PET Scan results

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cynd56
Regular Member


Date Joined Aug 2003
Total Posts : 137
   Posted 5/2/2005 8:00 PM (GMT -7)   
Thank you all for the hand holding and prayers Thursday thru my PET scan. Next time if I don't remeber tell me that my arms don't go well over my head. I put them there and had quite a bit of pain in my shoulders and they wouldn't let me move them down because the test had already started. Rigged up some pillows to rest them on to take the pressure off the shoulders. I have made a mental note but I'm sure next time I'll put them right back up there. I got my results today. They made me wait to see the doctor before doing my treatment. Got a little anxious wondering if that meant they weren't going to do treatment but did get the regular after. The results were what they already pretty much new. Diffuse skeletal matastases. present at the angle of the right mandible, rt clavicle/shoulder, left shoulder/scapula, rt glenohumeral joint, rt scapula, several ribs, thoracolumbar spine, and pelvis. The liver and spleen appear enlarged and heterogeneous, along with prominent streak artifacting. the reminder of the study is normal. The doctor wasn't sure what the jargon with the spleen and liver meant but thought it was a postive that it didn't specifically say metastases. If anyone knows what it means would appreciate any comment. Thank you all again for being with me via PCE. I see my stem cell doctor tomorrow so if anyone is free...... Love you all, Cyndy

possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 5/2/2005 9:02 PM (GMT -7)   
Oh Cindy im so sorry,your in my prayers.Wasthis a recurrence from breast cancer? Im going through chemo now .would like to hear from you. Lots of prayers,Tammy

cynd56
Regular Member


Date Joined Aug 2003
Total Posts : 137
   Posted 5/2/2005 9:50 PM (GMT -7)   
Dear Tammy, I was stage 4 when I was diagnosis, quack doctor, i did the CAF and Taxol and radiation then had a stem cell transplant then made it a 1 1/2 years before reoccurance Aug of 2000, ttried a hormanal treatment that I didn't response too and started chemo Feb 2001 and have had it every week since then, did hercepetin and taxol for 18 months, then did herceptin only for alittle over 2 years and in November things seemed to be headed south so added Navelbene to the Herceptin and now they are wondering if it's not working because my tumor marker is going up so it a wait a see. I will know more after the transplant doctor sees me tomorrow, he seems to determine what treatment in done and then I get it here back home. Thanks for all yoou prayers. Hugs Cyndy

Ynkefan31
Veteran Member


Date Joined Jul 2003
Total Posts : 586
   Posted 5/3/2005 4:23 AM (GMT -7)   
Cyndy, Don't have the info on your pet scan jargon. But am offering my prayers and good thoughts to you. GOod luck with the transplant Dr.

ddd ddd ddd ddd
,,\)/,,,\)/,,\)/,,,\)/,,\)/ ,,\)/,\)/,\)/,,\)/,\)/,,\)/,
VICKY


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 5/3/2005 5:23 AM (GMT -7)   
Cyndy,

I just wanted to let you know that you will be in my thoughts and prayers. I wish you luck with the transplant doctor, and I hope another stem cell transplant will be very successful. Hang in there!

L&H,
Laure'
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 5/3/2005 5:50 AM (GMT -7)   
Cyndy, when you mention seeing the transplant doctor it doesn't mean they would do another transplant, would it? I know you have been a real fighter for a long time and I have been in your corner cheering for you. It sounds like the mets are pretty much mixed into your bones, and I am hoping and praying that the liver and spleen are not involved. We are here for you, to hold your hand, cheer you on, listen when you want to vent.....whatever you need. Hugs and prayers, MK


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 5/3/2005 6:01 AM (GMT -7)   
Cyndy,

Sending you some {{{{{{{{{HUGS}}}}}}}}}}}. Please know that I am thinking of you and sending some prayers.

God Bless,
Debbie
^j^ ^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


happy!
Regular Member


Date Joined Apr 2005
Total Posts : 22
   Posted 5/3/2005 7:41 AM (GMT -7)   

Adding my hugs and prayers for you, Cyndy. Curious, you didn't mention either aredia or zometa for your bone mets treatment, is there a reason? Good luck with the stem cell doc, God bless!

 


ardee
Veteran Member


Date Joined Sep 2003
Total Posts : 854
   Posted 5/3/2005 9:27 AM (GMT -7)   
I'm sending good thoughts and prayers your way. Darn!!! Please keep us posted and let us know how treatment progresses.

L&H,
Rita


MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 5/3/2005 12:26 PM (GMT -7)   

Cyndy,

I'm sending loving thoughts, healing prayers and comforting hugs your way.  You keep fighting this thing, you'll beat it yet!

Love,


Mia
 
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.


-Vesta M. Kelly


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 5/4/2005 10:35 AM (GMT -7)   

Cyndy: I am a little late answering your post but hoping that your appt with your stem cell dr went well. I have been on the weekly herceptin and Navelbene since Nov, 2003. I had spots on my liver when I was redignosed. According to the last PET scan (Feb) my liver was clear. I have another PET scan scheduled for later this month. My tumor tag results were all over the charts for awhile also. I get them checked every 4 weeks when I see my onco. So, hang in there. Hopefully, your counts will start to drop soon. I have been on Zometa (as the treatment was on 15 mins compared to 90 for another bone strengthener). My onco told me last week that it has been found that the Zometa is causing jaw tissue to die and teeth to fall out. If you are taking this med, please check with your onco. How is your pain level? Are you taking meds to help with it? We are all here for you. Whatever you need.

Hugs...Deb


 


DiVanDyke
Veteran Member


Date Joined Jul 2003
Total Posts : 734
   Posted 5/6/2005 7:17 AM (GMT -7)   
Cyndy,
I'm sorry to hear all of those things Cyndy. I hope we can meet and I can give you hugs in person.. I had a transplant too. Mine too came back in less than two years. Prayers that you find another treatment that works. I am on Zometa now . I'm having it every 6 months because I can no longer tolerate Fosamax. I will certainly check on this. Love and Hugs, Di
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