Radial scar.... anyone else have?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

-m1-
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/19/2011 11:17 AM (GMT -6)   
Hi All.

I did a search on the forum prior to posting, but nothing came up regarding breast disease/breast cancer.

I am 43 years old. Had an abnormal mammo in late December and was called back in for additional films. Those came back abnormal too.... microcalcification cluster in the left breast. Was immediately scheduled for a vacuum assisted stereotactic biopsy which I had performed last Thursday, Jan. 13th, and titanium marker was installed. The stereotactic sucked because the area was close to the nipple and the probe overshot and exited out the bottom of the breast. So now I have an 8 guage "through and through" tunnel in that breast with an exit wound as well as the entry. Grrrr. I've been pierced like a punk rocker. Where is my jewelry???? tongue

Radiologist expedited the path on it. My dingbat ob\gyn doctor called me Friday night with the results... all is fine. Calcifications were benign. Nothing to worry about, we will just stick with yearly mammo's to keep an eye on everything.

Last night at 5:30pm she basically calls me back and says "ooops. There was a part at the end of the report where the radiologist is insisting you have a surgical consult due to radial scar tissue found in the biopsies. Sorry about that." I asked her why I need a surgical consult if it was benign and she said she didn't know. Basically, she gave me results on Friday without reading the entire report, and it wasn't until the RADIOLOGIST followed up with her to make sure I was scheduled for a surge consult that she actually read the FULL report and then had to call me back with the news.

Still, she didn't have a single answer to any of my questions. I've had more informative conversations with my Pit Bull\ Boxer mix. rolleyes

I've done some googling and read that radial scars can "hide" cancer cells. Has any of you wonderful ladies on this board had anything like that in your initial DX? I would love any information you could share, since it's obvious I wont be getting any answers from a medical professional until I can get into this surgeon guy for my consult.

Thanks so much!

m1

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 1/20/2011 9:24 AM (GMT -6)   
Not  familiar with that, but I can see where scar tissue could hide cancer cells.  Sounds like your whole procedure and report were one big, hot mess!  I hope the surgeon they refer you to is more helpful than this bunch has been.  You might consider a second opinion. 
 
Sorry you're having to go through this with no direction...  Let us know how it goes.
 
Hugs...
BEV

-m1-
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/20/2011 9:40 AM (GMT -6)   
Thanks Bev!!

Actually, my radiologists have been golden (I'm up to 3 now.... guess my films are considered interesting... hahahaha). They warned me the probe might exit the other side.... they tried to avoid it but it is what it is.

My referring physician however has been close to useless (or a "hot mess" as you say.... LOVE IT!!). Will be swapping her out in the near future.

From what I have read, a radial scar is not really "scar tissue".... they call it a scar because of how it looks on film, but it is actually tissue and ductal changes in an area that 25% of the time can "hide" cancer cells. They say it is rare (something like only 3% of tissue abnormalities are radial scars), and considering how many views this post has gotten with no one raising their hand and saying "uh huh! Me too!" I guess the rarity of it is pretty accurate.

Have a surgical consult tomorrow morning at 9:45. I think they are going to want to do a lumpectomy to check for cancer cells around the area of the titanuim marker. Poor boob still has more colors on it than a Picasso and it appears we are still not done with diagnostics.

Will post up findings etc., as I go, if that is okay with the Mods. If nothing else, at least this post will be here for someone in the future that may have this "rare" finding in their path report.

Hugs right back atcha!
m1

-m1-
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/20/2011 9:46 AM (GMT -6)   
Sorry for accidentally starting a new thread about my family history when I meant to put an addendum to this one. I can't edit or fix it, so I apologize for the clutter. Maybe someone can merge.....

m1

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 1/20/2011 8:16 PM (GMT -6)   
Hey! Yeah, that is not a term I've ever heard before, and I've been around for a few years! LOL Anyway, Hope your consult and biopsy will give you peace of mind. Let us know how things go!

Hugs... BEV

kath1067
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/15/2011 11:10 AM (GMT -6)   
I was diagnosed with a radial scar back in December after finding what felt like a huge lump in my right breast. I had the initial biopsy done which came back negative for carcinoma, but confirmed the radial scar. I had my excisional surgery yesterday. I wish there was more on this subject but I guess because it is rare finding information is like finding a needle in a hay stack. I am 43 years old, pre-menopause. I am pretty tender at the incision and the percocet just helps me sleep for a few hours...does not do anything for the pain. My surgeon told me there is a 30% chance that they will find cancer when they biopsy the entire mass. I have my follow up next week...I sure hope they call me earlier when they find out the results either way...I just want to prepare myself for the next step if need be.

