PAIN WITH RADS

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JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/27/2005 5:08 PM (GMT -7)   
Did anyone have throat pain, neck pain, jaw pain and severe ear pain with rads? My doc says that it can start in the throat (with a superclav field) and go up, but my ear pain is now extreme. Thinking about taking half 7.5 Lortab, and I never take anything. Has been going on for a week but became severe today because I met with and talked with lots of friends this am.
 
JUJU

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 8/27/2005 6:11 PM (GMT -7)   
Sorry to hear this.  No, I didn't have any side effects from rads other than some redness on the skin.  I hope it doesn't last.
L & H,
Kathy


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 8/27/2005 7:39 PM (GMT -7)   

I had chest and arm pain but nothing in the areas that you have described. How high did they give your rads? I would call your onco or rad onco immediately. This sure doesn't sound normal to me. And trust me, I talk all of the time. lol Don't hesitate to take something for the pain.

Gentle hugs...Deb


 


JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/27/2005 8:17 PM (GMT -7)   

It was my rad onc that I talked to about this and she said that the pain is "probably" from the throat and jaw and ear being affected by the radiation to the superclav field -- area around the neck and above the collar bone. She offered Lortab, but I had some. I am taking some and going to bed. Will see her again next week.

JUJU


skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 8/29/2005 7:50 AM (GMT -7)   
This is a BIG RED FLAG for me. I am upset, concerned and worried for you. Did you have a lumphectomy or mastectomy. I had lumphectomy and before I had rad tx I had an onco nurse tell me that I shouldn't have pain in throat, neck ect only if they are radiating the neck area and that is normal with thyroid rad ect. It is caused from mucous membranes being radiated and that shouldn't happen with breast cancer radiation. If I was you I would further investigate this. See when I was mapped they took pictures of my tatoos and kept the pictures in my chart. They also drew on my chest that day in black marker exactly where the radiation would go, and put that pictures in my chart. They did xray of my chest once a week and checked each week to see if they were radiating the right area. Every treatment I was remeasured by my tatoos before they placed the radiation on me, and at least a couple times they placed a tab on me during a treatment to measure the amount of radiation I actually was getting to make sure it was right. Now if they did all of these precautions with you then you should be able to ask to look at your chart and have them explain exactly where your radiated to makes sure they aren't radiating the wrong area. I could be way off but I really think this isn't a side effect from the right radiaton tx for breast cancer. I really would hate for you to find out too late that they radiated your mucous membranes and it caused damaged where it shouldn't. My radiologist told me that no matter how well they measured and no matter what precautions they took I would have a small amount of radiation damage to my lung. A very small amount and wouldn't feel any different but in future xrays it would show up later. That was the only thing he said would happen to me other then the normal skin and tissue thickness ect. I did have small amount of pain in the muscle of my breast and my skin was like it was sunburned at times but that was it. Sorry so long.... investigate, maybe the others on this board have an opinion on this... have them show you exactly where they are radiating.... I wish you all the luck in the world... keep us posted on this ....skeeter1

JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/29/2005 9:06 AM (GMT -7)   
Thanks for the replies. I will be talking to the DR again this week. According to her, they are irradiating above my collar bone and it is possible to get a small portion of the neck -- I see that portion because it is now dark and so is the area above my collar bone. It forms a slight diagonal line from neck to collar shoulder joint that is straight. She also said they are trying to miss the esophagus (SP!) but it is somehow it seems to be involved in that field and this is causing the ear problem. I did take 1/2 Lortab SAT night and iit helped me sleep, but pain is back again today. I am getting quite red from the rads -- have 5 more treatments and 5 boosts.

If the pain has not diminished by the end of boosts, I guess I will see an ENT.

JUJU

skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 8/29/2005 9:32 AM (GMT -7)   
gosh why do they have to do radiation above your collar bone? dumb question I know but my radiations was only in my armpit and across my breast why is your radiation so high..skeeter1

JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/29/2005 9:58 AM (GMT -7)   
Don't know except that there are lymphnodes in that general area. I also have radiation along the bottom rib line, from my sternum to my armpit.

JUJU

skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 8/29/2005 10:09 AM (GMT -7)   
I had radiation along the bottom rib line, from my sternum to my armpit but that was the only area uumm wonder why you have it so high????....skeeter1

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 8/29/2005 10:36 AM (GMT -7)   
Skeeter and JuJu: I am not an expert when it comes to radiation. I do remember being told that there are many variables that are used when deciding where the areas are that will be radiated. It could be that JuJu's cancer was in an area that required a larger field being done. Even though our chemo treatments are basically the same in the beginning, remember that no two cancers are the same. The margins are different. The number and type of lymph nodes that are involved are not necessairly the same. JuJu, hopefully your rad onco will be able to answer these questions and give you something to help w/ the pain. If they don't, then call your med onco.
 
Hugs...Deb
 
 

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