Bronchoscopy update.....

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Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 7/18/2005 9:29 AM (GMT -7)   
We finally got results on the cultures from the bronchoscopy: atypical tuberculosis. Believe it or not, that is good news! That's what the doctors were hoping for since this is treatable and curable. This form is also not contagious. Apparently, when your immune system is compromised such as by chemo or HIV, you are susceptible to this infection.  These bacteria are always present in the air, but healthy people are resistant to them. When your immune system is supressed like mine is with long term use of methotrexate for rheumatoid arthritis, you can get this infection. My pulmonary doctor started me on a TB drug regimen (4 antibiotics!) and we cancelled the lung biopsy. My doctor at Sloan Kettering is pleased with this news, too! We are going to repeat the CT scan in 6 weeks. Hopefully, we should see an improvement by then. Thank you for helping me through this! L&H, Frayda

Ynkefan31
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Date Joined Jul 2003
Total Posts : 586
   Posted 7/18/2005 9:40 AM (GMT -7)   
Glad you got good news Frayda. Sending prayers for a speedy recovery.

ddd ddd ddd ddd
,,\)/,,,\)/,,\)/,,,\)/,,\)/ ,,\)/,\)/,\)/,,\)/,\)/,,\)/,
VICKY


babyseeester
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Date Joined Oct 2004
Total Posts : 826
   Posted 7/18/2005 10:15 AM (GMT -7)   
Oh, that's wonderful news!  I am happy to hear it.
L & H,
Kathy


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 7/18/2005 10:16 AM (GMT -7)   
Wow, that is better than a pork chop bone! That is just awesome news, Frayda! Take yourself out shopping to celebrate or enjoy a special evening out with DH to enjoy life!

Woo Hoo!!
L&H,
Lori


postal2
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Date Joined Jul 2003
Total Posts : 1106
   Posted 7/18/2005 11:08 AM (GMT -7)   
GREAT NEWS Frayda!!!!! What a relief! It is so funny the things we are happy about getting, LOL! Glad to hear this sweetie, L&H, Gail
  If you can read - thank a teacher.

If you can read what you want - thank a soldier!


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 7/18/2005 12:28 PM (GMT -7)   
Fabulous news, Frayda. Well, that sounds rather odd, but this not so good news is really good news! Hang in there with all of those pills you have to add to your daily regimen. I'll be thinking of you!

L&H,
Laure'
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


ardee
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Date Joined Sep 2003
Total Posts : 854
   Posted 7/18/2005 3:20 PM (GMT -7)   
Frayda, I'm happy dancin in L.A. Thanks for sharing your great news. I've been worried about you. Glad you"re on the road to recovery.

L&H,
Rita


Candy
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Date Joined Jul 2003
Total Posts : 1294
   Posted 7/18/2005 3:28 PM (GMT -7)   

I am so happy it is as treatable as it is.  Answer to prayers.  Get better soon.

Hugs,

 

Candy


The secret of health for both mind and body is not to mourn for the past, nor to worry about the future, but to live the present moment wisely and earnestly."

~ Buddha


grandmaro
Regular Member


Date Joined Aug 2003
Total Posts : 106
   Posted 7/18/2005 4:44 PM (GMT -7)   
yeah Wow, Frayda,
  Who would ever have thought to be happy about TB?  Glad to hear that this is a treatable condition.
 Love and hugs, Rozanne


jaaustin
Veteran Member


Date Joined Jul 2003
Total Posts : 741
   Posted 7/18/2005 5:22 PM (GMT -7)   
Frada,
Congrats on having TB! LOL....

So glad they figured it out BEFORE the biopsy. I'm so happy for you.

Hugs,
Julie
Do not go gentle into that goodnight,
Rage, rage against the dying of the light.
~Dylan Thomas


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 7/18/2005 6:08 PM (GMT -7)   
A friend and I had just been talking about tb. I am so happy that you've overcome another pork chop bone. I'll be happy dancing for you tonight.

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Luci
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Date Joined Jul 2003
Total Posts : 892
   Posted 7/18/2005 9:07 PM (GMT -7)   
Yoohoo Frayda,  This is the BEST news.  Glad you've already started your new drug regimen.   I just saw a commercial earlier this evening for Humira (it's an RA drug) and TB was one of the possible side effects.  Take good care.  Hugs, Luci

In the depth of winter, I finally learned that within me lay an invincible summer.  Albert Camus


Joany4Hope
Regular Member


Date Joined Jul 2003
Total Posts : 69
   Posted 7/19/2005 7:23 AM (GMT -7)   
Frayda,
 
Only in our bc world is TB good news!  I'm so very thankful that you have something curable and treatable ~ yea!
 
Did you have any coughing or phlem before checking this out? I'm asking because I have my own little lung issue going on. Yesterday I saw my Onc and he is concerned about a morning cough I have been having for awhile.  I did a repeat Xray yesterday and we'll see what's up. The last one showed "interstitial changes".  Was yours anything like that?
 
So thankful for your news Frayda.
Love ~ Joany


Cathi
Veteran Member


Date Joined Jul 2003
Total Posts : 702
   Posted 7/19/2005 7:45 AM (GMT -7)   

Hi Frayda...

I am happy dancing today... yeah What great news...Please take care of yourself !

L & H

Cathi

 

 


Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 7/19/2005 10:25 AM (GMT -7)   
Who would have ever thought we would celebrate TB???? No matter what kind, it really shows how our thinking is so changed by breast cancer. I am thrilled for you, Frayda!! I know you have been though so much lately with family members. Hugs MK


Frayda
Regular Member


Date Joined Aug 2003
Total Posts : 248
   Posted 7/20/2005 7:15 AM (GMT -7)   
Thank you everyone! I met with the infectious disease doctor yesterday. He reassured me that I am not contagious and explained how my surpressed immune system allowed this bacteria to grow in my lungs. He said it can be a stubborn infection and will need to take all the antibiotics for a year at least. Who would think I would be thrilled with TB! Now I have to meet with my rheumatologist and adjust my arthritis meds. I am looking foward to visiting my son and his fiance in Boston this weekend with a clear head! L&H, Frayda

Joany4Hope
Regular Member


Date Joined Jul 2003
Total Posts : 69
   Posted 7/20/2005 7:42 AM (GMT -7)   
Frayda,
 
Enjoy your visit in Boston with your son and his fiance'.  This is a time of relief and celebration for all of you.  So thankful it's TB.....only in the bc world :-)
 
When I had the nasty MRSA I was on some antibiotics for over a year, so I feel for you with this treatment, but getting the bacteria under control and out of there is important.
 
Big hugs ~ Joany


beck2000
Regular Member


Date Joined Jul 2003
Total Posts : 324
   Posted 7/20/2005 4:03 PM (GMT -7)   
Frayda, people would think we were crazy for being happy for TB! But, I am so very happy for you. Great news! Enjoy your trip to Boston.

Hugs,
Becky

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