We could use some prayers, please.

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   Posted 3/23/2005 7:20 PM (GMT -6)   
Our dear little great granddaughter has been diagnosed with Down's.  Believe me I know it could be much worse news, Down's is not the worst problem she could have.  I have friends with children with more severe problems, but we have always been so fortunate in our family.  My grandson is a youth minister and his wife an early grades teacher, and they are fine with the news. He grew up with a friend with Down's and her aunt adopted a child with Downs.  They know they are equipped to handle a special child where other families may not be.  There is plenty of love that will be given this dear baby on both sides of the family. Please say a little prayer for her that her problems will be minimal.  They are going to see specialists tomorrow. I understand that it is best when the diagnosis is made early.  They are in the Cincy area where there are wonderful doctors and hospitals.  God had a special needs child and he knew where to send her.  Hugs MK

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   Posted 3/23/2005 7:24 PM (GMT -6)   
Oh MK,

My heart is certainly going out to you and your family. It had to have been so very hard hearing those words. I will be praying that her problems will be minimal. It sounds like she was GIVEN to the right parents. What special people they must be!

Sending you loving hugs to help ease this news.

Love you,
^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"

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   Posted 3/23/2005 8:14 PM (GMT -6)   
Oh, MK, I am sorry you have an extra challenge. I am so pleased to hear that the baby's parents are at ease, knowing they can care for her. Some people with mild Down's seem to grow up to be quite functional, and we'll all be praying that she has mild symptoms. Seems nothing is easy, my parents' friends have had grandbabies born with problems too. I just know you will love her to pieces, and she will bring you a new joy that you can not yet imagine.
L, H & P-

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   Posted 3/23/2005 8:15 PM (GMT -6)   
Mary Kay
I guy I used to work with, his first child had downs.  When Miranda was born, the downs part was the least of their worries and she had other problems.  Now she is thriving but I do know that they have worked with her from day one with tutors, etc.  If they are interested I could get you Mike's number.
We have raced "for the Cure"
Worn Lee's Jeans on Friday "for the Cure"
Bought New Balance tennis shoes "for the cure"
Worn pink ribbon pins "for the cure"
Collected donations "for the cure"
Ate pink M&M's "for the cure"
Drank Sutter Home wine "for the cure"
Spent an extra $.08 on a stamp "for the cure"
Ate Lean Cuisine frozen dinners "for the cure"
We have all done our part "for the cure"
now you do yours and get us that cure.

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   Posted 3/23/2005 8:15 PM (GMT -6)   
Oh, MK:
You all sound so positive, and that's so fast, considering they must just have heard the news.  It's such a good thing, to be that positive about this.  I'm so glad that little one is with you all.  She's a lucky little girl. 
(((((((((((((MK and Famiy))))))))))))))
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius


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Date Joined Feb 2005
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   Posted 3/23/2005 8:59 PM (GMT -6)   
My prayers will go out for all of you and hope for the best news from the specialists.  The Lord knows who could take good care of that little girl.  They sound like they were made for her and they will have the ability to help her in the best way possible.
Not to mention the best Great Grandma with tons of love to give!
Blessings and hugs to all of you,
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.

-Vesta M. Kelly

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Date Joined Feb 2005
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   Posted 3/23/2005 9:31 PM (GMT -6)   

I can totally understand what you are feeling right now, and you can bet I'll be keeping ALL of you in my prayers.  As you may remember, my daughter suffered a massive brain hemorrhage at birth,  now has hydrocephalus, and many other resulting problems.  It is so unexpected, and in the beginning, it is incredibly overwhelming.  I was an elementary teacher before going back to get my Master's in special education of the cognitively impaired.  Before my daughter was born, I was working in a young adult program with the Intermediate School District that primarily served individuals with Downs.  Some of the students had their own apartment with a roomate situation. Most held jobs in the community.  I know it is heartbreaking for all of you.  I also think that dealing with this is cyclical, too.  The good Lord knows I sure have my ups and downs!  I am certainly not an expert, but I guess the best advice I can give is just to do what I'm sure all of you will do anyways--love her!  I don't really pay much attention to the grim reepers that I deal with on a weekly basis with my daughter.  While I'm sure that all of the physical therapists, doctors, nurses, etc that you'll run across with your little one have good intentions, nobody can really say for sure what his outcome will be.  A lot of love, high expectations, and hard work goes a long, long, way.  I am going to attach something for you to read that I think is just beautiful.  Elizabeth

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger. 'Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecelia. Rudledge, Carrie, twins, patron saint...give her Gerard. He's used to profanity.' Finally he passes a name to an angel and smiles, 'Give her a handicapped child.'

