Bernadette, about that chemo....

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Date Joined Jul 2003
Total Posts : 2272
   Posted 7/29/2005 9:40 PM (GMT -6)   
Time for a new thread, but I saw your question in the welcome thread. There are a few different chemo options out there now, when I did it in 2000, most often we got adriamycin & cytoxin (AC). Positive lymph node were also given Taxol or taxotere. Some people had a different cocktail, but AC/T seemed most common. You can ask 50 of us about our side effects and you will probably hear 50 different responses. It is soooo unique and individual.
For me, it was relatively easy and I was very lucky. Anti-nausea meds are really great now, and while they do not work for everyone, don't suffer...if you feel sick, ask the doc for something else, there are several things to try.
I had chemo on Tuesday, and felt tired tues and Wed. I never got nauseous, but on Tuesday night, at around 11 pm, I would get queasy, vomit once, felt fine and had no further nausea or vomiting. It was like clockwork. I took Wed off, slept in, relaxed. Thursday and Friday I went to work half days, needed to sleep in and then take a walk. My onc advised me to exercise, walk at least a mile. It was cold in Feb-March in Michigan, but it helped me to feel good and healthy.
I had a funny taste in my mouth on Thursday and then acid reflux on Friday, lasting a couple days. Then back to normal with how I felt and work. No real problems. I avoided malls and movies when my counts were lower. There will be weekly blood draws, and no other real issues for me...I learned to eat a bland diet when I had reflux, I learned how to avoid constipation from the pre-meds, I learned that ambien is wonderful for sleep (chemo can cause insomnia), and I learned that a salad is not considered "light" food...but toast and soup is.
Listen to your body...I found that i had no interest in coffee or wine during chemo, but drank tea instead...and I regained my taste for wine when chemo was done. The fear of the unknown is usually worse than the treatment, and once you know what to expect, it will be much easier.
Yes the hair loss for me was terrible. I cried and pouted all weekend after cutting it off, then I was over it. I hated the wig, but I told myself that feeling lousy would not help me at all, and I just did what I had to do,....I loved getting ready quickly in the morning and my skin looked better than it ever did....some untold advantages!
Hang in there Bern....the waiting stinks! ONce you get a plan, things will move quickly with you in the driver's seat.

Veteran Member

Date Joined Jul 2005
Total Posts : 688
   Posted 8/1/2005 12:28 AM (GMT -6)   
Im sorry if I have not responded to this yet. I have so many out there that sometimes I forget. I really appreciate all the info and I still dont have my results back from my nodes. I will have them by tomarrow I hope. My surgery was a week ago and Im tired of waiting. I have my follup up with surgeon on Wednesday and first appointment with onc this week too :( That will finally give me the info I need on whether I have chemo or just rads. I have gotten to the point that if chemo will get me better faster Im all for it.
Take care and thank you

Veteran Member

Date Joined Feb 2005
Total Posts : 730
   Posted 8/1/2005 6:25 AM (GMT -6)   

Hi Bernadette! The waiting game is the worst part but soon you will know what you are facing and will be able to make some educated decisions as to what type of treatment you will have. Please remember to take someone with you when you go to see your surgeon and the oncologist. You are going to be receiving lots of info and it is almost too much to remember and digest. Also, take a little tape recorder w/ you if you have one.

Remember, if you would like all of us to be w/ you, just ask. I know that the "PCE" is probably fueled and ready for a trip!

Hugs and Prayers...Deb


Veteran Member

Date Joined Jul 2005
Total Posts : 688
   Posted 8/1/2005 7:21 PM (GMT -6)   
Hi Deb

I had made a call to my oncologist to make an appointment and they called back to say they have an opening tomarrow. Maybe I will FINALLY get some answers, I still dont have the answer on my nodes. Im kindof getting a liitle ticked because she has had the results since Thursday but went out of town and did not call me!!!!! I called her office earlier today and they said she would be in after noon. So I waiting untill 4pm to call and they said she has the file on her desk and she will call that was an hour and fifteen minutes ago. grrrrrrrrrr.

Im so happy to have my onc appointment tomarrow so that I will have my (schedule) I happen to be very regimented about my daily schedule, it drives my hubby nuts.

Thanks for the info on taking someone and a tape recorder several times already hubby and I came out with different ideas about what was said.
Well while I was writing this my Dr called YEAH nodes were negative :) :) :) but the tumor was larger than she thought 4cm. So finally I happy to have the info and start on the next part of this challenge.


Veteran Member

Date Joined Oct 2004
Total Posts : 826
   Posted 8/1/2005 9:50 PM (GMT -6)   
Thank goodness for negative nodes.  That is wonderful news.
L & H,

Veteran Member

Date Joined Jul 2003
Total Posts : 2921
   Posted 8/2/2005 7:56 AM (GMT -6)   
Negative nodes are wonderful news!!! Celebrate! My daughter had negative nodes and the doctors decided to go ahead with 4 treatments of chemo because she was 39. She is now six years out and doing fine. No radiation. She lost her hair but you would never know today she was ever diagnosed. Hopefully things will go as well for you, too. Hugs MK

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