The preliminary reports are in: my mom has ovarian cancer.

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Frayda
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Date Joined Aug 2003
Total Posts : 248
   Posted 1/19/2005 11:43 AM (GMT -7)   
We don't know any details yet. The doctor just told my mom she would be having chemo. She had bc twice (12/7), bladder cancer last year and now this. This disease s#*ks! She has other medical problems due to diabetes, so I know this won't be easy.  I will try to talk to her doctors and get more info.  I am sure they are used to dealing with distant children in Florida. Anyone with some info on ovarian cancer treatments? Please keep her in your prayers. Thanks! Frayda

postal2
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   Posted 1/19/2005 12:02 PM (GMT -7)   
Frayda I am so sorry to hear this. I will keep your mother and you in my prayers sweetie. I can't help with any info, sorry, but I am giving you a big {{{{{{{{{HUG}}}}}}}}}. L&H, Gail
 It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.   Elisabeth Kubler Ross


gma
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   Posted 1/19/2005 12:22 PM (GMT -7)   
Oh Frayda, I am so sorry to hear your mother is havingto deal with cancer yet again. How old is your mother? I bet she could be about my age, 66? I can't imagine having been through bc 2x, bladder cancer and now this. I will keep you all in my prayers. Yes indeed this darnable disease is a scourage. I wish we could eradicate all forms of it. Just think if the concerntration and money were being spent on medical research instead of being sent to find WMD and terrorists, how much good it would do the world. Hugs MK


sdearing
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   Posted 1/19/2005 12:34 PM (GMT -7)   
Frayda, I am so sorry to hear this. What a trooper she has already been! Enough is enough!! I will keep your mother as well as you in my prayers. Please keep us informed. In the meantime I will send you gentle hugs and lots of prayers!

L&H
Sara
Sara Dearing
 
Today is a gift, that's why they call it the present!


Cindy802
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Date Joined Dec 2004
Total Posts : 70
   Posted 1/19/2005 2:42 PM (GMT -7)   

Hi Frayda. I am so, so sorry to hear that your mom has ov ca. She has been through so much. I am sending good thoughts and strong prayers, her way. Blessings.

Cindy


Breast cancer has become an epidemic. After all of the these years and billions of dollars donated for research...WHERE IS THE CURE???

Margaret321
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Date Joined Jan 2004
Total Posts : 21
   Posted 1/19/2005 3:47 PM (GMT -7)   

Frayda--I have ovarian cancer.  Two immediate ideas I had were for you to join two boards that I use which are very helpful.  We have people who post there for mothers so you will be at home.  One is Hyster Sisters, which has a Cancer Concerns board.  The other is at acor.org.  This is a list-server where you receive updates once or twice a day listing posts and then the posts, or you can read off the site if you prefer.  There is a 1300 person ovarian list.  We discuss every topic imaginable, from the newly diagnosed "what do I do" to those who have chosen Hospice.  Both boards are free to join and will be helpful.

Do you know what type of ovarian cancer your mother has?  80% is epithelial cell, which is what Ihave.  If it is epithelial, the standard treatment is 6 cycles, three weeks apart, of Taxol and Carboplatin.  Some doctors may add a third drug (such as Doxil or Gemzar) or go to 8 weeks.

Most women respond very well to the treatment.  They get remission.

Even if mom is stage 3 or 4, where 70% are diagnosed, there is good hope for her.  Ovarian tends to recur and be considered more "chronic" than curable at those stages.  I will have had it four years on 3/28.  I have stage 3C.  My initial treatment got me 9 months of remission; the second treatment got me almost six.  Since late August of 2003, except for one month of a Tamoxifen trial (failure) and now one month off to see what happens (Gemzar worked wonderfully and then seems to have failed me) I have been on chemo.  My life is great and I've turned into a big activist for awareness.

There are two websites to which I will direct you--they have excellent information on them.

