My 1st Relay for Life as a survivor

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MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 6/27/2005 8:58 PM (GMT -7)   
This past Friday and Saturday was our local Relay for Life.  It's the 3rd one here in my small town and my second time attending.  But this time I am a cancer survivor and it was so emotional.  My DD and I attended the survivors dinner before the start of the event.  Then we went to the track (we cheated and walked back instead of waiting for the shuttles, we were SO excited) and met up with my DH and DS who joined us for the survivor lap.  Wow, I didn't expect to be so overwhelmed with all the emotion.  I could barely talk as I realized that I will walk that lap each year I am able just to show cancer it does not have me.  There were so many lovely people there and one incredibly feisty lady who told me she is a 33 year survivor of breast cancer.  She said "and you will be too" it just grabbed me so hard to hear that.  I've thought in terms of 10 years being good, 20 years being great and anything beyond that almost too much to hope for.  But she kick started something in me that really needed it.  I have been down in the dumps lately from all of this.  And the weight gain too.  Everything else in my life is good.  So why keep looking for doom and gloom?  I am alive!  I am healthy!  And I have a wonderful family and an awesome God!  So here's to the new phase of this part of my life, re-capturing my life, my essence and my dreams! 
 
On the topic of putting things in persective did anyone watch the show on Discovery about the "Boy whose skin fell off"?  Jonny Sullivan was 36 when he died of skin cancer that was a result of a rare skin disorder that causes the skin to literally fall off when bumped or bruised.  It is a long name I can't remember now but it is called EB.  There is an organization called dEBra that accepts donations for a cure.  It was a sad but poignant portrayal of Jonny's spirit.  He knew how much time he had left and used it to gain exposure to dEBra and also plan his funeral.  If you didn't see it and it is replayed someday watch it, it is a wonderful documentary.
 
Well I have my appointment with the gyn on Friday morning.  I will be discussing the lump and a possible hyster.  Hold my hand and send me a feather or two.  I only tell you now because I don't seem to get on here much with so many things going on.  And possibly right after the dr. we may leave for the weekend to go to the in-laws out of state.  I will post from there if I can but if you don't hear from me I will be back Monday.
 
Love and hugs,
Mia
 
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.


-Vesta M. Kelly


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 6/28/2005 5:13 AM (GMT -7)   
Hope things go well for your appointment. Do you want us to come with the PCE? We will be happy to. Have a nice weekend trip, too.

The walk was so neat in Louisville with all of us there. I think about it and look at the picture often. Wouldn't it be great if we could all walk together each time one of us has an event nearby?

I'm headed out to a blood test this morning for my blood sugar and my cholesterol. I know it isn't going to be good and don't want to go, but I will.

Hugs MK


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 6/28/2005 7:18 AM (GMT -7)   
I have done several Relay for Life walks, Mia, and I know what you mean about the emotional side of it. I usually have tears streaming down my face by the time I am around the track. Some years the survivors here walk their lap to Debby Boone's "You Light Up My Life." It seems like such an appropriate song with all the luminaries lit with candles. When I was diagnosed in 1996, I had to tell a group of friends in a club to which I belonged. I got the same response you did from the long-term survivor. My friend Charlotte had had a double mast. 33 years earlier. She assured me I would be just fine. And, nine years later, I still am. Sadly, my friend died of something other than cancer. Thanks for sharing your story. Good luck with the gyn appointment and the trip. Hugs, Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


Skky
Regular Member


Date Joined Mar 2005
Total Posts : 146
   Posted 6/28/2005 8:29 AM (GMT -7)   
Mia-how wonderful you were able to participate in the relay this year. I have never personally done so, but am looking forward to it next year.I know what you mean about having feelings of doom and gloom. I have done reasonably well during tx so far, but seem to be waiting for the other shoe to drop.I also have moments of extreme positivity.Im sure all of this is normal for us.Good luck on friday, and enjoy your vacation.
Best wishes
Michelle
"There are two ways to live your life. One is though nothing is a miracle. The other is as though everything is a miracle."     -Albert Einstein


babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 6/28/2005 11:17 AM (GMT -7)   
I have not participated yet in an event like that, but will.  It was great to read your post, because I was having a bit of a downer week last week and couldn't figure out why.  I've been so positive throughout the whole thing.  I guess what we need is that 'kick' to get us started again.  I sort of had one and I feel better.
L & H,
Kathy


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 7/3/2005 9:03 AM (GMT -7)   
Mia,
 
We have been away for 2 weeks on vacation (Myrtle Beach)  so I haven't been checking the board or emails.  So glad that you were able to attend the Relay for Life (was it in Orrville?).  I went to the one in Wooster and it was, as always, so emotional.  I wish I had called you and we could have walked together.  Maybe we can do that next year.
 
So sorry that you have had another scare with a lump again. Hopefully it has disappeared and the doctor could not find any sign of anything there. I will be watching the board to find out how the appointment went. {{{{{MIA}}}}}}. 
 
Hugs and Love,
Deb
 
PS. As for the weight issue........Have to tell you that everytime I mention my weight and how much I have gained to my husband that he justs gives me this "shame on you" look and says to me "YOU ARE HERE AREN'T YOU?".........that always puts me in my place and I thank my lucky stars for being given the chance to enjoy this thing called "LIFE" and not worry about my appearance.
 


"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero

Post Edited (cupycake2) : 7/3/2005 10:27:46 AM (GMT-6)


MiaB
Regular Member


Date Joined Feb 2005
Total Posts : 205
   Posted 7/5/2005 6:50 AM (GMT -7)   

Well it's exactly as you hoped cupycake, he couldn't find it!  He did the breast exam and didn't even pause where it had been.  I'll watch that area during my next self exam but I am not worried like I had been.  With the last one the doc felt it right away so I feel much much better now!

I am going to start a new thread with the details about the hyst. and all that.  But in the meantime thanks to all for the prayers!  It worked!

Love and hugs,


Mia
 
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.


-Vesta M. Kelly

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