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dak
New Member


Date Joined Jun 2005
Total Posts : 6
   Posted 7/13/2005 12:11 PM (GMT -7)   
Just before my first ACT treatment my doctor gave me the test results of all my scans.  I found out I have metastasis to my liver.  That changed the treatment plan to Taxotere, had my first treatment on June 24th. I am also looking at diet, vitamin and exercise treatments to help fight this. 
 
Need to hear from all of you who have dealt with meatastasis, could use your advice and encouragement.
 
I had a physical in March that was good, all of my bloodwork came back great.  In May I was diagnosed with bc and now in June metastasis.  I am scared and want to make sure everything is being done to stop this.
dak

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 7/13/2005 1:20 PM (GMT -7)   
It makes you wonder just how great that physical was in March? Did you got back to the dr because of a test result? Did you have positive nodes? I do not have mets but there are several ladies here who do. Because of conitnuing treatment they don't always post often, but I am sure you will hear from some. Hugs and prayers your new treatments go well. Several are on taxotere and talk about it often. You can do a search and find older posts about it if you care to do that. Hugs and prayers, MK


dak
New Member


Date Joined Jun 2005
Total Posts : 6
   Posted 7/13/2005 1:32 PM (GMT -7)   
MK,thanks for your reply.  I went to the doctor in May because I found a lump, I wasn't due for a mammogram until the end of June. Yes I had positive nodes, can't remember the number but most of the ones they took were positive.  dak

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 7/13/2005 5:26 PM (GMT -7)   
I'm sorry to hear this.  I only had 1 positive node and no mets (thank goodness).  The 2nd round of my chemo was Taxotere and it wasn't bad at all.  In fact, the first session gave me no side effects what-so-ever.  Good luck!  You can do this!!!
L & H,
Kathy


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 7/13/2005 6:22 PM (GMT -7)   
Sorry to hear of this set back. There are lots of new treatments coming out every day. Can they give you herceptin? Herceptin can work very well for liver mets in some people. Also, depending on the number of tumors, they may be able to use a laser treatment to shrink or ablate the tumor. Keep the faith and fight hard, and we'll be here to support you.

L&H,
Lori


skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 7/14/2005 1:49 PM (GMT -7)   
so sorry ....that had to be shock to you I can only imagine how you must had felt and how you feel now. I'm sending you a HUG and hope all goes well for you. It does make you wonder why the doc never detected it in May?? Lori is right there are new treatments coming out everyday so hang in there. Really have no advice just wanted you to know there are people here for you when you need them. .........skeeter1 

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 7/14/2005 2:32 PM (GMT -7)   
Let me suggest you ask for copies of your pathology test concerning the lymph nodes and cancer and keep it in a safe place. And get copies of any future tests for mets, too. When we go to a dr we hear the words but they don't sink in and later you have no idea. You should know how many nodes were positive and all the information about your cancer. Some of the girls here are very knowledgable about the terminology and can help you understand it better. Knowing more may give you more power in your fight. Hugs MK


nectarinepony37
New Member


Date Joined Apr 2004
Total Posts : 6
   Posted 7/19/2005 1:36 PM (GMT -7)   
dak,

I was diagnosed in Stage IV inflammatory breast cancer 9 months after my clean yearly mammogram. To this day I still don't have a traditional brest lump. Keep your spirits up. The docs told me I probably wouldn't last a year and yet here I am, a year and half later. I had to change oncs once because the first one I had was hoping I'd die faster. Every time I went to see him I could see it in his eyes. Also he didn't have any plan for my care, which was the something my present onc did right away.

Keep planning for the future and make sure your doctors are too. There are plenty of sites out there that can give you more info on diet and exercise appropriate for your type of cancer.