The angel is curious, 'Why this one, God? She's so happy.'

'Exactly,' says God. 'Could I give a handicapped child a mother who does not know laughter? That would be cruel.'

'But has she patience?' asks the angel.

'I don't want her to have too much patience, or she will drown in a sea of self pity and despair. Once the shock and resentment wear off, she'll handle it. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make him live in her world, and that's not going to be easy.'

'But, Lord, I don't think that she even believes in you.'

God smiles, 'No matter. I can fix that. This one is perfect. She has just enough selfishness.'

The angel gasps, 'Selfishness? Is that a virtue?'

God nods, 'If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says Momma for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.'

'I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing my work as surely as she is here by my side.'

'And what about her patron saint?' asks the angel, pen poised in midair.

God smiles, 'A mirror will suffice.'




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   Posted 3/23/2005 9:34 PM (GMT -6)   

MK: (((((((((hugs))))))))))  I am sure that you are heartbroken right now, but as you said, God had a special child he needed to place and he had the perfect parents in mind. And, as others have said, she has a great grandmother that has tons and tons of love to give her and her parents. My best friends niece's first child was diagnosed with downs when she was a month old. She turned 13 last week and is more than able to keep up with her brother and sister. Her mom has fought schools to make sure that she gets the best education that there is and it is amazing to me how mature she is. I had a cousin that had downs. She was in her 40's when she died. She worked in a shelter as an adult but would give her mom her paycheck each week. One week her mom was in the hospital and told her that she could go cash her check but she could only keep the change..not the bills. WEll, she had them give it all of it to her in change! We still laugh at how astute she was and some of the pranks that she pulled.




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   Posted 3/23/2005 10:29 PM (GMT -6)   
MK, know that you all are in my thoughts and prayers. Medicine and society have come so far and children who have Downs Syndrome do so much better than they used to. I know this is not what everyone was expecting, but this child will be raised with love, and that's what really matters. Elizabeth, your story brought tears to my eyes. Thanks for sharing it. Hugs to all, Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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   Posted 3/23/2005 10:54 PM (GMT -6)   
Dear MK...congratulations on a new grandbaby!  I know she will bring joy and laughter and love into your life.  I also know that it is hard to deal with the news of her Down Syndrome diagnosis.  I work with special needs infants and toddlers, and I must tell you that the children with Down Syndrome have a special place in my heart--such a sweetness they have.  It sounds like God knew the perfect family to send her to.   
Love and hugs...
PS...If they need any information about getting hooked up with Early Intervention services, please call or give them my number.  I'd be happy to help them out.  We start working with families as soon as they receive a diagnosis!

Post Edited (barkyboys) : 3/23/2005 8:59:41 PM (GMT-7)

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   Posted 3/23/2005 11:01 PM (GMT -6)   


Even though things may look scarey for that little one and her family right now, she will bring many a smile and tear to all of you in the years to come.  As everyone has said, she was given to this family for a reason and has a wonderful Great Grandma who will reap the benefits of this 'special' child of God.

Elizabeth's article was wonderful.  As I anxiously await the birth of my first grandbaby, lots of worries run through my mind.  Prayers for all and God Bless.

Love, Kitty

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Date Joined Jul 2003
Total Posts : 135
   Posted 3/24/2005 1:44 AM (GMT -6)   
Dear MK
Positive thoughts from down under for you and all the family. Downs children are really special and bring a lot of joy with them. They teach us what love is really all about. I grew up with a Downs boy who lived down the street and my dearest school friend has a brain injured handicapped child who is dearly loved - he is 37 now.
My wish is that all connected with this dear wee babe will be given the special talents needed to help this wee girl make the most of the potential she has.
L & H

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   Posted 3/24/2005 6:34 AM (GMT -6)   
God really does know who to give these special children to. What a wonderful family. I wish them all the love and support they need. Elizabeth thank you so much for your post. Just beautiful. Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.

