Hi JuJu! In reference to the lymphodema sleeve. It is very, very important that you wear a sleeve when you fly. So, I would have one custom made to fit so that it would be as comfortable as possible. Don't dismiss this because you are so tiny and can't find one to fit. Maybe you could check at some other facilities that have the sleeves and see if there is one that will fit you.
Yes, the wonderful metallic taste. Here are some hints that might help you. Don't drink anything out of a can. Either pour it in a glass or drink from a plastic bottle. Also, I used plastic silverware. Both of these helped me when eating and drinking. Also, when cooking, I found that if I could cook onion w/ the food, it tasted a great deal better. Don't let yourself get rundown because things taste badly. I promise that this will pass also.
I have the same question as Beth. I asked my surgeon about a sleeve, and he "pooh-poohed" it. Also, is flying a concern only if you've had lymphodema, or is it a concern if you've had lymph node removal
During the surgery, they remove tissue as well as the tumor and then count the nodes in the tissue. Everyone has a different number of nodes in the tissue the surgeon removes.
Lymphedema can come from the surgery, for no apparent reason, or it can come later. This is why I never have "sticks" or blood pressure in my affected arm. Some people believe those things can cause lymphadema. According to my rad onc your chances for lymphadema go up with radiation. She made no distinction between sentinel node procedure, which I had, and the old style excision. The sleeve is used to prevent lymphadema in those patients who are in a high risk category. Again, ask your oncologist, most especially your radiation oncologist, regarding your need.