Need some help!

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grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 4/24/2005 7:01 AM (GMT -7)   
Hello and I hope this finds everyone feeling well. I'm sorry I feel like I only come here when I need help but I read everyday.
We took my mother to the breast clinic in Rochester, New York to rule out inflamatory breast cancer, I was still very uncomfortable when we left. Before going she had a red spot on the left breast and that breast leaks, also her nipple is now inverted and she gets alot of pain in the breast. They tryed her on an antibiotic and the redness went away but everything else remains and they can now feel a lump so at the clinic they did a repeat mamo and U/S and a needle biopsy which came back neg. and they told her that they saw a cluster of cyst and that was where they took the biopsy from.All that I have read says that they don't rule out inflamatory b/c with a needle biopsy. I read something about a skin punch biopsy. I think my mom would like to just go with the neg. biopsy and be done with it. I would welcome any advice that anyone could share.
I find all of this unsettling, its time for my 3 month check on May 3rd and I'm anxious about that . I feel like some days I see a normal person in the mirror and other days I'm not so sure. Thank you for listening.
grammy

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 4/24/2005 7:16 AM (GMT -7)   
Boy I don't blame you for feeling worried. But if this is a breast clinic, you would think they would know IBC................ Joyce is our IBC expert, that is what she has/had. She is away right now, without a computer, so guess we have to wait for her help. Did you try googling IBC to see if you could find any place specific with help? There is also help available here at Healingwell but I have not checked IBC. I am really not very good at checking for information. Maybe someone else will have some more ideas for you. Don't give up. Let's see what else you hear here. Hugs MK


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 4/24/2005 7:26 AM (GMT -7)   
A second opinion is never a bad idea. I don't have experience with IBC, but I would want someone to confirm these results. I'm sure Joyce will have more input...Joyce, where are you???

Love and hugs...
BEV

grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 4/24/2005 4:51 PM (GMT -7)   
Thanks for trying to help. I am not sure if I'm making more out of this then I need to because of what I have gone through. I feel that they have not ruled it out , I will keep checking to see if Joyce has any info to offer. Thank you both for trying to help.
grammy

nurse_mikki
Regular Member


Date Joined Jul 2003
Total Posts : 349
   Posted 4/24/2005 5:17 PM (GMT -7)   
I would go for a second opinion. I worked as an RN for my breast surgeon after finishing my BC treatment.

A few questions for you: Is the nipple retraction a NEW thing? Or has it been like this for most/all of her life? If NOT a lifelong thing, I would definitely request a surgical biopsy.

You are right that a skin punch biopsy should be done. They need to sample the skin in the suspicious area, as well as the underlying tissue for the most accurate picture. Needle biopsies are notoriously inaccurate--there is a much greater chance of them missing something with that (relatively) tiny needle. Better biopsy ideas would be a core biopsy (done in the breast surgeon's office or in the mammogram suite by a radiologist) or surgical biopsy (where she would be under anesthesia & have the area cut out)

Good luck!
Michele
Somedays, it just doesn't pay to gnaw through the leather straps
~~~~~~~~
I am neither made or unmade by happenings around me, but by my reaction to them.
~~~~~~~
May this disease NEVER be allowed to take another wife, mother, daughter, sister, lover or friend........
~~~~~~~~~~~~~
I cannot control the wind, but I CAN adjust my sails 
 ~~~~~~~~~~~
You can choose to look UP or DOWN--it's all about putting perfume on a pig. It is still a pig and it STILL stinks, but it stinks BETTER!
 ~~~~~~~~~~~~~
Mikki630's Breast Cancer Chronicle--Demystifying BC, one step at a time
  


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 4/25/2005 4:11 PM (GMT -7)   
michele,
thank you so much for your response. the nipple retration is a new thing. My mother saw her gyn today and he does not think she needs to go any futher with this. the hard part here is that she just wants to go with what he is telling her. I know where she is coming from on that but, if it is IBC waiting 4 months to have a recheck could be 4 months to long. I was told in Dec. of last year that the lump that they could see on the u/s was nothing to be told in May that I had B/C. I guess it is her choice, but it is making me worry and its now time for my 3 month check and I worry about that. So pretty much all I do is worry.
Thank you so much for listening and the good advice I'm just not sure what I can get her to do with it. I shall keep trying.
God Bless
Grammy
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