another new one and scared.

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Tammy33
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/6/2005 12:47 PM (GMT -7)   
Hello all im a 33 year old single mom of 2 a 11 year old girl and a 8 year old boy i was just diagnosed with infilterateing ductual carcinoma grade3. has any one else have this type and if so what kind of treatment did you receive?Im really scared right now i don't know what all to exspect in my very near future. thank you anybody who responds.

Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 3/6/2005 1:13 PM (GMT -7)   
Tammy33, Welcome. I am sorry you had to find us, but you found a good group. I did not experience the type of cancer you have, but I am sure someone here has and will be answer all of your questions. We have many young women that contribute to this board. We are here to help and want to.

You should expect alot of information coming to you. Have someone with you when you are talking to the doctors, try to stay calm, you are going to survive, learn all you can and ask as many questions + that you can of the medical team that will be caring for you. I am sorry about your dx'd. Please write again and give us more information if you feel comfortable doing that. Please post to the roll call that can be found at the top of the listing board. You will get a better picture of the women in this group.

Joining this group a year and a half ago was a blessing and the women here have become best friends (breast friends).

Remember try to stay calm and lean on your support.

Hugs and prayers,

Candy

 Perfume and incense bring joy to the heart, and the pleasantness of one's friend springs from his earnest counsel.

Proverbs 27:9


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 3/6/2005 2:11 PM (GMT -7)   
Tammy,

I cannot help you with the type of breast cancer that you have, but I CAN give you a cyber ((((((HUG)))))) and tell you welcome to the greatest support system online.

I will be a 20 year survivor on March 28th of this year. I also was diagnosed at the age of 33 and actually had a recurrence 2 years after that in the sternum.

Keep thinking positive, you WILL beat this! You will find that everyone here has a totally different story about their journey thru this disease. No two people are the same. However, we are all here to give you the support and what information we can give you to get you thru this rough time.

Hang in there..................it will get better.

Hugs,
Debbie
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/6/2005 3:23 PM (GMT -7)   

Hi Tammy! Sorry you are having to go through this, but we'll help you where we can. I was diagnosed a week before I turned 31, and that was over 5 years ago. I also had invasive (infiltrating) ductal carcinoma. It is the most common, means it originated in the ducts of the breast. Mine was also grade III which means it has potential to be more aggressive, but one thing you will learn is stats are just stats...nothing is a guarantee. My tumor was 2.5 cm, I did a lumpectomy, chemo and rads. You may need some help with the kids, but with any luck, you will breeze through treatments....I was able to work full time and take care of all my needs during treatment, so there is no guarantee that you'll be sick or laid up.

My advice is to read and learn what you can, for me, knowledge was power. It was the only thing I could do at first to take control.  Take a buddy and tape recorder to your first appointments and consider a 2nd opinion...there usually not a need to rush into things without being sure of your plan. 

Ask us whatever you need to, we're all ages and stages of BC and we have been in your shoes. Hang in there, you will surprise yourself with your strength.

Lori 



gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/6/2005 3:32 PM (GMT -7)   
Hi Tammy, lately we have had several new members, I hope that it only means we are getting better known! Yes there are many women here of all ages, from all areas and with all kinds of breast cancer. You can read about some of us in the Roll Call post third down on the main page. You are welcome to post there, too, if you care to. I am the oldest here, living in TX now but from OH and WV. My daughter was also diagnosed with breast cancer at age 39. I was diagnosed at 58 and have been clear for over eight years now. My cancer was not aggressive nor did I have any postive nodes. Where are you in treatment? Still making decisions or have you actually begun? We have several girls in their 30s some with children. We many different stages, some fighting Stage IVs who are the greatest women you will ever meet. Please feel welcome and feel free to ask questions. Where are you? Not long ago we had a new member join and she found one of us within 20 miles of her. It is great to have someone to have lunch with and talk over issues. Hugs, Mary K. (MK)


MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 3/6/2005 3:51 PM (GMT -7)   
Hi Tammy,
 
I'm a newbie (new member) here too.  I just found this site a week ago and have already made some wonderful friends (I'm the one that found someone within 20 miles).  Like the other ladies said we aren't happy to hear your news but we glad you found us.  This site has been amazing to me in just one short week.  It offers you perspectives from all ages, stages and walks of life.  And it sure helped me to hear some of the stories from the many year survivors.
 
