her reactions are the only control she has over this crappy disease. While it's hard on everyone, it probably gives her just that extra fight. God love her, and you MK. Please take care of yourself and write when you can. (((((MK))))) Love, Lauré
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 4/2/2010 3:04 PM (GMT -7)   
MK, I hope you have heard from Carolyn by now.  It was Cheryl, with the pleural effusion.  She was a really sweet gal.  I had lunch with her when I went back to KC a couple of times before we lost her.  She and her husband traveled all over the place!  She had a daughter who went to school in Arizona(?).  Gosh, we've lost a lot of friends, haven't we.  I remember pulling up the pics we had taken in St Louis, about five years after, and about 1/4 of the group was gone.  The cost of this disease... and then, I think about how lucky we are to have known so many of those women!  And they never would have been a part of my life if I hadn't had this disease.  I guess that is the silver lining of this black cloud!
 
Take care.  You know we are all thinking of you, and Carolyn and the rest of her family, too.
 
Love and hugs...
BEV 
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 4/5/2010 11:32 AM (GMT -7)   
Well, today Carolyn was going to go to work. Her distended abdomen is down some and the fluid is out of her legs but she still does not feel very well and eating is difficult. We had an easy Easter dinner, grilled steaks, baked potatoes, creamed asparagus on toast, corn and some homemade desserts that she especially likes. She ate hearty on the asparagus, had a little potato and hardly any steak and she felt full and later said she felt so full she thought she might throw up. I brought home the pie I took. Just what I need, lol. Anyhow she had Erica cut her hair very short because it is falling out. She was on chemo a whole year and did not lose it, but the dr stopped it when it wasn't effective on the bone marrow. Then he gave her that last week to see if it would help the liver mets. One treatment and her hair is falling out. Don't know if they will give her any more her white blood count is up to a whole 2, but red cells and platelets are up some. She is, as usual, doing "just fine", her words not mine. And she made sure I had heard the dr gave her an ok to drive. I said, ok, but that does not change my opinion.

I remembered Cherlynn Reese's name a few hours after I posted. She was a real sweetheart as so many of our friends are.

hugs, mk


lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 4/8/2010 3:20 PM (GMT -7)   
Well I must say, I am so sorry to hear all this. I have not come here for a while and it seems just awful things are happening to everyone. Sara I am so sorry about you mom. Please let us know what they said. I think of you often. Mk I can not believe this is happening to you. I am sorry I did not check in sooner and I feel just awful that I have not contacted you. I hope you eat every bit of that pie....I hear that is a great stress reliever. Anyone says anything to you, tell them Dr. Lemon said it was ok. I am so sorry. Love and hugs, Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 4/9/2010 12:53 PM (GMT -7)   
As usual, Joyce, Carolyn is being strong. The onc told her that her markers are down so something is working and he doesn't want to give in, sooooo the plan for next week is a half dose of chemo followed by a bag of platelets. She worked all day yesterday. She is so tough! Poor daughter Erica is struggling with her momma and both of her husbands grandmothers are in bad situations, too. One with lung problems, the other just dx with pancreatic cancer. Erica has her hands full with two young ones and going to college full time. She's tough, too.

I'm in KY for another wedding shower this weekend. May, June and July weddings.

love hugs and all, mk



Post Edited (gma) : 4/9/2010 1:56:42 PM (GMT-6)


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 4/11/2010 10:02 AM (GMT -7)   

MK, I can hardly believe all this...I don't check HW that much anymore but I am sorry to hear about Carolyn's status. I know you must be hurting so bad now, but at least take comfort in the fact that she is living her life the way she wants to live it, she is in control. And that will be her legacy too, living with cancer with dignitydon and will. This reminds me of our dear Juliejar, who's father passed shortly after she did, so much for the family to bear...it sure seems that you have an amazingly strong family for supports.

And yes, it was Cherilyn who lived for such a long time with Stage IV, traveling here and there, defying the odds. Some amazing women we've known!

Sending hugs and prayers your way, MK....don't forget to take care of yourself along the way too.

 

L&H,

Lori


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