Breast buddies I need your help!

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Brnadebt
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Date Joined Jul 2005
Total Posts : 688
   Posted 8/28/2005 7:07 PM (GMT -7)   
Hi All
 
I have a dilemma and not quite sure to proceed or not to. I had a lump almost 2 years ago to the day I had a mammo and ultra sound and at that time they determined it was just a cyst and an older cyst that had burst. This was located at the lower part of my right breast. Well on everyones advice (from here) I got copies of my files and the results from the 2003 tests were in there and they show the cyst, list its size and thats about all. But here is the bad part on both copies of the mammo and ultra sound they show the area of concern at 3:00 on right breast. This is exactly where I had my tumor removed last month. I never was told about all of this and had no idea that I had another one to watch!!!!!!!! For some reason I did not have a mamo in 2004 (my fault) so when I felt this new lump I had the Dr check it out and they went into overdrive to get it looked at.
 
Im not sure who dropped the ball or what but I would think that if it were taken care of in 2003 I probably at most would have had a small lumpectomy and 6 weeks of rads instead of all Iam going through now. Iam not the type to sue people but Im MAD. This probably would have been no big deal if dealt with back then, and I never would have missed a year on my mammo if I knew there was something they were worried about. I dont know what to do if anything or just accept the fact that this is life. Any and all comments welcome.
 
Bernadette

JaymieN
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/28/2005 7:59 PM (GMT -7)   
Hi Bernadette: Since you welcomed me, I thought I should at least pop on to your post. I want to make sure I understand your post correctly. When I requested my mammo and U/S films, inside the folder was also a copy of the report from the doctor who read my films. When you got copies of your file, did you get a copy of the report from both those film studies. You wrote "they show the cyst, they show the areas of concern". Is this you looking at the films, or is this in a typed report? Then you wrote, "this is exactly where I had my tumor removed last month". The tumor you had removed, was this the cysts you saw on the 2003 films?? You said you were never told about this? This is what leads me to believe you did not receive a typed report. It would be quite obvious to another radiologist if he had the actual 2003 films (and the typed report), if this tumor was present in 2003. Obviously if it was present in 2003 and there is no mention in the report - you now know who dropped the ball. But if it wasn't present in the 2003 films, and this tumor wasn't detected until recently, then there's a chance no one dropped the ball and you just developed this since your last film studies. What are you going through now? (You wrote, "..... instead of all I am going through now". Is the doctor who found this recent tumor the same doctor who took your 2003 films? Have you ever had anyone else look at your 2003 films? (I actually had FOUR doctors look at my films, and they all said the same thing.) I'm sure you are extremely frustrated. That's why I'm asking so many questions, to see if I can give you some support and help you as much as I can. Just after reading your post, so many questions popped up in my mind. Sorry this was so long. Thanks again for your post on my question (I posted a response to you back on my post. I'm not sure if that's how things are done, so I did it there.) :) Jaymie
I'm a teenager trapped in a 40 year old body!


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/28/2005 9:30 PM (GMT -7)   
Jaymie

The tests I had done in 2003 were for a the cysts that I mentioned, they did not tell me that there was another lump in a different spot, and that is what came up on the typed report from the ultra sound and mamo tests. The Dr reports said the area that I came in for was nothing to worry about, but stated that the other spot needed further testing. To make it more understandable my tests in 2003 were for a completly different lump that I felt, but when I asked for copies the typed reports show the other spot (which was the same spot as tumor I just had out) as being the only area of concern. I was never told abount the area of concern, which is why Im in this dilema in the first place. I hope that clears p the quuestions.

Bernadette
Hugs:)
Bernadette


JaymieN
New Member


Date Joined Aug 2005
Total Posts : 4
   Posted 8/28/2005 10:11 PM (GMT -7)   
Hi Bernadette: So this tumor you had removed clearly showed up on the 2003 films and it was noted in the report. WHY was it never mentioned to you? Usually they report to the doctor who gave you the prescription for the Mammogram. When I got my results, they contacted the doctor who requested the mammogram. You usually can't show up and say, "I want a mammogram". At least I've never done that. I was always been given a prescription for the mammogram. And the results were typed in report form and mailed to my doctor. If you had no referring doctor, then for sure the doctor who interpreted the films should have told you. I went in for a mammogram because I was going to have a boob job. No one expected to find anything. Of course the mammogram did and that's why I had the bilateral mastectomy. But the doctor told me right then and there, right after he finished the ultrasound. He said he would send a report to my doctor - who was my plastic surgeon. So, if you had a doctor who referred you, he should have been given a report. Have you confronted him as to why he didn't mention this? And if he knew and said nothing to you, do you feel comfortable staying with him as your doctor? The same with the doctor who did those 2003 films?? So what is your dilemma? Are you trying to decide if there is enough for mal-practice? You said you weren't the suing type. Are you just trying to figure out who dropped the ball? Because it's obvious someone did. I'm sorry, I really feel like I'm not helping. I just picked through your post and tried to help you based on your concerns. It seems like you're concerned with who dropped the ball in your case. Now that you know (or at least have your suspicions) what are you planning on doing next? Have you received the results of the tumor?
Sorry, I know I just asked you more questions than gave you answers. You don't have to answer if I totally frustrated you.

