This message is for SKKY

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MidwestGal
New Member


Date Joined Feb 2005
Total Posts : 10
   Posted 3/23/2005 7:09 AM (GMT -7)   
Hello there, Michelle, my name is Elizabeth.  I am from your area, but now live toward Ann Arbor.  I'm always up in the Brighton area as my mother still lives there.  Do you have support to help you?  Surprisingly, I've found quite a few supports for my mother (she has leukemia) in Livingston county.  I hope that you have family/friends to help you at this time.  But, I also  understand that sometimes support systems aren't always available, so we must create our own.  Try to reach out and allow others to help you.  I'll be thining of you. 
 
My mom used this service at times when I could not take her to treatment. 

MidwestGal
New Member


Date Joined Feb 2005
Total Posts : 10
   Posted 3/23/2005 7:22 AM (GMT -7)   

Michelle, I forgot to include this. 

<!--StartFragment --> 
ROAD TO RECOVERY
MEDICAL TRANSPORTATION
Offers a volunteer-based driving program that provides transportation to and from medical centers for cancer patients undergoing treatment for their cancer.
ELIGIBILITY:  Any Cancer patient living in Washtenaw, Livingston, or Monroe County, who is undergoing chemotherapy and/or radiation. Must be ambulatory.
APPLICATION:  Call the office and ask for the Patient Service Coordinator (PSC). The PSC will coordinate the transportation with the volunteer driver and the patient.
FEES:  No fee.
SERVICES:  Medical Transportation for Cancer

MidwestGal
New Member


Date Joined Feb 2005
Total Posts : 10
   Posted 3/23/2005 7:24 AM (GMT -7)   
<!--StartFragment --> (734) 971-4300   Sorry, forgot to paste the phone number...I'm typing without my glasses this morning.

Skky
Regular Member


Date Joined Mar 2005
Total Posts : 146
   Posted 3/23/2005 8:50 AM (GMT -7)   
Hi Elizabeth I have the support of my mother and husband.I've been lurking on this board, as it seems to be a great source of support/information. I have a small son so during my surgery I will be staying with my mom in Oakland county.I'am hoping that I feel well enough during chemo to be home.I appreciate any information you have that might help. My best friend also set me up with a woman from her work that has been calling me. I have never met her personally, but I can tell she is a beautiful person.I'am amazed at how wonderful the survivors of this disease are.

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/23/2005 10:11 AM (GMT -7)   
Hi Michelle-
I'm in Oakland county too....let me know if you need anything....

Lori


Skky
Regular Member


Date Joined Mar 2005
Total Posts : 146
   Posted 3/23/2005 11:01 AM (GMT -7)   
Hi Lori- Just wondering if you did chest x-rays,bloodwork, etc. at U of M.If so, how long did it take for you to get results? I'm waiting for the surgeon to call back to set up the surgery.

Michelle

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/23/2005 12:07 PM (GMT -7)   
Michelle-
When I was being staged, I did the chest xray and bloodwork at my PCP's office in Farmington Hills. With my HMO, that is what she needed me to do. I got results within a couple days, but I do not recall. I did my bone scan and MUGA (pre-test before chemo) at Providence. Again, I do not recall how long for results, but not too long.
I had a chest xray and bone scan at the U last March. My nurse emails me, and I think I got chest xray results within 24 hours, but that is because we did not have to wait for the whole report to reach the doc, she slipped me info on the side. I think the bone scan took maybe 2-3 days too.

Are you doing surgery at U of M? What kind?

Lori


Skky
Regular Member


Date Joined Mar 2005
Total Posts : 146
   Posted 3/23/2005 12:44 PM (GMT -7)   
Lori-
I will be having a lumpectomy and sent. node done at U of M.They also want me to do genetic testing, and I will have to wait for those results while I do chemo. The surgeon says if they find cancer in the nodes they will proably go ahead with a mast. I had an auxillary ultrasound and they didn't see any swollen nodes.The surgeon said that is good,but not 100% positive.I'am so hopeing!Didn't you say you had the lumpectomy?So, do you think I will be staged after these results?They gave me a Nurse by the name of Michele-maybe i'll wait one more day and email her.

Michelle

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/23/2005 1:04 PM (GMT -7)   
Michelle-
Yes, I had a lumpectomy, first at Providence, then a re-excision for clean margins at the U, with the SNB there too. It was done on an OP basis. My onc's nurse is Gini (short for Virginia), and I found early on that email use to communicate was a great way to go, especially for my surgeon when I did not know which procedure to do. I asked a ton of questions and got them answered when he was ready, and then I had a written document to study instead of relying on my handwritten notes. Yes, once they know the results of all the tests, they can tell you your stage.

As for genetic testing, please be sure to carefully consider the pros and cons. I asked about it, since I was 31 but had no family history. About 8 months after chemo, I went for the counseling, and then waited 6 months to do the testing. I needed to be sure I was prepared to handle a postitive or negative test result. Some people choose not to get testing...my opinion is if it will help you in some way, then go for it. If it helps to make a decision for surgery or chemo or future pregnancy, then do it. If you are not sure, you can always wait. I did the testing at the U too, Dr. Marajver was the onc, and Kara M was the counselor, who was wonderful.

I had asked about doing a mast or full node dissection if they found cancer while I was on the table...my surgeon said they would not do that, since it required different amounts of time in the OR, it had to be scheduled in advance.

My surgical nurse was Roxanne, but I did not see her much after I was cleared from surgery. I still see the onc nurse every time I see the onc, and she is my main person with whom I communicate.
Lori

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 1:11 AM (GMT -7)
There are a total of 2,732,428 posts in 301,019 threads.
View Active Threads


Who's Online
This forum has 151182 registered members. Please welcome our newest member, Sean C..
197 Guest(s), 3 Registered Member(s) are currently online.  Details
chacha, Stanislav, JaxCalvin


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer