Hi Frayda. I am so, so sorry to hear that your mom has ov ca. She has been through so much. I am sending good thoughts and strong prayers, her way. Blessings.
Frayda--I have ovarian cancer. Two immediate ideas I had were for you to join two boards that I use which are very helpful. We have people who post there for mothers so you will be at home. One is Hyster Sisters, which has a Cancer Concerns board. The other is at acor.org. This is a list-server where you receive updates once or twice a day listing posts and then the posts, or you can read off the site if you prefer. There is a 1300 person ovarian list. We discuss every topic imaginable, from the newly diagnosed "what do I do" to those who have chosen Hospice. Both boards are free to join and will be helpful.
Do you know what type of ovarian cancer your mother has? 80% is epithelial cell, which is what Ihave. If it is epithelial, the standard treatment is 6 cycles, three weeks apart, of Taxol and Carboplatin. Some doctors may add a third drug (such as Doxil or Gemzar) or go to 8 weeks.
Most women respond very well to the treatment. They get remission.
Even if mom is stage 3 or 4, where 70% are diagnosed, there is good hope for her. Ovarian tends to recur and be considered more "chronic" than curable at those stages. I will have had it four years on 3/28. I have stage 3C. My initial treatment got me 9 months of remission; the second treatment got me almost six. Since late August of 2003, except for one month of a Tamoxifen trial (failure) and now one month off to see what happens (Gemzar worked wonderfully and then seems to have failed me) I have been on chemo. My life is great and I've turned into a big activist for awareness.
There are two websites to which I will direct you--they have excellent information on them.
Ovarian Cancer National Alliance: www.ovariancancer.org
National Ovarian Cancer Coalition: www.ovarian.org
If you have more questions, please feel free to e-mail me. My "fun" e-mail I don't mind giving out is: firstname.lastname@example.org
It's a very frightening diagnosis but the women on the two boards will be very helpful and the information from OCNA and NOCC will be helpful.
Johns Hopkins and MD Anderson also have excellent information on ovarian cancer.
Ellen--living proof you can live with ovarian cancer.
So sorry about your mother's test results and dx. I will have both of you in my prayers. She sounds like a fighter. Hopefully she and you will stay strong.
"Ellen" sounds very knowledgable and helpful. Isn't it wonderful what on-line help is available to us all for all types of concerns.
Hugs to you. Hang in there and please keep us up-dated.
Many Blessings for the New Year
Life may not be the party
we hoped for,
but while we are here we might as
I'm sorry your mom is having to deal with this, especially after all she's been through. Sending prayers for successful treatment.
I haven't been on the board in ages, and I was thinking about you just this morning. I was shocked to see your post. I'm so sorry to hear this news. Even though your mom is in Florida, I'm sure you will be a tremendous support to her. Please know she is in my prayers.
Love and hugs,
(((Frayda))), I'm so sorry to read this news. I kept hoping that things would turn out otherwise. Your Mom has been through so much already, it makes one wonder about the unfairness of life.
I'm going to look only forward to good results for your Mom's chemotherapy. Sending giant hugs and serious prayers for your Mom and for YOU. Luci
So sorry to hear this latest news for your Mom....I will keep her in my thoughts and prayers during this difficult time...
Hugs my friend...
Frayda, I just saw the post about the good prognosis for your mom. What good news! I'll continue to keep you both in my prayers.