Snowbunny
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/17/2011 1:54 PM (GMT -6)   
Hello - I just wanted to share my story, the process and precedure that I recently went thru. Hopefully it will help those who are going thru the same thing. I found it rather confusing but realize now - that's because so little is known about radial scars. What to do, What not to do...........
 
I was diagnoised with a radial scar in OCT 2010. The story is pretty much the same as the rest of you. I started out by going for my yearly Mam and Ultra-sound when my Radiologist noticed a mass in my left breast at the 5:00 position - she decided at that time to do a core needle biopsy taking out 4 samples. She called me in 10 days to say the samples were NON maligant..........a few days later I got a call from family Dr. asking me to come into his office to chat about the results. This is when my Dr. presented the Pathologist's report of the findings and it states that "The new report indictes a radial scar with atypical lobular hyperplasia and excisional biopsy is recommended". So it must be the course of action that the first results are passed along to the Pathologist for his comments - Guess this why we get two calls, to our own horror.
 
Long story short - I gave it all much thought and did some reseach. If the core needle biopsies were negative why was it suggested that I needed a excisional biopsy. As I found out Radial Scars are rare and can hide cancerous cells so it's a 15% they can find something. Who knew............ 
 
Everyone I knew suggested "Better be safe than sorry". After dragging my feet and a couple visits with 3 top surgeons - I choose a wonderful surgeon who only does breast surgery.
 
So on Mar 28, 2011 I was booked for day surgery - started out with ultrasound so they could locate area thur use of a needle guided wire, they then moved me into the day surgery room for localized freezing of breast - 10 minute operation and a 1.5 incision. My surgeon took out the entire mass 1.75 cm x 1.80 cm x .80 cm. I actually asked to see it. Anyways I got the results in 7 days and it was benign. OMG my worse nightmare was over  and I should be so thankful nothing was found.
 
As of today I had my follow-up with the Surgeon to look at the incision and despite small dent or loss in breast tissue - I had no swelling, bleeding or pain from the operation.
 
So rule of thumb: get a good surgeon, ask lots of question prior to surgery, get copies of your all reports, post-surgery pack your breast with ice and use Clairns Stretch Mark Control Cream on the incision ( or any incision ) 14 days after to melt away the scar.
 
Hope this helps
Luv to you all
Snowbunny
 
 
 
 
 
 
 

FurFur
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 1/4/2013 10:42 AM (GMT -6)   
Hey everyone~ Hope everyone is doing well!! I have recently been diagnosed with having 2 radial scars in my right breast. I went to have a 6mnth follow-up mamm.on Dec 3rd- my birthday! I didn't think anything would come of it- it was just supposed to be a follow-up, where everything was gonna be just fine...NOT! I was there for 2 hours. I knew something was up. I was informed that they found 2 lumps and they wanted to do core needle biopsies on both of them. They did that on Dec. 14. I got the results quite quickly. The procedure was on a Friday and by Monday afternoon, I got the call. The raidiologist said it wasn't cancer and then proceeded to say what it was.... I didn't hear much after "It's not cancer", except that she thought I should still be seen by a surgeon. I met with the surgeon on Dec 26th. He is a very nice man. He explained a lot to me and after his examination, he concurred that they are radial scars and should be removed. I am now waiting for my surgery to be scheduled sometime in the middle of Jan. The only question that hasn't been answered is: How did I get them??? I am now 36 years old, never have had any breast trauma, no implants, no biopsies before this, nothing!!! Where did they come from? If anyone has any info on this I would greatly appreciate some incite. Thanks :)

cullenwoman
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/30/2013 8:07 PM (GMT -6)   
I am 39 almost 40 two weeks ago I found a lump in my right breast. I already had my annual gynecological appt scheduled so I called and they sent me for mammo and ultrasound. Went expecting being told need to have surgery for my right breast. They begin doing extra scans and an ultrasound is ordered for my left breast. There was nothing wrong with my left. The lump in the right is 3 cysts bunched together I am having an aspiration done on 2/12. The left had a mass show on the mammo but not on the ultrasound. I was scheduled for a stereotactic breast biopsy. Had that done and it did not go well I was among the less than 1% that develop hematomas. I developed 3 hematomas in an hr they think they may have nicked a vessel. I am extremely bruised and still sore however got results today biopsy shown as benign but I do have a radial scar and am awaiting an appt with a surgeon to have it removed.I have never had cancer, no biopsies or trauma or anything else ever done.From what I understand they can just form however removing them is normal procedure since they can be associated with cancer. I have a family history of breast cancer so I am all for removing it. They will be removing the scar and surrounding tissue. It seems like it is just one of those things that happen with some women and not with others. But you are not alone.

cdolinar
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/22/2013 1:10 PM (GMT -6)   
I was just diagnosed with having a radial scar after having a stereotactiv breast core biopsy.  I am seeing a surgeon who specializes in breast cancer and oncology.  A few of you have written that you were diagnosed with a radial scar.  I know they will want to remove this.  If you have had this diagnoses and surgery can you share what one should expect.  I understand everyone is dfferent but I am just looking for some information.  Thanks

texas2
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/8/2013 11:11 AM (GMT -6)   
Hi all!

