Can I trust my baseline mammogram

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ces
New Member


Date Joined Feb 2005
Total Posts : 5
   Posted 2/28/2005 5:03 PM (GMT -7)   
As most of you have read from my first post "new here" I am waiting on my current mammogram. I called today and found out that my baseline mammogram was shipped out Friday to the new facility I am using for mammography. But they didn't tell me how it was shipped. So I began digging. Hoping to find a website that would tell me how they usually ship xrays across the United States.
 
I found a letter on the net to the old facility, that had my baseline mammogram, from the FDA. The letter was a non compliance letter to FDA rules and regulations on mammography. The letter was written about 6 months to a year after my baseline mammogram.  
 
The letter can be seen at the following sites....
 
 
 
Can I trust my baseline mammo now or is that something that I have now lost  confused confused
 
I wish I understood government double talk better. eyes
Carol 

MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 2/28/2005 6:02 PM (GMT -7)   
Well I can certainly understand your concern here.  I read through the letters and I can't seem to make any sense of them either.  I'm not sure if it is something to add to your worries though.  When your new team gets the mammogram they will figure out what needs to be known regardless of the images provided from the baseline.  I know a lot of emphesis is placed on our baseline mam's but they will look beyond that if necessary.  Have you had an ultrasound?  My tumor didn't show up on my mam because I have "dense" breasts.  (Gee, I thought THAT was just in my head)  So they ordered an ultrasound.  That showed them what they needed to see.  And quite frankly I don't think my baseline ever really came into play of the plan of "what to do". 
 
The waiting is the hardest part.  I can't say don't worry because it's human nature to do so.  But know that we are all thinking of you and keeping you in our prayers.
 
Hang in there and please keep me informed.  I'll be thinking of you.
 
Hugs and prayers,
 
Mia


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 2/28/2005 6:11 PM (GMT -7)   
I think a lot has to do with the density of the breasts and the skill of the technician, the skill of the radiologist, etc....in my case, I had a 2.5 cm tumor that was palpable but not visible on the mammogram, since I was not quite 31. Now at 36 I am hoping that my mammos are more reliable, as my breast tissue changes. Who ever thought I'd be praying to lose density? The ultrasound also showed my tumor clearly.
I asked my surgeon about the reliability of mammos for me, and he said just because one cancer did not show up, does not mean any future problems would not be visible either...each stands on its own.

I think whatever is the first mammo that they can get a read on would be your baseline.

Just my thoughts...
Lori


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 2/28/2005 8:49 PM (GMT -7)   
What about showing the letter to your insurance company and asking them if you can get another done elsewhere?  See what they say?  If that doesn't work, take the letter with you back to the facility and confronting them with it (maybe contact a lawyer and consult first).  You may get another one done.
 
All of that having been said, I have dense breasts and the mammogram showed nothing and I had a moderately large mass in my breast, so you never know.  If you feel a lump, go back to a BREAST surgeon, even if the mammo is normal, and get a needle biopsy or other biopsy. That's how they found it with me
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/1/2005 11:29 AM (GMT -7)   
Very interesting, things that can be found on the internet. While this sounds worrisome, I think I would try contacting the facility where the baseline was done to see if your mammograms could have been done during the time frame of the problem and what the problem actually was. I thought I read something about reports missing. It really was hard to understand what was actually wrong. But then I read it over quickly. Possibly before trying to find out anything on your own, print out the letter and send it to the new facility and let them handle it. Let us know what you find out. Hope nothing is amiss. MK


Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 3/1/2005 12:16 PM (GMT -7)   
Good luck. As if we do not have enough to worry about. I am sure that the current mammo will give the doctors enought to act upon. Don't worry too much and let us know.

Hugs,

Candy

 Perfume and incense bring joy to the heart, and the pleasantness of one's friend springs from his earnest counsel.

Proverbs 27:9


ces
New Member


Date Joined Feb 2005
Total Posts : 5
   Posted 3/1/2005 12:18 PM (GMT -7)   
I had saved the letter to my computer and was going to take it to the new location. I have to take my mother there on Thursday for a preop test. So was going to drop it off and let the radiologist there figure out what the problem was and if there is concern on my baseline mammogram.
 
My hobby of genealogy has taught me well how to search the net and I find all kinds of things out there. Some of them are quite scarey.
 
Ces
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