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Luci
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Date Joined Jul 2003
Total Posts : 892
   Posted 3/29/2005 2:02 PM (GMT -7)   
Well, I had my tramogram done this morning at 8:15.  Of course, the tech can't SAY anything, but she did give me a thumbs up when she came back from having the radiologist look at them.
 
So, that's done for another year.  I'll probably get the official results from the gyn. in a week to 10 days.
 
The tech, who is trained in this procedure, asked me why exactly I'd need it if I'd had bi-lateral masts.  I explained to her about the 3-5% of natural breast tissue that gets left behind in all mastectomies because it's virtually impossible to remove all of the tissue against the chest wall. She seemed so surprised that anything at all gets left.  So here's a question.  If they train people to do this procedure why don't they give them a little info. about WHY it's necessary for those women who elect the mast/ tramflap option????  Curiouser and curiouser...
 
Anyway, I'm glad it's off my "to do" list.  L&H's, Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 3/29/2005 3:45 PM (GMT -7)   
I would like to know how many of us out there who have had TRAM's done get a "TRAMogram." Technician accidentally did one on me, and all of my doctors, from the reconstructive surgeon to breast surgeon to oncologist to family doctor, said it was a waste to do them. The tech later told me that she had been chastised for doing it.

Luci, I think it is a good idea for the very reasons that you explained to the tech. I often wonder if I would be able to "feel" a lump there before it was quite large.

So I'm just curious if the rest of the sisters here could share their experience with this subject.

Love and hugs...
BEV

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 3/29/2005 5:03 PM (GMT -7)   
Hi Bev....somewhere on the U of M website for their cancer center, they talk about the Tramogram. I think they support it too, and poo poo on the docs that think it is a waste. Thank goodness we are an educated bunch!

Luci, glad you got the thumb's up, you deserve to have one less stressor!
L&H,
Lori


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/29/2005 5:11 PM (GMT -7)   
Nope, never had one here. I had my mimmogram yesterday though. The tech was very nice, we talked some and I told her about you all and how upset it makes me when a dr tries to tell someone they are too young, or they KNOW it is benign. She agreed with me wholeheartely, brought my films in, put them up on the light board and then even added last years so I could compare them. Looked great to me. Now here is the real surprise. My appointment was at 1 pm. I was not real early, pretty much on time and when I got in my car to start home it was 1:13. I did not feel rushed through, felt we had had good communication and all in all felt it was a very satisfactory visit. I think they got a new machine, it must be much better. LOL. Hugs MK


kmonke
Regular Member


Date Joined Jul 2003
Total Posts : 352
   Posted 3/29/2005 9:38 PM (GMT -7)   

This is the first I have heard of a Tramogram.  What exactly is it?  After my appointments today, I WILL be having the mastectomy and reconstruction - Tramflap I am guessing.  Have to get the appointment set up with the PS whenever I can get in to see him.  Radiologist suggested I may want to have the "good' breast removed as well and two new boobs built alike.  Don't know if Blue Cross will agree however.  Will be waiting until after this grandbaby comes (in the nest couple of weeks) and before the next one comes in September to have this done.  Another thing my radiology onc said is that because of the way my skin reacted to radiation, it may take longer for the healing process when I have this procedure done also.  Oh Joy of Joy's.

Luci, if you or someone can give me a little more insite on the Tramogram, and what else to expect, I would be very grateful.  Thanks!

Love ya,

Kitty

 

 

MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 3/30/2005 7:10 AM (GMT -7)   
Kitty,
I came into read this thread to find out what a "tramogram" was too.  No one has really said but I'm gathering that it's a like a mammogram done on reconstructed breasts that had the TRAM flap procedure.
 
Am I right?  I'm sure someone will come along and tell us whether or not I am.
 
Hugs,
Mia
 
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.


-Vesta M. Kelly


Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 3/30/2005 11:29 AM (GMT -7)   
Hi, Mia, yes, you're absolutely right. The problem is that very few radiologists have techs who have trained for it. It's really very simple. It's done on the mammogram machine but they use different plates and take 4 views (2 of each reconst'd breast).

The procedure came out of the U of Mich., but like all things new and innovative (I remember when sentinel node bx. was raising eyebrows among breast surgeons) it's taking some time to get radiologists on the bandwagon. There is still the prevailing theory that there's ONLY 3-5% of breast tissue remaining so the chances of a recurrence are slim. To which I say "Pooh!" What can a physician who sees a tramflap patient tell that patient if, heaven forbid, there is a recurrence??? Tramogram is a procedure that can actually find a recurrence in its very early stages. Who wouldn't want to have it done if can possibly prevent add'l physical pain and emotional torture??

I'll look for U of Mich. article and post the website. My gyn. in NY had never heard of it when I first brought him all of the info. I left it with him. A week later he called to tell me he'd actually gotten on the phone to the U of Mich and discussed the procedure with a physician there. 2 weeks later I was having my first Tramogram. Thanks heavens, there ARE some physicians who are open-minded and receptive to new info. brought to them by their patients. My dr. actually thanked me when I saw him again. He told me he has a number of Tramflap patients and he was now encouraging THEM to go for the procedure.

Oh, FYI, it's also covered by health insurance, so it's really a "win" for everyone involved. Hope this helps. Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 3/30/2005 5:48 PM (GMT -7)   
Would like to see the article. I guess my real question would be: Mammograms rely on fatty breast tissue to get a good read. (For those of us who had clean mammograms at early ages because our breasts was too dense to read, you know what I mean.) So how does the TRAMogram read through adbdominal muscle, which would be even more dense than young breast tissue?

If you could get me the info, I would appreciate it. If it is valid, I would sure prefer to have it done than not!

Thanks!
BEV

kmonke
Regular Member


Date Joined Jul 2003
Total Posts : 352
   Posted 3/30/2005 9:49 PM (GMT -7)   

I'd really be interested in reading the article too, especially now where I will be having the mastectomy and reconstruction done.

Thanks, Luci for all the info you provide.

Kitty

 


Luci
Veteran Member


Date Joined Jul 2003
Total Posts : 892
   Posted 3/31/2005 4:33 PM (GMT -7)   
Bev and Kitty: I've found the article but when I went to the address at the bottom I got a message that the article is no longer available online.

I can, however, FAX you a copy or send a snail mail copy. If interested in either of those options post here or email me. I have the same email I've always had on Jo-Ann's list. I'll wait to hear from you. Hugs, Luci
In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


kmonke
Regular Member


Date Joined Jul 2003
Total Posts : 352
   Posted 3/31/2005 9:34 PM (GMT -7)   

I just sent you an email, Luci.  Thanks!

Kitty

 


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 3/31/2005 10:26 PM (GMT -7)   
I'm sending one, too, if I can find Jo-Ann's list!!!

Love and hugs...
BEV

trublu2000
Regular Member


Date Joined Aug 2003
Total Posts : 76
   Posted 4/6/2005 1:19 PM (GMT -7)   

Hello All,

I have been having a tramogram for the past 3 years. Last year I went to a new place and the tech had never heard of it but didn't give me a hard time.  I had the info from Univ of Mich at home and faxed to her so she would know all the details. I think it makes sense to do it and was so glad when I found about it from someone on this board. It will be time for another one in a few months, time goes by so fast.  It is five years this month that I was dx, surgery was in June 2000. MK can you believe that?

Love,

 

Tru


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 4/6/2005 2:59 PM (GMT -7)   
Luci...tried to email you from work, but it came back! Did you get an email from my home addy?

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 4/6/2005 4:24 PM (GMT -7)   
Glad to see your post Tru. Five years has gone by quickly. We have lost many good friends and kept many more with us. It sounds like you are doing well. I am happy about that. Take care and stop by more often. Hugs MK


DiVanDyke
Veteran Member


Date Joined Jul 2003
Total Posts : 734
   Posted 4/6/2005 5:53 PM (GMT -7)   
I've never heard of it, but I'm glad you are OK! Hugs, Di
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