I, too, have a family history of breast and ovarian cancer. However, my Mom's BRCA and BART tests were negative. Towards the end of last summer, I got this nagging feeling that I needed a mammogram. A spot was detected, biopsied and came back atypical lobular hyperplasia. It was small enough that the biopsy sucked the entire mess out. My doc put me on tamoxifen and I had a hard crash into menopause (I'm 50). No worries, tho'. At my next checkup (six months after the initial mammogram), my doc wanted me to have an MRI with dye to see if there was anything else was hidden. A suspicious area was identified that did not show up on the initial mammogram. I had two biopsies on this area - first with an ultrasound and the other with an MRI. The ultrasound biopsy's results were negative, but the doctor said something was just not right and suggested a MRI biopsy. The results from the MRI indicated radial scarring and no cancer. This was also small enough to be sucked out with the biopsies. She said that this was very rare, but has seen this in women like me (family history and atypical hyperplasia). She also said that these cells do not change into cancer, but can hide cancer. Also, in my case this is more like a marker that does put me at an increase for breast cancer. I will most likely change from tamoxifen to a drug for menopausal women and will go back in 6 months for another diagnostic exam. All this was caught so quickly in the game that I'm still a bit stunned. My aunt, back in the 60s, had a double mastectomy with rib and arm muscle removed... my mom had a single mastectomy... and I'm having clusters of cells removed. Not to make light of the seriousness of breast cancer, but I'm so grateful for the medical advances and only hope that when my daughters are older, there's a preventative shot that they can take. Take care ladies and forever keep moving forward. xxxooo

Cindy Rey
New Member


Date Joined May 2013
Total Posts : 3
   Posted 5/27/2013 9:37 PM (GMT -6)   
Hi, I had a radial scar removed July 2012 and was surprised at the lack of information on the Internet. Post Op I felt fine and had the usual discomfort but it has lasted, it's now been almost 11 months. The discomfort is not daily but comes and goes and so does my mind worrying about what might happen one day. I can not find anywhere any information about realistic pain discomfort or follow-up. My surgeon (who is one of the best in Australia) told me that seeing that there is no specific risk factors that I don't need to worry about a check up for 2 years. I was told that too many mammograms might be harmful to the breast bone in the long rum. Anyone have an opinion or experience. Much appreciated!

sec818
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/23/2013 5:44 PM (GMT -6)   
Hello everyone -- I've read through the posts on this thread and just need to say I'm pretty scared.

Will be 50 yrs old in August, have had routine mammograms since age 40. Have had a few cysts, but nothing a sonogram didn't rule out any further concern.

Went a few weeks ago for a follow up mammo on my right breast. They did another sonogram, then the radiologist came in and explained that i have a radial scar at about 10 o'clock on my right breast. He recommended an MRI, which of course I have to have my OBGYN get pre-authorization from insurance for. Well, surprise surprise, the insurance company denied the MRI request.

I have no family history of breast cancer. But after reading some various sources on the internet (I know, probably not a good idea), have become rather concerned about this.

So since the insurance company denied the MRI, I am now scheduled to meet with a general surgeon in 2 days for a consultation and have obtained my film (CD) from the recent mammos/sonogram findings.

Maybe it's psychosomatic, but my right breast is getting painful and I can REALLY feel this lump. Weird I never seemed to feel it before.

Anyway, like some of you have said, not a lot of good information out there about this. Would appreciate any other follow up experiences you can share.

Thank you!

SDebiS
New Member


Date Joined Sep 2013
Total Posts : 1
   Posted 9/30/2013 3:19 PM (GMT -6)   
It's strange how you're diagnosed with breast cancer and after 5 years, everyone says 'Oh, how great! You've survived; now you're free of it."

I was diagnosed with breast cancer 22 years ago when my daughter was just 8 months old and I lived each and every year after that for my next mammogram -- two malignant lumps were removed, I had radiation and went through a quick menopause at age 35/36!