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   Posted 3/24/2005 7:28 AM (GMT -6)   
MK, congratulations on your new grandbaby. A special girl has been placed with a special family. I am glad that you are all positive right now.

ddd ddd ddd ddd
,,\)/,,,\)/,,\)/,,,\)/,,\)/ ,,\)/,\)/,\)/,,\)/,\)/,,\)/,

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   Posted 3/24/2005 7:59 AM (GMT -6)   
Add my congratulations, Mary K. My aunt had Down's, and was a most special person, so very sweet. She was born in 1918 and my grandmother was told she wouldn't survive, but my grandmother, already mother of eight, had a different plan. I am happy to be able to write her name in remembrance, Helen Claire Frazier. She lived to be 72 and was a blessing to all our family.

I know your sweet baby girl will bless your family's life.

Big, big hug, Glenda

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   Posted 3/24/2005 8:40 AM (GMT -6)   
{{MK}} I am picking myself up, dusting myself off and hugging you! I am so sorry to hear the news of that new precious baby. I know that she will be very special and everyone is right, she has been placed as part of a very special family that will love and care for her. My goodness she has all of us that love her already! You and your family will be in my prayers that all needs are met.

Sara Dearing
Today is a gift, that's why they call it the present!

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   Posted 3/24/2005 8:59 AM (GMT -6)   


All children are blessings from God.  Special needs children are a wonderful example of what love and blessing is about.  They give it freely.  God trusts special parents and family with these children.  He is perfect and did it right once again. 

Your wonderful great-grandchild is blessed with you and your family.  She will have a wonderful life that she will grow in and be happy.  Pay attention to her, she has a lot to teach.

You and your family are in my prayers.  May you all be lead to the right care providers and teachers so that you all give her the life for which she was born.

Love and great big hugs to you my friend,


 Perfume and incense bring joy to the heart, and the pleasantness of one's friend springs from his earnest counsel.

Proverbs 27:9

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   Posted 3/24/2005 9:03 AM (GMT -6)   
Thank you all, dear friends! I remember that you had said you had a special baby, Elizabeth. I am hoping to send a little something that I have knitted for her one of these days soon. I have been knitting for Riley. Thank your so much for the little story. It is great. I am sure you are a very special mother!!

I will share this thread with the kids there are so many wonderful hugs and wishes here. Bev, they are going to Children's in Cincy today for an appointment. I bet the doctors they see are some you are familiar with. I will tell them about you and your offer as well as sharing the thread. And the rest of you who have shared information and family stories. I loved the change story, Deb. Everytime I have seen anything about a Down's special person loving nature is mentioned. For all the love we give Riley, it will come back in greater measure.

Thanks again for all your love and hugs for Riley and her loving family, MK

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   Posted 3/24/2005 10:27 AM (GMT -6)   

Dear Mk

Riley will grow up surrounded by such a loving and caring family....please know that I am thinking of you all .....

Many hugs for you Riley and her parents,




Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....

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   Posted 3/24/2005 9:12 PM (GMT -6)   
How wonderful that special little Riley has come to such a special, big family. As you know, I'm also a special ed teacher, and I can tell you that Downs children are some of the most wonderful people on the planet. Hugs to you all. And special prayers coming your way, too, for a very special little girl.


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Date Joined Dec 2004
Total Posts : 70
   Posted 3/24/2005 11:42 PM (GMT -6)   
Down's children are so very precious. Sending prayers that any resultant complications are nil to minimum. Blessings.

Breast cancer has become an epidemic. After all of the these years and billions of dollars donated for research...WHERE IS THE CURE???

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   Posted 3/27/2005 2:49 PM (GMT -6)   
I have a brother who is brain damaged from oxigen deprevation, and I'll tell you the truth, he is the best child out of the four of us. He's doing great, has always kept a job and is well liked.. He has a wonderful marriage too. He was always there for my grandparents. After working six days a week, he would go and mow their lawn etc. on the seventh. My mom always said that he was the salt of the earth. Now, he is the one child that lives near my parents since my other brother has just chosen to move to Florida. He helps my parents and bowls with my dad giving him lots of joy. ANd as a former special ed. teacher, I believe also that she is in the best possible place.
She is very lucky to have you and your family. Hugs, Di
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