Take care.
Prayers and Hugs,
Maggie

happy!
Regular Member


Date Joined Apr 2005
Total Posts : 22
   Posted 7/20/2005 4:57 AM (GMT -7)   

Hi dak, I've been LIVING with mets for a few years now, I can't emphasize the word LIVING enough! I feel fantastic, my mets (lung and bone) are under control thanks to modern medicine and living right. I excercise when I can, (even running the vacuum cleaner around the house can be decent excercise sometimes!) ride my bicycle, go for walks and get plenty of sleep when I need it. Excercise and sleep are known to help fight cancer, best of all it's natural and free! I take a multivitamin every day along with a B complex which I personally swear by, it's best to always ask your onc first though before taking any kind of supplements, vitamins or otherwise. Do you know your hormone and her2nu status? If you are er+ your onc will prescibe either tamoxifen or femara most likely, I'm having terrific success with femara. When I think back to when I was originally dx'd with mets, my breathing was heavy and difficult and the bone pain was unbearable, I too thought I was doomed and I was very scared. I am now laughing in the face of breast cancer mets, we're lucky to live in a time where it can be treated as a chronic illness and enjoy many more years of happy, healthy living! Hopefully in the not too distant future a real cure can be found, advancements in all cancer treatments are coming out all the time, especially since the gene decoding thing. Please try not to get discouraged, being sad or upset does nothing at all to help the situation, having a negative attitude can easily wear down your resistance, not a good thing especialy when battling this disease. Smile, laugh, sleep and excercise when you can and enjoy the beauty of life. Stay positive, don't dwell on numbers and stats, when you feel good just go with it and do your best to forget about what else may be going on with your body. All the best to you!

Jennifer

 


dak
New Member


Date Joined Jun 2005
Total Posts : 6
   Posted 7/26/2005 1:17 PM (GMT -7)   
:-)  Hugs to skeeter1, Jennifer, Maggie and MK, you made me feel much better.  I do have copies of all of my tests but I was at work when I sent my e-mail so I didn't have them with me.  I also have a very supportive daughter who usually goes with me to hear what I miss.  I am HER2 - and - for both of the hormones.  I am taking your advice and LIVING with this disease, fortunately I still don't feel sick and even the chemo hasn't been bad.  I have changed my diet and want to talk to the Dr. about some other things but I am intent on keeping myself healthy and positive.  My goal is to prove that this can be beaten!  My husband is a blessing and has been more than supportive.  My Dr. is learning, he was negative at first but is realizing, I hope, that I don't plan on giving up.  My tests after the first cycle of chemo were good, 10% improvement on the tumor markers and a 'remarkable' improvement on my liver enzymes (I haven't seen the numbers yet but those were the Dr's words on the phone)! In the meantime I keep reading, praying and LIVING, oh yeah and working full time!
DAK

cgm
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 7/26/2005 2:02 PM (GMT -7)   
dear dak

I am 34 years old in 2003 I was dx with bc and was pregnant with my third child. Had chemo and radiation and everything was going great at least that is was I thought. In January of this year I found out through a blood test that my cancer had metased to my liver. I started tx I received carboplatin and taxotere and Herceptin. I just recieved my last chemo about 6 weeks ago my tumor marker is at 38 it was 7464 so I am doing well. I still receive the herceptin every 3 weeks for a couple more months but that is the easy part. Keep up the good spirts and pray. And God will take care of us all......
Many Hugs Christine


dak
New Member


Date Joined Jun 2005
Total Posts : 6
   Posted 7/28/2005 5:26 PM (GMT -7)   
Thanks Christine,
It was good to hear from someone who has similar problems, My heart goes out to you , I can't imagine having small children and dealing with this.  I am 50 and I have a 2 year old grandson who I want to see grow up. This group is helping a lot, I don't really have time to join a support group in the evening so this is great.  Take care of yourself.
Hugs, DAK

cgm
New Member


Date Joined Apr 2005
Total Posts : 8
   Posted 7/30/2005 6:41 AM (GMT -7)   

Dear Dak

Thank You for your reply.  I was wondering what treatment regiment are you receiving.  And are you getting the Herceptin.  It has worked great with me.  I had to get a muga scan on friday I think it went well but I won't know anything until monday or tuesday. 

It has been real hard on me and my children who are 11, 7, and 2. But now I just take it one day at a time when I am feeling good and now Iam in remission then I can give them a normal life.  But when I get treatment it takes every once of energy from me and I feel like I am letting them down.  But I have really good kids and they have been there every step of the way.

you can email anytime tmaxfive2002@yahoo.com  It wasn't easy for me to find someone with liver mets.
Many Hugs Christine

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