Laure: The most important thing is complete trust and confidence in your medical team. They need to be working for YOU and together for your best care and treatment. When my father was diagnosed with lung cancer, I called Richard Bloch (H & R Bloch) as I had read his book. He was wonderful and talked with me for over an hr. The one thing that I will never forget his telling me was this...."find an oncologist that believes that he/she can help you. If you get the feeling that he/she doesn't feel that way then get up and leave the office and never look back!" When I was diagnosed with bc, that was the one thing that I remembered. I used that thought when I met the first surgeon and decided he wouldn't touch me if he was the last surgeon on earth. Mia has given you wonderful advice. Please don't get so frustrated that you give up!
My insurance company paid for it with no questions asked. (United Healthcare) But I'm sure they are glad they did after seeing the results. Like Laure' I would have had no use for the chemo since I scored a 3 out of 100. The lower the number the lower your chances of a recurrence. And my number was the lowest the Cleveland Clinic has seen. So they saved a ton of money (sounds like a Geico commercial) on not paying for unnecessary chemo. Heck they saved up to $1,000 just in not having to pay for a wig. (They have a "scalp prothesis" coverage of up to $1,000!) So in the long run I'm sure chemo with all it's side effects and additional meds would have cost WAY more than the $3,500 for Oncotype DX.
So if you are trying to get your insurance company to pay for it, I'd have your onc. office call them and give them the low-down on comparison costs. They will most likely jump at the opportunity to pay for the test. That is what my onc. office was going to do if my insurance company had balked.
Good luck and let us know how things turn out.
Thank you Mia! I also have United Healthcare but I'm in Florida.
I have already had the test and came back with a low recurrence score. I'd rather have your "3" though! Even if I do have to pay for it, I feel it was well worth having the test done.
United has already sent me a letter saying they are not going to cover the cost of the test. I will, of course, appeal it. I also know that Genomic Health is also fighting on my behalf.
The fact that United has paid for it in your state is great ammo for me. Can't thank you enough for your help,
You're right, the posts bring up some great points that I can use with the insurance company. I'm taking very detailed notes.
There are so many studies out there that say chemo isn't necessarily for everyone. I think the Oncotype DX test is at least a step in the right direction to help women with treatment decisions. I used it to justify my decision not to have chemo. Had it come back with a high recurrence score I probably would have changed my mind and done the chemo.
Thanks for the good wishes and for sharing your thoughts.
Post Edited (marianne2) : 7/21/2005 1:43:06 AM (GMT-6)
I go today to the oncologist to get my results of the oncotype test. I'm hoping for once in my life to score low on a test! I'll let you all know tomorrow.