Multiple complex cysts

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contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 7/18/2011 1:45 PM (GMT -6)   
I have moderately dense breasts and have had over the past 6 years mammograms and ultrasounds every two years. They have found multiple cysts in both breast and each year they always seem to multiply and I am use to them hanging around. I am 45 years old and the only breast cancer in our Family is my Aunt on my dads side.

On the last Mammo and Ultrasound that I just received back show combination of simple cysts and multiple complex cysts, now since I have such dense breasts the Mammo isnt really showing anything not even the cysts and I put that all to the mammo and dense breasts dont work well together. I am scheduled for a MRI in August upon the Tec's request not my family doctor, Now my fear is that I always seem to have simple cysts hanging around but this is the first time they tell me I have MULTIPLE complex cysts as well and over the past six years there is always some mention of cysts in my Axillae , in the 2006 report it mentions about two lesions with the larger lesion measuring 2.4 cm in length saying it may represent large lymph nodes? over all in three reports spanned over the past six years it refers to my axillae and cysts of lymph nodes. I had a family doctor for years and he never really seamed concerned about it and when i would push for more info about it he would walk out of the room and tell me to make another appointment (small northern town in Ontario and not many doctors) so we didnt have a choice but to keep the one we had.

Every two years the reports changed and each one sounds a little more worrisome than the previous one. Now with this many cysts and complex cysts how is it possible that they test each one to find out if its non cancerous ? If I get every cyst removed to be safe I fear I will have no more breasts left or they will look like pancakes. With all the complex cysts showing up this time I am extremely worried, I am petrified to go for the MRI with contrast fearing they will tell me its cancer. Has anyone else gone through this or something like this?
I know 80% of cysts are B9 but complex cysts worry me a whole lot more :(
I have tried to push for more answers from my family doctor but he just didnt seem to care more than that. Maybe I should of pushed a whole lot more and its my own fault but my doctor was so intimidating and everyone kept telling me that cysts were normal for women :(
Any information or help would put my mind at ease if only for a little while.
Feeling anxious and lost at the moment. This is the first time they ask for MRI .....
Thanks for listening

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/19/2011 2:48 PM (GMT -6)   
Wow. This is a tough one. If I were you, I would insist on going to a breast specialist (here in the US, we have "breast centers") to figure all of this out. Cysts are fluid filled. Tumors are solid. So on an ultrasound, the two do not look alike. Some cysts, complex cysts, have fluid in them, but they also have "junk" in them. It is rare, but sometimes these cysts have some cancer cells in them. Often they aspirate and look at the "junk" to see if they find any cancer cells. Biopsy is always the surest way to rule out cancer, though.

As far as dense breasts go, I also had dense breasts. My first mammo came back negative for any signs of cancer and stated breast density as their CYB clause. Fortunately, my doctor insisted on biopsies, which even the surgeon thought was unnecessary, but agreed to because my doctor insisted. I had two different types of invasive breast cancer. Surgeon also said he didn't feel anything "suspicious" in axillary nodes (I had thought they were "just cysts"), but had three nodes that were cancerous.

So if you are uncomfortable with the way things are going, I would encourage to look further until you get answers that you can live with. I was 36 at the time. Had my family doctor not been as proactive as he was, I don't know how many years I would have had before my cancers were discovered, and I seriously doubt that I would be alive today to be answering your post.

I don't intend to scare you. But you can't let doctors intimidate you! This is your body, your health, and ultimately your life we are talking about here!

Let me know how things go.

Hugs...
BEV

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 7/20/2011 8:45 AM (GMT -6)   
Hi Bev

Thanks so much for replying and thank you so much for sharing your story,
I just feel a bit lost with the newest reports in :( I know many say dont worry but how can you not worry when you have so many cysts and complex cysts laying around, the normal cysts dont worry me so much but this is the first time they tell me I have multiple complex cysts and the cysts that keep showing up in the axillary also make me nervous :( I seen that on the ultra sound two years ago and it was not black cysts it was very gray and long looking, it just seems its not adding up. When they did the US this year I could see one cyst that looked like it had a wall down the middle and she marked that one but I am no doctor lol

Usually I am not easily pushed around and I can have a bite to me when pushed to hard but sometimes just every once in awhile I get someone that can shut me up and intimidate the heck out of me and my Doctor was one of them :( you couldnt tell him anything or tell him you thought it could be this or that ... he would be very insulted, in the end I could never have any type of conversation with him at all.

When this all started in 2004 with my first mammo and US and they found a couple of cysts I had one removed by a surgeon in an office and it came back fine but since that cyst I have never had any of the other cysts aspirated and as the report states Multiple cysts and multiple complex cysts this year. I think I will take your advice and ask for a Breast Specialist. Should I wait until my MRI is done before asking or ask for a Breast specialist even before that?

Thank you so much for talking with me :) I already feel a bit better :)

I will keep you informed and again thank you
Tam

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/20/2011 9:29 PM (GMT -6)   
I don't think it would hurt to go ahead and ask for a referral to a breast specialist, just for a second opinion. Never hurts. Let me know how it goes.

