have finally seen the neurosurgeon....

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barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 8/17/2005 4:06 PM (GMT -7)   
and I hate to disappoint, but he was SO nice and SO gentle that I just couldn't ask the gynecology question.  I'm not sure he would have gotten it if I had!
 
Anyway...here's the scoop.  I have scoliosis.  I've known that for several years now and still attribute it to the TRAM.  No one had ever told me I had scoliosis before that, but it's in all the reports since.  It used to be only in the thoracic region.  Now it's in the lumbar spine as well and has progressed from a "mild" to a "moderate" stage.  I'm going to have pain, period.  Live with it or do surgery, and I can live with a lot of pain before they start sticking rods in my back.  I'm hoping physical therapy can at least keep it from progressing to "severe," in which case I will probably have to do some surgery.
 
The spots are a different matter.  He agrees that they could be hemangiomas.  Could be.  Could be cancer.  Only a bone biopsy will tell for sure. At any rate, they do not show up on x-ray at this point, so he is not concerned that they have increased in size considerably.  We'll do another MRI in November, and he's doing the whole spine to see if the spots are anywhere else and if the spots we know about have changed.  Obviously no change will be good news.   
 
All in all, not a visit that was gushing good news, but nothing too bad, either.   Mostly I'm just getting old, I think, and that's not a bad thing yet!
 
Love and hugs...
BEV

JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/17/2005 4:12 PM (GMT -7)   

Hey, Bev. Just a question. Why do you attribute your scoliosis to your TRAM. I am looking at recon  next March. Also, how long has it been since your TRAM? My sister had one six years ago.

JUJU


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 8/17/2005 6:10 PM (GMT -7)   
Hi Bev-
Sounds disappointing to not get definitive information, but at least there was nothing definitive in a negative way either. Scoliosis, that is a new one...must be a cousin to Arthur, one we are happy to see if it answers the question of pain. Sorry you have to go through all of this right now...but at least you've got a good doc on your side. And you have us with you too...

L&H,
Lori


Jo-Ann
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Date Joined Jul 2003
Total Posts : 829
   Posted 8/17/2005 6:30 PM (GMT -7)   
How long have we all been having to wait and see? It just seems that instead of being allowed to grow old gracefully, this disease just speeds up the process.

It would be great if you could avoid the surgery. My tylenol3 isn't cutting my pain like it used to and the dr has ordered ultracette. I don't know about them but will you be able to take something for it? There's no need to suffer, my motto anyway.

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 8/18/2005 8:15 AM (GMT -7)   
Bev:

Sorry about the scoliosis. It sure is hard to get old, especially when we have to share the process with B/C and aftereffects. Try to stay comfortable and use that physical therapy. It will help.

L & H

Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 8/18/2005 11:03 AM (GMT -7)   
I was born with scholiosis.  I can relate.  Hopefully they can manage the pain for you.  It's not so bad for me.  I didn't like reading the unknown stuff, though.  I hope you get some definitive answers soon. 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 8/18/2005 7:34 PM (GMT -7)   
JUJU, I attribute the scoliosis to the TRAM because before I had the TRAM, no one ever said I had scoliosis.  Had seen chest x-rays, and they never showed a deviation in the spine.  After the TRAM, I had a herniated disc at T-8/T-9, and that is apparently an unusual place for a herniation without a major trauma.  On bone scans and x-rays, it looks like someone has tied a string to my spine and pulled it to the right (the side the TRAM is on), right at the spot the muscles attach under the arm.  And then it's just a matter of time before the lower back compensates for the upper curve by creating an "S."  The TRAM removed the muscles that act as the guide wire for the spine.  Without that support...
 
I don't think this is a common complaint amongst TRAM patients.  I think I tend to have lower muscle tone and hypermobile joints.  I was very thin at the time of my surgery and I was very tight because of all the abdominal tissue they had to use. I slept sitting up for months afterwards because I couldn't lie down flat.   I would say that the majority of people are happy with TRAMs and don't have lingering problems, but I think, for me, it was a poor choice.  Hind sight is always 20/20, and I've had 11 years now to come to that conclusion! 
 
JO-ANN...Girl, we may not be growing old gracefully, but by god, we're growing old.  And that is better than the alternative...at least at this point in my life!
 
I've been on Ultrams for years now...is that the same as Ultracette?  If you can give me a pain pill instead of an operation, I'll take the pills any day.  Somehow I don't think steel rods in my back are a good route for alleviating pain, you know?
 
As for the other, well, you know we'll all spend the rest of our lives waiting for "the other shoe to drop," so here's to waiting a long time.
 
Love and hugs...
BEV

cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 8/18/2005 8:12 PM (GMT -7)   
Bev,

Thinking of you sweetie. Hang in there..........please know that I care.

Hugs,
Debbie
^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/19/2005 6:44 AM (GMT -7)   

Thank you so much for that information. It will help me with my plastic surgeon. I am just a little thin. 5'6" 125 pounds.

I value your input. Geez, 11 years. That is great. I hope I do as well. Take care of your back and rest as much as possible.

JUJU

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