Well, I really have no news....

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Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 1/17/2005 7:59 PM (GMT -7)   
Today was my appt. with the internist to get the results of all of the scans I had last week.  Before we talked about the results I had to give in another urine sample.  So, here's the latest, the scans are all clear, no renal or abdominal masses.  The urinalysis (sp) showed blood in the urine once again.  I finished the second course of antibiotics last Thurs. 
 
So the dr. said he's sending me to a urologist for a cystoscope.  I said "NOT"!!!  I decided last week after the last test that I was not having one more thing done to me.  I'm exhausted physically and emotionally and can't bear the thought of one more person touching me or poking me.  I think the dr. was surprised when I said "not," but that's my decision and I'll live with it.
 
DH has a urologist in NY who follows him because of prostate problems.  I'm going to collect all of the results from all of the tests and take them with me when we go East for DFIL's 90th birthday.  Barry will call the urologist tomorrow and get an appt. for me.  If it means staying a couple of extra days that's what we'll do. 
 
I've decided I don't know the drs. here well enough to just say OK to every little thing they suggest.  It's bad enough that the cardiologist who did my angiogram never dictated a report.  So I've never gotten any results, officially or otherwise about that either.  Today I spent 2 hours in the internist's office.  Of that 2 hours I spoke to him for maybe 5 mins. in total.  He left the room and was supposed to come back in, but never did.  So I put on my coat, walked to his nurses' area and said "I'm leaving now; 2 hours in my limit."  Then I said,  "and you all shouldn't want me to BE here longer than 2 hours."  Well, it was like I suggested that they walk down main street naked - dead silence.  I asked them to give me the copies of the reports I had requested and left.  And that was the end of that.
 
The dr. got a little annoyed when he was with me because I had a list of ???'s.  He told me I was too fast for him.  Well, he doesn't know about this board and how much I learned here.  I guess he's used to patients coming in and saying, "yes, dr"  and "thank you, dr. for making me wait 2 hrs."  Well, my time is valuable and there is a limit to how much of it I'm willing to waste.  A dr's office is definitely not my first choice.  Gosh, can you tell I'm disgusted??? Lordy, what's happening to me?? I think I'm becoming a cranky old crone.  I keep asking G-d to give me patience and find good in all of the morons I've encountered during the past month, but so far it's been "no dice, Nevada."  So, my friends, if you've got some extra kindness to spare send it my way, because I'm scraping the bottom of my compassion barrel.  Luci 
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 1/17/2005 10:58 PM (GMT -7)   
Well, I'm like you, Luci. My kindness barrel is touching bottom but you're welcome to what little I have left. I'm not real sure how to fill that barrel back up.
 
There is absolutely no excuse for ANY doctor to keep you waiting for 2 hours. You had every right to protest and I'm glad you did. If you cannot have faith in a dr, it's time to find another. I think it's sad that you won't feel comfortable with this until you go back to NY.
 
I'm sending warm hugs and big-time prayers your way.
 
Love You, Jo-Ann
 
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 1/18/2005 6:01 AM (GMT -7)   
Good Morning Luci:
 
I find it comforting that we have given each other the will to fight for ourselves.  I am proud that you stood up and defended yourself.  I do hope that you find doctors closer to you that you can trust. 
 
Just a quick question....did they look for kidney stones?  I have kidney stones as does many family members here and we seem to suffer from a lot of UTI's and blood in our urine.
 
So thankful that all of your scans are clear.  I will pray that your barrel fills again (yours too Jo-Ann).  They are not so empty as you feel right now.  Otherwise you would not be able to be in the board. 
 
Much love and many hugs to you,
 
Candy

Many Blessings for the New Year

 

 

Life may not be the party

 we hoped for,

but while we are here we might as

well dance.
   


sdearing
Veteran Member


Date Joined Jul 2003
Total Posts : 700
   Posted 1/18/2005 6:07 AM (GMT -7)   
{{Luci}} I am so sorry that you are going through all this. As far as compassion, you and JoAnn will never be without that. You both are sweet dear people that always have encouraging words for everyone, so I am sure you have another barrel tucked away somewhere. Sending hugs and prayers your way.


L&H
Sara
Sara Dearing
 
Today is a gift, that's why they call it the present!


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 1/18/2005 6:57 AM (GMT -7)   
Hooray for clear scans, that is a major hurdle! And here's some extra hugs for your frustrations....and pat yourself on the back for advocating for yourself once again. You GO girl!

L&H,
Lori


lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 1/18/2005 7:53 AM (GMT -7)   
Luci, I am so proud of you. I really do believe more people need to speak up. I sure hope you find your answer soon. This is just so sad that we have to go through all of this. L&H Joyce
People are like tea bags, you have to put them in hot water to see how  strong they are!
 
 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 1/18/2005 8:12 AM (GMT -7)   
YOu know, Luci, if more people had the guts to do what you did, none of us would have to spend so much time in the doctor's office. I actually feel guilty if my doctor spends a little extra time talking to me, knowing someone is out there in the waiting room looking at their watch. Maybe they schedule too many patients in a shortened day. My PCP has cut her practice and only takes on new patients when she has space. Usually she is good about getting you in and out, especially if you have an early morning appointment, which I always aim for. LOL.

I think it is a great idea for you to take your records to Barry's doctor and get his take on all of it. Let us know when that appointment is and we will be there for you.

And I very much agree with Sara, you have plenty of encouring words and love, don't worry about that barrel being empty, it will be filled quickly.

Love, MK


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 1/18/2005 11:56 AM (GMT -7)   
{{{{Luci}}}}} Good grief! What an awful experience. I agree Drs need to spread the appts out an allow enough time for each patient AND so no one has to wait a long time! 2 hrs is ridiculous! The cardiologist didn't dictate his findings? What did he do with them? They just don't seem to realize or maybe care, what they put patients through. I hope you find a Dr in NV that you really like and feel comfortable with. Enjoy your trip to NY sweetie, and let us know what the Dr there says. As for your and Jo-Ann's barrells, you are two of the most compassionate and caring friends I know or you wouldn't be on this board. You take care and I will see you in NY! L&H, Gail
 It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.   Elisabeth Kubler Ross


DiVanDyke
Veteran Member


Date Joined Jul 2003
Total Posts : 734
   Posted 1/18/2005 6:03 PM (GMT -7)   
Luci,
Adding my hugs to you. Congratulations on the clean scans, first of all. I know what you mean about finding strength from this board. I will assert myself in ways that I never would have before much to the dismay of several doctors. What book was that in where the patient who was kept waiting took the doctors tongue depressers and cotton balls and made little people out of them for her daughter who was with her. She was never kept waiting again.
Finding a doctor you have confidence in is worth traveling anywhere for. Love you, Di

ardee
Veteran Member


Date Joined Sep 2003
Total Posts : 854
   Posted 1/18/2005 7:59 PM (GMT -7)   
Luci,
 
I'm proud of the way you handled the doctor situation.  I'm finding my own voice the longer I'm on this board, and it feels good!
 
Hurray for clean scans, tests, etc.  The kidney stones sound like a possibility.  I have a friend who suffers from them even though he watches his diet and weight almost religiously.  He usually has blood in his urine because of them. 
 
Hope they find out what's going on, and can treat it easilly.
 
L&H,
Rita


grandmaro
Regular Member


Date Joined Aug 2003
Total Posts : 106
   Posted 1/19/2005 9:39 PM (GMT -7)   
Luci,
I just saw your post. First of all, let me say how sorry I am that you are going through all this. But also, one of the reasons I was on the board again was to check and see if anyone ever had urinary problems. It seems I had a UTI, but after the antibiotics, there are still leucocytes, and I am having a tremendous amount of pressure. I saw onc last week for my routine workup, and he felt perhaps it was atrophic vaginitis due to lack of estrogen. I'm supposed to see my gyn next month, but may call her earlier. I'm kind of lost as to what to do. The original urinalysis did show trace blood in the urine. I've kind of just been putting up with this because I dread the though of going through tests and I'm not even sure who I need to see--urologist, oncologist, gynecologist? Well, as we know, if it's not one thing, it's another. I hope you are okay--please keep us informed--and if you have any advice, I'd love it.
Hugs,
Rozanne


kmonke
Regular Member


Date Joined Jul 2003
Total Posts : 352
   Posted 1/23/2005 8:00 PM (GMT -7)   

How ironic.  I haven't posted in quite some time and come on here to see others having UTI's.  I am on antibiotics for the 3rd time since September and my internist has decided I need to see a urologist also.  I am not keen on it, but am really tired of having this every other month also.  I had blood in my urine a week before I could get in to the Dr, but she said still had quite a few white blood cells showing.  She is feeling it may be tipped bladder or some thing causing the bladder to not completely empty because I feel constant pressure.

Will keep in touch with all of you and keep you all in my thoughts and prayers.

Love, Kitty

 


grandmaro
Regular Member


Date Joined Aug 2003
Total Posts : 106
   Posted 1/24/2005 9:05 AM (GMT -7)   

Kitty, I am sorry to hear you are going thru this also. I'm still in a state of flux. Waiting for results of one more urinalysis and then trying to decide what to do. Sounds like there are a few of us out there having problems. Please keep me posted on your progress. I'll let you know when I have any new info.

Rozanne



Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 1/24/2005 11:12 AM (GMT -7)   
Ro, I wanted to send you an email and it's been returned. Can you send me your new one?? Thanks, Luci

Kitty, Hang in there, we're tough, right!!!
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus

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