As others have said you should learn as much as you can, knowledge is YOUR power in this.  And at times you will feel out of control, arming yourself with all that you can so you can better understand all your options and the medical lingo will help.
 
If you feel up to it let us know where you are in the process; what tests/procedures have you had do you have any reports you can't understand and do you have any upcoming appointments.  I can tell you from what I went through I wish I had found this site prior to having my partial mastectomy.  If for nothing else there is fantastic moral support here.  We can help you to know what to expect if we know where things are for you.
 
You will be in my prayers and please remember we all there with you!
 
Hugs,
 
Mia
 
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.


-Vesta M. Kelly


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 3/6/2005 4:25 PM (GMT -7)   
Tammy, sending you more hugs. I know this is a scary time, but you are surrounded by women who will support you, comfort you and help you through whatever is ahead. I hope you have someone who can go to doctor's appointments with you. Two sets of ears are always better than one. If you have to go alone, try to take a tape recorder with you so you can digest information later. We are alway sorry to see a newbie come on board, but we are happy you found us. Take care and keep us posted on how you are doing. Hugs, Lauri (Nine year survivor on April 11)
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


Tammy33
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/6/2005 4:56 PM (GMT -7)   
Thank you all so much.Its nice to have support I have a appt. next wed. with a breast onacologist.I don't know what all I have in store for me yet. I should receive my breast panel tomarrow I hope its been over a week now. I thought I was dateing a remarkable guy been dateing off and on for past 3 years he found out the news and decided we just need to be buddies.Its like one thing after another...I do have my gran-mother she is 71 and I have some good people at my fire dept were I work at. Im a female fire fighter/Paramedic.Im just really scared right now im glad i found you great ladies.

coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 3/6/2005 7:01 PM (GMT -7)   
Hi Tammy:
 
This is a great board.  I joined the club nobody wants to belong to in August of '03.  I had the same cancer you did, stage 1.  I had a lumpectomy (2.5cm), chemo and radiation (rads).  I have a 5-year old son, and was 37 at diagnosis.  I live in The Catskills of New York, and it's pretty rural up here, not a lot of supports, so I went to NYC for a surgeon and had them confer with the docs up here for treatment choices.  This board has been so valuable to me!!!! 
 
Welcome and by all means, ask away.  Someone will probably help you find the answers.  I liked Dr. Love's Breast Book for answers.  It was a great reference.
 
Good luck and keep posting, welcome!
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/7/2005 9:23 AM (GMT -7)   
Tammy, I am sorry to hear about the boyfriend. Some men can just not handle breast cancer. Believe it or not there have been some husbands high tail it away, too. And then there have been women who have found a new love after their diagnosis. If he feels you should just be buddies, maybe he wasn't quite the man you thought he was. And then again, being buddies is just as important in a relationship as anything else. Many have had surgery and reconstruction and ended up with beautiful breasts they are proud of. Ask you buddy how he would feel if you had had breast enhancement? Or is it the fact that you will not feel your best while going through treatment and he wants your full time attention? Hang in there, one step at a time. We are here for you. Did you tell us what state you live in or look at the roll call to see if someone might be close to you to help you a little more? Hugs, MK


ardee
Veteran Member


Date Joined Sep 2003
Total Posts : 854
   Posted 3/7/2005 6:58 PM (GMT -7)   
Hi Tammy,

I'm a single mom of two also, although mine are grown now. I was diagnosed nearly 2 years ago, stage IIB, and had a lumpectomy, chemo, and radiation. While it is difficult, it is doable. We'll all be here for you.