Hugs...
BEV

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 7/21/2011 9:36 AM (GMT -6)   
I will call my surgeon and see if I can be referred to a specialist either way, I think it would put my mind at ease :)
I will keep you informed about my appointment after I receive my MRI and hopefully it will be good news. Either way I will let you know :)

Thanks again BEV
hugs back

Tam
Double cervix, double Uterus , Multiple cysts, complex cysts, Dense breasts.
If anyone has any questions please let me know and maybe I can answer some on the double cervix issues. I know there isnt many women with this but feel free to ask.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/21/2011 7:55 PM (GMT -6)   
Peace of mind is worth a lot!

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 8/17/2011 6:18 PM (GMT -6)   
Went for the MRI with contrast today finally ... the wait was long enough ... now I have to wait about a week for the results arggg :(
It went a little better than I expected and it wasnt as scary as I thought it was going to be.

I will post again when I hear more results of whats going on , just thought I would share and update :)
Have a great day

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 8/22/2011 3:00 PM (GMT -6)   
MRI results are in and this is whats written:

Bilateral Breast MRI

Standard bilateral breast MRI was performed with and without Gadolinium enhancement.

Post Gadolinium enhancement as well as subtraction images show moderate amount of background parenchymal enhancement. Sensitivity of the study is diminished as a result of this.

No focally pronounced areas of enhancement are identified in either side.

T2 weighted sequence shows bilateral scattered cysts all of which measure less than 1 cm in greatest dimension.

Axillae are normal

No other findings.

IMPRESSION:

Moderate amount of background parenchymal enhancement diminishing sensitivity of the study. No focal abnormality is detected. Bilateral benign cysts are seen. Also please note that low or intermediate grade DCIS may not be detected by MRI.

BI-RADS 2

I have mixed feelings on the report :( As far as I can read its good news but when you keep reading it talks about Diminishing sensativity? and that intermediate grade DCIS may not be detected by MRI ... Now does anyone know in layman terms what all this means ? From what I have been reading I thought the MRI can see through anything? I went and seen my doctor today and he said to go in every six months for follow up MRI and ultrasound.
Why would it show multiple complex cysts on the Ultrasound and on the MRI it shows only cysts? its very confusing......
Double cervix, double Uterus , Multiple cysts, complex cysts, Dense breasts.
If anyone has any questions please let me know and maybe I can answer some on the double cervix issues. I know there isnt many women with this but feel free to ask.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 8/26/2011 5:44 PM (GMT -6)   
Sammy, I'm not up on MRI's of the breast. However, it sounds like they aren't too worried about what they saw, but threw in the standard "cover your behind" clause in the "Impressions." Almost all imaging studies I've had done have similar language in them. It really doesn't do much for the confidence level, does it! Wish I could be of more help.

Hugs...
BEV

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 8/30/2011 8:21 AM (GMT -6)   
I find it so frustrating, I get the Ultrasound report that makes me nervous and shows multiple complex cysts and then the MRI only shows cysts ....what would you do ? let it rest and wait for the next set of test in 6 months or push and find out why the ultrasound showed multiple complex cysts? So would the Ultrasound be right or the MRI ?
Your right BEV the confidence level is very low .... you would think with three tests done It would be very clear and everything answered instead I walk away with more questions arrrrgggg.
Mammo = nothing accept cysts in Axillia (very dense breasts) so looks like a snow storm anyways lol
Ultrasound- Mutiple cysts and Multiple complex cysts
MRI - cysts

So what am I am to believe, which report is right ?
Thanks so much for getting back to me BEV
Hugs... back
Double cervix, double Uterus , Multiple cysts, complex cysts, Dense breasts.
If anyone has any questions please let me know and maybe I can answer some on the double cervix issues. I know there isnt many women with this but feel free to ask.

HEATHERH
New Member


Date Joined Dec 2012
Total Posts : 1
   Posted 12/19/2012 6:32 AM (GMT -6)   
How are you now?  How did things go?  I am 30 and I have multiple cysts that are causing pain - It started a few weeks ago. I am told to just follow up every 6 months...

contentedsammy
New Member


Date Joined Jul 2011
Total Posts : 9
   Posted 4/8/2013 12:58 PM (GMT -6)   
I still have all the cysts and complex cysts but I have now been referred to specialist and had a Diagnostic mammogram and ultrasound and they found the complex cyst with adjacent Sceptations or small clusters of cysts that they want me on a six month watch and see if anything has changed :( I will be going for my appointment on Wednesday back to the specialist. I will cross my fingers and hope nothing has changed. The last report showed a Bi-rads 3. I know they say that before menopause our breasts become busy with cysts which seams to be the case with mine as well they have told me I have fibrocystic disease (lots of cysts). I have very dense breasts even for a 47 year old lol so its hard to see anything in that mess. Six month follow up for you is always good this means they are keeping an eye on you and to make sure they are stable and no changes. Before each Menstrual cycle you may find your breasts will become very sensitive and that is what happens to me each month and about a week after my period they hurt much less. I wish you luck and hope everything works out ok for you HeatherH.

Sorry it took so long to get back to you on this one.
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