Ovarian Cancer National Alliance:  www.ovariancancer.org

National Ovarian Cancer Coalition:  www.ovarian.org

If you have more questions, please feel free to e-mail me.  My "fun" e-mail I don't mind giving out is:  hotpantsdotsie@hotmail.com

It's a very frightening diagnosis but the women on the two boards will be very helpful and the information from OCNA and NOCC will be helpful. 

Johns Hopkins and MD Anderson also have excellent information on ovarian cancer.

Ellen--living proof you can live with ovarian cancer.

 

 

 

 


lemonz
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Date Joined Jul 2003
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   Posted 1/19/2005 5:16 PM (GMT -7)   
Sorry to hear about your mom. I have to admit I find working with hospitals in Florida very easy. I have been overseeing my uncle from long distance. They will co-operate in ways you would never get from any hospital in this area. In this area you have to sign papers for your husband to find out anything. So its a wonderful relief to find out how nice they are about it. I will keep her in my prayers. What an amazing woman. L&H Joyce
People are like tea bags, you have to put them in hot water to see how  strong they are!
 
 


Candy
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Date Joined Jul 2003
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   Posted 1/19/2005 5:25 PM (GMT -7)   

Frayda:

So sorry about your mother's test results and dx.  I will have both of you in my prayers.  She sounds like a fighter.  Hopefully she and you will stay strong.

"Ellen" sounds very knowledgable and helpful.  Isn't it wonderful what on-line help is available to us all for all types of concerns.

Hugs to you.  Hang in there and please keep us up-dated.

Hugs,

 

Candy



Many Blessings for the New Year

 

 

Life may not be the party

 we hoped for,

but while we are here we might as

well dance.
   


DiVanDyke
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Date Joined Jul 2003
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   Posted 1/19/2005 5:35 PM (GMT -7)   
Frayda,
I am so sorry. I will keep you all in my prayers. It proves to me again that cancer is genetic. It has nothing to do with what we do or have done to take care of ourselves. I've had bc twice and a hysterectomy for cervical cancer. It was the beginning of it. Yes, Ellen sounds so knowledgeable and helpful. Please let us know how she is doing. We love you. Di

jaaustin
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Date Joined Jul 2003
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   Posted 1/19/2005 8:00 PM (GMT -7)   

Frayda,

I'm sorry your mom is having to deal with this, especially after all she's been through. Sending prayers for successful treatment.

Hugs,

Julie


Do not go gentle into that goodnight,
Rage, rage against the dying of the light.
~Dylan Thomas


grandmaro
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Date Joined Aug 2003
Total Posts : 106
   Posted 1/19/2005 9:22 PM (GMT -7)   

Frayda,

I haven't been on the board in ages, and I was thinking about you just this morning. I was shocked to see your post. I'm so sorry to hear this news. Even though your mom is in Florida, I'm sure you will be a tremendous support to her. Please know she is in my prayers.

Love and hugs,

Rozanne



MNlady13
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Date Joined Jul 2003
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   Posted 1/19/2005 10:06 PM (GMT -7)   
Frayda, all I can do is add my good wishes and prayers for your mother. She obviously is a fighter. So sorry that she has to do battle with cancer yet again. Hugs, Lauri

"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


Frayda
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Date Joined Aug 2003
Total Posts : 248
   Posted 1/20/2005 5:33 AM (GMT -7)   
Thank you all! She has certainly been through a lot these past few years. Now at 75 she's feeling somewhat defeated, but she is used to following "doctor's orders" so I think she will rally this time, too. Thank you for your help, Ellen. I have checked out 2 of those websites and found valuble info. I wanted to be as informed as possible when I hopefully speak to her doctor later today. I'll keep you posted. You gals are terrific! L&H, Frayda

Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 1/20/2005 6:28 AM (GMT -7)   
Frayda-
SOrry for this latest battle that you will face together, and no doubt, your informed nature will be a giant asset to your mom. And I bet it will help you cope, to get your hands on as much information as possible.
Hang in there, and we'll be there with you!
Lori


Luci
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   Posted 1/20/2005 8:12 AM (GMT -7)   

(((Frayda))), I'm so sorry to read this news.  I kept hoping that things would turn out otherwise.  Your Mom has been through so much already, it makes one wonder about the unfairness of life.