Then I had genetic testing.....That proved successful -- no mutation and my chances I was told of breast cancer was next to none!

WELLLL, wasn't I surprised to find out I have a radial scar and now need to go in for another lumpectomy!!!

mom22rln
New Member


Date Joined Oct 2013
Total Posts : 1
   Posted 11/4/2013 10:12 PM (GMT -6)   
I was diagnosed with a radial scar at 31 years old, had a lumpectomy. Went for my 6 month check up in July and my tests came out clean, but my doctor sat down with my husband and I and said that I have very fibrotic(sorry on spelling) breast tissue, and with menses early and some other risk factors. My aunt just got done with dealing with breast cancer stage 1. She feels I should have a bilat mastectomy. At first I was shocked, but at the time I was thinking if my breast tissue/cells are changing already, and I'm the type of person that dwells on something till I've done it or it consumes me. I'm going to have it done. I did get the whopping $3000 testing done and I was negative;) I have to say I am a double A cup and my lumpectomy threw my nipple has left me with a very deformed breast- half is prob gone already and I'm self conscious about it. I don't know if I'm okay with having surgery for fear of breast cancer or self conscious issue or both. I'm mourning breast feeding, feeling in my breasts, change.... I'm scheduled in 3 weeks to have it done and wondering if anyone on here has heard of this. I did get a second opinion and the doctor said basically the same recommendation. I would love to hear thoughts, anyone that has gone threw a preventative mastectomy, or anything anyone knows about radial scars. I know there rare, so I feel that shouldn't we be worried? Thanks so much!!!

sandra4611
Regular Member


Date Joined Oct 2013
Total Posts : 53
   Posted 11/5/2013 11:28 AM (GMT -6)   
Oh dear, so sorry you are going through all this. At least it has moved fast. Some women report months of agonizing waiting for every step. I have no personal experience with a radical scar but have read posts from others on the breastcancer.org forum.
 
Have you considered having reconstruction done at the time of the BMX? I had it two months ago and many, many others are doing the same thing. Waking up after the double mastectomy surgery wasn't so much of a shock because I still had breasts...smaller, different shaped and no nipples, but they were my new "normal" and I was glad to have them.  
 
I had very early breast cancer in one side that usually is treated with lumpectomy and radiation, but after reading about radiation problems, knew I wanted to avoid that at all costs if I could. Mastectomy would mean I wouldn't have to have radiation or chemo or hormone therapy for 5 years afterward. I decided on a prophylactic mastectomy on the other side to avoid the possibility of having to go through the same thing in the future and maybe NOT finding it early next time. Some people couldn't understand why I would take off a "perfectly healthy breast" because there was a CHANCE of breast cancer someday. But I knew I couldn't live the rest of my life worrying about it. It was the right decision for me but everyone is different.
 
It's a good thing I had the bilateral mastectomy because they found a different kind of breast cancer in what we thought was the good side. I was shocked that two mammograms and an MRI with contrast of both breasts had missed it completely! (Now I know some kinds of cancer are harder to diagnose in dense breasts.) My oncologist said I had absolutely made the right decision.
 
Please keep in touch and let us know how it goes.

hazel01
New Member


Date Joined Feb 2014
Total Posts : 1
   Posted 2/5/2014 10:37 PM (GMT -6)   
Snowbunny said...
Hello - I just wanted to share my story, the process and precedure that I recently went thru. Hopefully it will help those who are going thru the same thing. I found it rather confusing but realize now - that's because so little is known about radial scars. What to do, What not to do...........



I was diagnoised with a radial scar in OCT 2010. The story is pretty much the same as the rest of you. I started out by going for my yearly Mam and Ultra-sound when my Radiologist noticed a mass in my left breast at the 5:00 position - she decided at that time to do a core needle biopsy taking out 4 samples. She called me in 10 days to say the samples were NON maligant..........a few days later I got a call from family Dr. asking me to come into his office to chat about the results. This is when my Dr. presented the Pathologist's report of the findings and it states that "The new report indictes a radial scar with atypical lobular hyperplasia and excisional biopsy is recommended". So it must be the course of action that the first results are passed along to the Pathologist for his comments - Guess this why we get two calls, to our own horror.



Long story short - I gave it all much thought and did some reseach. If the core needle biopsies were negative why was it suggested that I needed a excisional biopsy. As I found out Radial Scars are rare and can hide cancerous cells so it's a 15% they can find something. Who knew............



Everyone I knew suggested "Better be safe than sorry". After dragging my feet and a couple visits with 3 top surgeons - I choose a wonderful surgeon who only does breast surgery.



