Had my onc appt

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postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 4/17/2005 10:27 AM (GMT -7)   
Hi! I saw my onc the other day and all is good! I don't see him for 1 year now and then that will be it! Breaks my heart, it does! LOL! I will be seeing my reg DR about whether or not I should take something since I am no longer on tamoxifen. I was suppose to finish it till July, but I am not going to. I really don't think that 3 mo is going to be so important, and I just want to stop now.
confused  he other news is that I saw my rhuematologist for my 2nd appt and I have Ankylosing Spondylitis. It is arthritis effecting the spine. I guess that is why my hips hurt so much too. I really hope it does not progress, but it has already gotten worse over time so I don't know. I do have the HLA-B27 gene inherited from one of my parents. Oh goodie. You can have the gene and not have AS, so I hope if I passed it on to my kids they don't get it. I am now reading all I can about this, and found a message board that deals with it and is quite active. These boards are so good for learning =) and making great friends!  Anyway, if any of you have any knowledge of this, please let me know as I am still in the learning phase. At least I know now that I am not just a "whimp" and really do have a reason to hurt so much. The Arthrotec is working well thought, thank God, so I hope it continues! Well love you all! Gail
 It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.   Elisabeth Kubler Ross


Candy
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Date Joined Jul 2003
Total Posts : 1294
   Posted 4/17/2005 12:39 PM (GMT -7)   
Gail, I know nothing about AS, but plan to learn. I have already copied the name and will google it. Hope you continue to get relief with your meds.

Love and hugs,

Candy

 Perfume and incense bring joy to the heart, and the pleasantness of one's friend springs from his earnest counsel.

Proverbs 27:9


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 4/18/2005 7:03 PM (GMT -7)   
{{{{{{{{{{GAIL}}}}}}}}}},

So sorry you have to be dealing with the Ankylosing Spondylitis. It sounds so painful. Bless your heart!

Sending you some hugs, hope you can feel them.

Love ya,
Debbie
^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 4/18/2005 7:09 PM (GMT -7)   
Gail:
 
What next?  I'm so sorry you're in pain.  At least there's a diagnosis.  Is there treatment?  I hope so.
 
I'm glad you're where you're at with the Tamoxifen.  
 
Always in my prayers. 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 4/19/2005 9:11 AM (GMT -7)   
Sorry to hear about the AS. I did not know anything about it before, so will learn along with everyone else. It is not a nice sounding name or problem. Will keep hoping that the medication does it's job for you. Hugs MK


Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 4/19/2005 12:08 PM (GMT -7)   
Hi Gail! Glad you are getting relief from the Arthotec. If you remember, I've been on Bextra for the RA and it has just been taken off the market. I just had my rx refilled so I have enough for another month, but I know I am going to have to switch. I've been through most of the NSAIDs already so I am not sure what my rheumatologist will try next. Congrats on the good onc visit! L&H, Frayda

wackygal
Veteran Member


Date Joined Jul 2003
Total Posts : 857
   Posted 4/20/2005 2:02 PM (GMT -7)   
Gail - Congrats on the onc news, sorry to hear about the AS...hope there are good options available for treatment/management of it.
YAY on finishing the tamox. ! you must be happy...

hugs
stefanie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
"It's been worth everything I've been through,
 To do what I do"

                       To Do What I Do   -Alan Jackson, 2004

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