I'm going to look only forward to good results for your Mom's chemotherapy.  Sending giant hugs and serious prayers for your Mom and for YOU.  Luci


In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 1/20/2005 8:17 AM (GMT -7)   
Frayda I was thinking, as I was reading all these posts.. some for a second time, that your mother is a SURVIVOR in every sense of the word. Please give her our love and tell her we all are holding her hands as she goes through this all again. Hugs MK


ardee
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Date Joined Sep 2003
Total Posts : 854
   Posted 1/20/2005 11:40 AM (GMT -7)   
Frayda,

I'm so sorry for you and your mom. What an inspiration she is, tho! Battling any type of cancer is hardly easy, but to go through this for the fourth time is amazing. Her cancer may be genetic, but so is the strength in both of you. You're both in my prayers.

L&H<
Rita


Ynkefan31
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Date Joined Jul 2003
Total Posts : 586
   Posted 1/21/2005 4:50 AM (GMT -7)   
Frayda. So sorry you mom has gotten yet another cancer diagnosis. I will keep Her and your family in my prayers.
Sending strengthening hugs your way.
VICKY
YYYYYY


Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 1/21/2005 6:05 AM (GMT -7)   
Well ladies, all your prayers have helped! The cancer is not ovarian but a low grade peritoneal adenocarcinoma which her doctor says is a very slow growing cancer that is very responsive to chemo.  I asked her doctor to fax me the path report and I will consult my onc at Sloan Kettering, but this seems to be a best case scenerio. Hugs to all of you! Frayda

Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 1/21/2005 6:28 AM (GMT -7)   
Wow, what a gift! Great news, Frayda! Hooray for slow growing cancers that are responsive to chemo! This must be a big relief!

L&H,
Lori


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 1/21/2005 7:49 AM (GMT -7)   
That is reallly great news! As I said yesterday, your mother wears the survivor banner as well as anyone can. Keep us posted. Hugs MK


Cathi
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Date Joined Jul 2003
Total Posts : 702
   Posted 1/21/2005 11:10 AM (GMT -7)   

Dear Frayda

So sorry to hear this latest news for your Mom....I will keep her in my thoughts and prayers during this difficult time...

Hugs my friend...

Cathi

 

 

 

 


Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....


Glynne
New Member


Date Joined Jul 2004
Total Posts : 5
   Posted 1/21/2005 6:35 PM (GMT -7)   
Hi Frayda.  I am an ovarian cancer survivor.  I read Ellen's message, and she gave you some really great information.  Ellen and I are friends, through the computer.   We met on iVillage.  I see that your most recent post shows that your mom has peritoneal cancer.  This is treated the same way as ovarian cancer.
 
Do you know when she will start chemo?  Does your mom live in FL?  Where in FL?  I live in South FL.
 
I was diagnosed in June 2001, and was treated with Taxol/Carbo for 6 treatments.  I've been cancer free ever since. 
 
If you would like to join an ovarian cancer chat, we have one on Tuesday nights at 9pm on ivillage health board for ovarian cancer.
 
Regards, Glynne
 
P.S.  Hi ladies!!!

grandmaro
Regular Member


Date Joined Aug 2003
Total Posts : 106
   Posted 1/22/2005 10:52 AM (GMT -7)   

Frayda, I just saw the post about the good prognosis for your mom. What good news! I'll continue to keep you both in my prayers.

Hugs,

Rozanne



Bluize
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Date Joined Mar 2005
Total Posts : 635
   Posted 3/29/2005 3:01 PM (GMT -7)   
Frayda,

I wish your mom a successful treatment and give lots of hugs.
Susan

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