So on Mar 28, 2011 I was booked for day surgery - started out with ultrasound so they could locate area thur use of a needle guided wire, they then moved me into the day surgery room for localized freezing of breast - 10 minute operation and a 1.5 incision. My surgeon took out the entire mass 1.75 cm x 1.80 cm x .80 cm. I actually asked to see it. Anyways I got the results in 7 days and it was benign. OMG my worse nightmare was over and I should be so thankful nothing was found.



As of today I had my follow-up with the Surgeon to look at the incision and despite small dent or loss in breast tissue - I had no swelling, bleeding or pain from the operation.



So rule of thumb: get a good surgeon, ask lots of question prior to surgery, get copies of your all reports, post-surgery pack your breast with ice and use Clairns Stretch Mark Control Cream on the incision ( or any incision ) 14 days after to melt away the scar.



Hope this helps

Luv to you all

Snowbunny



Hi Snowbunny, hope you will see this post. I was told I have a radial scar and surgeon suggesting I have it removed. did it change shape or size of your breast? My breasts not so big to begin with. I know this should be least of my concerns.

biopsied2
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 2/26/2014 10:28 PM (GMT -6)   
I actually had the same thing happen to me . Was called by gyne office and told " no malignancies" and I was so relieved I cried. A week later I get a call from gyne office telling me that I am at "high risk"  due to radial scar and multiple papillomas and need to get a surgeon. Radiologist also had called the gyne doc to see that I was taken care of due to radial scar and multiple papillomas---otherwise I never would have been told I needed surgery. Maybe gyne docs need to know a little more about radial scars etc. Surgery was Dec. 26 2013 and went well. 1 week after my surgeon needed to aspirate 66cc bloody fluid from breast.  My breast is still very tender and my nipple slightly inverted as the areola is puffy. I have asked about this and surgeon has said there is more fluid but does not want to aspirate again and says it will disperse into the body over time. Breast feels heavier than other one. I am now 2 months post - op.

Dexter2004
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/15/2014 2:28 AM (GMT -6)   
Glad I found this thread very little info on radial scarring other than the don't worry or you need to worry.
I am 51 history of multiple cysts in both breasts from early 30's. I also had cysts in thyroid, major inflammation issues of joints and fibromyalgia.
Recent routine mammogram had letter to go to Jarvis Breast Clinic. They were excited to see me as have 4 radial scars in right breast. As you have all said rare 4 unheard of.
5 core biopsies taken go back next week for results. Scary stuff waiting now until next weeks appt.

ya74
New Member


Date Joined Sep 2014
Total Posts : 1
   Posted 9/14/2014 3:52 PM (GMT -6)   
I'm 40 and after my first mammogram, ultrasound and core needle biopsy I was diagnosed with a radial scar / complex sclerosing lesion. I have an appointment tomorrow with Surgeon but wanted to be prepared on what to ask. I understand from this post and other resources in internet that the best approach is to take it out. I also read, still cancer is not fully ruled out as radial scar could be hiding it.
Any info at this point from some of you that have the same diagnosis would be highly appreciated. it has been a difficult time since this started as my diagnostic mammogram came back with BIRADS 5 and it was a relief to get radial scar but now I understand I could still have cancer.

Lalamac
New Member


Date Joined Apr 2015
Total Posts : 2
   Posted 4/17/2015 7:05 PM (GMT -6)   
I am 51 and no family history of breast cancer. I had a cyst needle biopsy in my late 20's, but other than that have had no problems. I have very fibrous breasts, so lately have had to follow up with ultrasounds after mammo's. This month, I was called back for 3-d mammo and ultrasound, then had a needle biopsy on 4/14. Today I got word that it was not cancerous, but is a radial scar and needs to be removed. I have been told that my information has been submitted to a surgeon, and now awaiting call to schedule. I so frustrated that now that my breast is no longer sore from the biopsy, but now am told it will be even sorer. Can you tell me what your recovery was like? I'm hoping I'm not going to have to miss work, etc. I've had so many surgeries in the past that I really do not look forward to it. Do they remove the tissue thru the same area they did the biopsy, or do they actually have to cut it open????
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 5:58 AM (GMT -6)
There are a total of 2,885,908 posts in 316,655 threads.
View Active Threads


Who's Online
This forum has 157763 registered members. Please welcome our newest member, Lupwarrior.
322 Guest(s), 15 Registered Member(s) are currently online.  Details
Cigafred, outofit, Spoff, pinpin, Dahlias, tickbite666, Smara, dacarte3, Alicat, getting by, ks1905, testuser1234, Hypsibius, three 5's and a jack, mcloud


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer