Advice...Suggestions? I have a Complex Sclerosis Lesion

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MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 232
   Posted 6/10/2005 6:46 PM (GMT -7)   
Arrggh.
 
I went in for a diagnostic Mammo due to pain in the left breast. Well, after the mammo and an U/S, they found nothing wrong in the left, but something odd in the right.  It was a spindly looking mass..not pretty.  They did a fine needle biopsy and sent it off to the labs.  It came back as no cancer..benign.  Well, the radiologist told me they will be doing an MRI to make sure that was all I had...She said the odds are good they wont find any cancer, but said sometimes these lesions can hide cancer.  She also said these things can turn into cancer if left inside.  So I will be having it removed by wire guided biopsy no matter what.  I feel sick with worry. 
 
I have done research ..from what I can gather, these lesions ARE scary, and the odds are like 50-50 that they come with cancer.  I am 33...and if I hadnt had pain in the other breast, I never would have found this out about the other side.  I would really like to hear a real person tell me about their experiences with this diagnosis.  These studies  are so difficult for me to understand...and I just feel like my life has just been taken out of my hands.
 
Thank you!
 
Michele

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 6/11/2005 7:39 AM (GMT -7)   
While I am not familiar with the term, I do know that sometimes there is more than one tumor or lump that hides behind one that may be benign. It sounds to me like you are in good hands with your doctor. The very best course is removal and complete testing. Hang out while you wait for this all to come to pass, waiting is the worst. Your imagination can run wild, but I always say "Don't worry until you KNOW you have something to worry about." You are wasting useless energy worrying. LOL, I know easier said than done, but please try. Hugs MK


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 232
   Posted 8/16/2005 5:51 PM (GMT -7)   
Its been a bit..so I wanted to post my update. 
 
After the first Mammo and U/S, they did a MRI which showed "something else".  So they sent me back to the diagnostic center for another u/s to check out the new spot.  Well, they couldnt see anything...so they scheduled me for another MRI/Biopsy.  Due to vacation planning, I had to wait until last Friday to get ot done.  Yikes.  MRI biopsies arent my favorite way to spend a Friday afternoon, but  I really wanted this all to be over with sooooo badly.  They called today, and the new spot was benign. It was normal breast tissue all clumped together. I cant recall the technical term.  I am soooo relieved, yet there is more to come. I need to schedule a consultation with the surgeon to discuss taking out the lesion since over time, they can turn to cancer.  So that baby is coming out.
 
I have been keeping up on this site...and I truly wish a cure could be found for this in our lifetimes.  Its so scary how quickly breast cancer or a breast cancer threat can really turn our lives upside down and forever change us. 
 
Thanks for reading...and hugs to you all,
 
Michele
Currently in remission on 100 mg Imuran after a year of trying EVERYTHING
else!!


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/17/2005 6:12 AM (GMT -7)   
YESSSS That spot needs to come out. It worries me a little when needle biopsies come back benign, because there is a chance they missed the actual spot. However, doing it twice sounds pretty positive, but getting the whole area removed is the smart thing to do for sure. I had a benign tumor removed about ten years before my cancer diagnosis. Because my daughter also was diagnosed I decided to get copies of my reports. It was then I learned that where the benign tumor was was where the cancer was found!!! So getting the mass out no matter what it is will help. Hugs MK


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 8/17/2005 7:32 AM (GMT -7)   
Sounds like a good decision to me to have this mass removed, too. Even though the doctors feel they have tested enough, I would opt to get the pesky and potentially problematic spot out. Be grateful you have such good, agressive doctors looking out for your well being. Good luck and take care, Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


tking
Regular Member


Date Joined Sep 2004
Total Posts : 141
   Posted 8/17/2005 10:57 AM (GMT -7)   
I agree with the others - HAVE IT TAKEN OUT!!!  We really don't need anything extra in our bodies anyway.  It's better to be safe than sorry, I say.  I wish all doctors took a more proactive approach to our health!!

Teresa King

Jeremiah 29:11 - "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."

(NIV)


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 232
   Posted 8/17/2005 5:33 PM (GMT -7)   
I am DEFINITELY having the lesion removed.  I couldnt just live and "wonder" what might happen.  I keep missing the dr.s phone calls today, but I will try again tomorrow.  My job isnt very conducive to getting phone calls as I am speech pathologist who run all over a large campus.  Figures I leave the room and the phone rings. 
 
I am soooo thankful to have dr.s who really wanted to test and retest.  The nurses commented to me that not all doctors are as aggressive in cases like mine. I am 33 and Im lucky my ob even referred me for the DX testing as she kept saying youre too young..youre too young. Well, age doesnt much matter, and now that I know younger women get the more aggressive cancers, I am urging ALL of my friends to get EARLY mammograms and self check every month.
 
Thanks for all the support and comments ladies,
 
Michele
Currently in remission on 100 mg Imuran after a year of trying EVERYTHING
else!!

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