Hey JenPossible!!!!

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Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 6/8/2005 7:44 AM (GMT -7)   
You are a sight for sore eyes! So glad to see you posting! Please give us an update and we hope you are well.  Stay cool in this heat wave we are having!
 
L&H,
Lori


JenPossible
Regular Member


Date Joined Aug 2004
Total Posts : 74
   Posted 6/8/2005 8:17 AM (GMT -7)   

Hello Lori,

How are you, too?  I can't remember if you are done or are still in treatment.

I'm at cancer treatment centers of america in IL, I'm only disconected from my chemo for two hours a day and I decided to come up to the "resource room" - I always call it the library, and everyone corrects me.  nono   Even though there are books, pamplets, and computers.  Sure looks like a library to me...

The food is so good here!   And the best cofee is in this LIBRARY.

A short update: I had radiation from Jan-Feb this year, and in March had scans here as an evaluation, and to see what else they had.  SO THE CANCER WENT FROM A HOTDOG BUN SHAPE FROM MY ARMPIT TO MY SHOULDER TO looking like the ends of the bun were bit off, and the middle is left, about the size of a golf ball.  The chief of oncology is my doc.  He said it is really hard to get rid of brachial plexus mets. This hospital  has a special machine for giving more radiation to people who had already had it, but since the cancer is attached to the subclavian vein, it's pretty risky.  I'll be back in four weeks to get scanned and more chemo.  If the cancer is not visible on the scan, then we'll start getting ready to have high dose of the mini-ICE and bone marrow transplants, maybe two, one where I'm my own donor and one from my sister (if she's a match.  we have the same blood type, so maybe we'll match).

My parents divorced when I was about two, and the sister is his daughter with his second wife.  I'm teasing my mom that the transplant will make me even more Toby-like... tongue They're actually a pretty fun bunch.

Speaking of my mom, I'm making a race for the cure banner for her-I made a team for her because I really enjoyed that my work friends made a team(the JenPossible team) and special banner for me, they wrote special messages to me on it that I see every day.  Her team is called "hope for the flowers" - I'm waiting to get email from the publisher for the proper way to credit the author, but I have a verbal approval. The book is about going through life's struggles (if you are a caterpillar, that it) and how you can decide to change things (become a butterfly) for the best with hope and faith- wow, doesn't that sound a lot like being a cancer survivor? 

Mom is doing OK, she had some post op problems but nothjing that she will allow to stop her first Race for the Cure.

Race for the Cure in Detroit is Saturday, June 11 - I get to be on the stage this year holding the 1 year survivor sign to represent (you guessed it) all the one year breast cancer survivors at the race.  The survivor shirts are so pretty this year, I just wish they came with breasts.  eyes

Maybe Ellen could show me how to do the electric slide before then?  I'm not a very good dancer, but feel like I should have some kind of victory dance.

I'll try to post a picture of the teams (some friends are coming this year as team JenPossible again) this weekend.

Have a great day!  I'm going to try to get a seat by the window here so I can get a little bit of sun. scool   There is a beautiful pond just out the window to look at. 

-JP

 

 

 

 

 

 


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 6/8/2005 8:44 AM (GMT -7)   
Jen-
I am a "veteran" I am happy to say, finishing my last few Tamoxifen in a couple weeks (OK, I kinda stopped it already, becoming a non-compliant patient!). My diagnosis was in November 1999 (a week before turning 31) and did my treatment in 2000. You may recall, I am local in Detroit too. I am going to be at the RFTC on Saturday, not sure of the time or place. When will you be on the stage with the sign? I'd love to stop by and meet you!

What is the story with your Mom? is she ill? and what is this about a book? Who wrote it? I am confused....must be this heat!

You sound great and full of life and energy...I know you have had a tough road but we're all pulling for you! Let me know if you need anything locally...
Lori


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 6/8/2005 8:54 AM (GMT -7)   
Oh Jen, it is great to see you posting. And yes, it was fun talking on the phone even tho I had to rush out to my hair appointment. That was May 24th, can you believe how fast time flies. Sorry you are caged up for now, but it sounds like a place to be, good coffee and a computer to use. The bone marrow transplant will be a an experience. Both bandlady and divandyke have been through them if you need some questions answered.

Lori, I think I posted after I talked to Jen that her mother had been diagnosed with breast cancer, also in March. Like they needed that. Jen's mother took care of the baby for her before her diagnosis. Jen sounded absolutely wonderful on the phone, you would never have thought she had the problems she faces. What a sweetheart she is.

Take care both of you,
Hugs MK


JenPossible
Regular Member


Date Joined Aug 2004
Total Posts : 74
   Posted 6/8/2005 9:02 AM (GMT -7)   
Hi Lori,
Here's a link to the event:
registration:
http://www.karmanos.org/detroitraceforthecure/registration.html

maps:
http://www.karmanos.org/detroitraceforthecure/maps.html

FAQ, has the times:
http://www.karmanos.org/detroitraceforthecure/faq.html

D1. What is the schedule for Race day?
Volunteers begin arriving around 5 a.m.
Packet Pickup opens at 7 a.m. and closes at 8:45 a.m.
Survivor Café (breakfast for survivors and invited sponsors and Race Grant Program Leaders) opens at 7 a.m. and closes at 9 am.
Shop for the Cure®, Friends for the Cure®, Stuff Check, Children's Area, and Sponsor Booths open at 7 a.m.
opening Ceremonies, honoring breast cancer survivors and celebrating the lives of lost loved ones, begin at 8 a.m.
Race events (5K Run, 5K Walk and One Mile Walk) begin at 9 a.m.
The Awards Ceremony begins at approximately 10:30 a.m.

My mom was diagnosed with stage IIIA BC two months ago. The book was written about 20 years ago, by Trina Paulus - that's why I have to ask permission. A friend of mine is writing a book about me (can't figure out why, I'm not really that interesting - I keep telling her it's more like a week of Jerry Springer shows), but that's just starting.

I need to show up at the race kind of early, to stake out a spot for the teams - how early would you want to go? I plan on getting a list of everyone's cell number - if you would like, you are welcome to walk with our teams. Email me at home, I'll send you my and my husband's numbers for starter. I think Michele was thinking of going, too.

I wouldn't quite say I'm, "full" of energy - I
've just had some coffee, that's all... : )

Gotta get back to the banner... probably have to get reconnected anyways - the hospital doesn't allow me to change floors when I'm getting chemo...something about it being toxic... : )
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