Hugs,
Rita


Tammy33
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/8/2005 7:03 PM (GMT -7)   
well im going to my onocoligst tomarrow for the first time. My general surgeon wants to treat me with a quadectomy a few lymph nodes removed and tomaxifen.So im going for a second opinion.I want someone who specializes in this so i feel better. thank you all so much.

Tammy33
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/8/2005 7:06 PM (GMT -7)   
I was wondering since i am ER+ PR+ and Hercep test neg does this mean i will not have to have chemo?just have to take meds for 5 years?Guess I'll find out more tomarrow!hugs to everyone here

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/8/2005 7:27 PM (GMT -7)   
Tammy, there are a lot of factors that go into the recommendation. When i was diagnosed, my tumor size (2.5 cm) was an automatic invite for chemo. 1 cm was kinda the cut off I think. Plus they will look at traits such as grade and other cellular details of the tumor, they will also consider lymph node status and margins (clear or not)....and they will probably take your age into account. And with a grade III tumor, don't be surprised of they mention radiation too.

Definitely consider that 2nd opinion, as you mentioned. The surgeon has no business recommending a treatment plan of just tamoxifen. He is a surgeon, not an oncologist. The surgeon removes the cancer and surrounding tissue, the onc treats the cancer systemically. Tamoxifen for 5 years is a good thing!

Keep us posted...
Lori


babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 3/9/2005 2:34 PM (GMT -7)   
Hi Tammy,
 
I am currently receiving chemo for infiltrating ductal carcinoma.  I was 44 when diagnosed last Sept.  Mine was 6cm and growing along the blood vessels.  Originally had lumpectomy, but followed 3 weeks later by mastectomy.  Mine is stage IIIA with 1 lymph node involved.  I am also ER/PR+ and Her2neu-.  I also had some smaller tumors in what they called 'islands', so it was the right thing to have a mastectomy. 
 
My treatment is 6 months of chemo, followed by radiation (not sure how long), then tamoxifen and then femara. 
 
I would question them just giving you tamoxifen.  Is a quadectomy the same as a lumpectomy?  Usually, the younger you are, the more aggressive they are with treatment, so I would be surprised if you don't need chemo.  It will all depend on what they find after surgery.
 
I have been very lucky to not have very bad side effects, just some nausea and tiredness (which is finally starting to go away).  Therefore, I am able to work.
 
Everyone is different, but just know that we are all here for you to help get through this.  This place has been a great help to me, particularly at the beginning.
 
Hugs,
Kathy


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/9/2005 5:22 PM (GMT -7)   

Hi! I was also diagnosed at stage III but had other tumors as well. I had a modified radical mastectomy, followed by 4 treatments of the a/c, 12 taxol and 30 radiation. I chose not to have the reconstruction. I had very few problems with the chemo side effects. I think that the radiation was worse than the chemo. My eldest dd and 2 granddaughters (at that time ages 7 & 2) were living with me.

I believe that you are very wise in getting a second opinion. Please see an oncologist. If you don't like the first one, then go to another and another, until you find one that you feel comfortable with and trust. My oncologist, surgeon and M.D. all work together as a team for my health.

These next few weeks are going to be tough but you will make it. You sound like a very strong woman. Please don't be afraid to come here and ask any question. There is NEVER a stupid question.

Deb


 


Tammy33
New Member


Date Joined Mar 2005
Total Posts : 5
   Posted 3/10/2005 8:12 PM (GMT -7)   
hello again all well seen my onacologist yesterday.He wants to go and take out more tissue and check out lymph nodes.we are going to put a port in and starting march 30 I will start my first round of chemo adriamycin and cytoxan and something called Taxotere for 6 months then i go for Radiation for six weeks. Im not looking forward to any of this. I work on a ambulance as a paramedic so I hope i can continue. one day at a time. god bless you all for listening.tHANKS tAMMY

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/10/2005 8:21 PM (GMT -7)   
Tammy, you will probably be able to work some but not every day right after chemo. I am sure in your work you handle lots of difficult situations and you will be able to do fine. Keep us posted as to your next surgery. Big hugs, MK

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