Jaymie
I'm a teenager trapped in a 40 year old body!


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/28/2005 10:34 PM (GMT -7)   
Jaymie

I was diagnosed with breast cancer last month and the tumor that they took out was the one that was listed as area of concern in 2003. My problem is I was never told about it, and why was nothing ever done then. My PC Dr was the one that ordered the mamo so I would assume she had copies. That is the last file I need to get copies of everything. I only have the parts that were sent to my surgeon before she did my lumpectomy. I feel someone should be held accountable for the tumor not being looked at more back then.

I had had so far:

Biopsy  lumpectomy  porta a cath lymph nodes removed and I just started chemo.  I would think this could have been much eisier if done in 2003.

 


Hugs:)
Bernadette

Post Edited (Brnadebt) : 8/28/2005 11:38:16 PM (GMT-6)


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 8/28/2005 11:37 PM (GMT -7)   

Bernadette: I am so sorry that someone didn't do their job plus didn't inform you about the results of your previous tests. You have a right to be angry. I am mad just reading what happened and knowing that this same thing has happened to many other women. Fortunately, you have had the tumor removed and are on your way to a full recovery. I know that the surgery, chemo and rads are not fun. The whole thing stinks!!! Right now you need to keep a positive attitude and get thru the treatments. If you think that there is a malpractice suit, take the time to speak w/ an attorney and let him/her handle it for you. I wish that you could turn the clock back but that's not possible. Stay focused as you have been. Plus, talk to your friends and tell them to be sure and get a copy of the written reports from their mammos. You may be able to prevent them from having to experience what you are now. Turn the negative into a positive.

Hugs...Deb


 


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/29/2005 6:05 AM (GMT -7)   
Deb

Thanks for putting this back into perspective for me. I dont think I will do anything but I want to know why I had not been informed. I will continue to be possitive through all of this because that is the way Iam. I wish that I could turn back the clock because Im sure it wold have been an easier fix back then.
Hugs:)
Bernadette


skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 8/29/2005 8:39 AM (GMT -7)   
Brnadette: I would be MAD 2, not sure if I understand forsure what happened but think they found something on mammo in 03, and never told you. That would upset me2, its like they never gave you a say in what happens in your life. You have some rights there that were over looked. They seemed to be unconcerned about what they found back then and never even told you. That a lone would upset me and then by not telling you the care you had to watch this cyst was not there over the past 2 years and if it would have been something aggressive it could have been too late for you once you noticed it yourself. Luck was on your side, but you should have know so you weren't relying on luck, instead relying on knowledge. The knowledge to know you did everything you could to make sure you had a long happy healthy life over the past 2 years. Bummer huh but it looks like your doing ok now and will continue too. Just wish they would have been more appropriate with your care 2 years ago. I would make sure they understood what they did to you and how you have the right to know no matter what they find on your mammos. I hope all goes well for you now, can't cry over spilled milk just have to clean up the mess and move on huh and not let it get you down.... hope all is going well for you now.....skeeter1 

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/29/2005 8:46 AM (GMT -7)   
I agree with Deb. As angry as you get and you have every reason to be angry, does not make a good lawsuit. I happened to get some factory contaminated sutures in surgery, the company had a recall but only about 1/3 of the sutures were returned. I won't go into all the details, but believe me this mess changed my life and certainly not for the better. Yet even tho a regular attorney turned all my records (after he and a surgical specialist read them) over to a malpractice attorney there was not enough for the malpractice specialists to be sure they could win a suit for me, so they were not interested in my case. I was in a class action suit and did get a little, but no where near the amount that would compensate for my bills which my insurance company paid, nor to compensate me for my problems now. I firmly believe my trip to the kidney specialist today is also a result of the massive infection. My point being a lawyer will only take the case if they feel they can win and there really has to be substantial evidence for them to feel that way. You can talk to an attorney, none will charge for the first visit. Hugs MK


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/30/2005 6:18 PM (GMT -7)   
Skeeter & MK

I think what I want more than anything is to find out why I was not told. And why there was no follow up advised. I would never have know if I had not asked for my chart. I think my best approach is to sit down with my PC and ask her why.

Thanks for all of your help

Bernadette
Hugs:)
Bernadette


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/31/2005 5:07 AM (GMT -7)   
I understand. And a simple apology if they missed something would be nice, however, no doctor will admit to missing anything for fear of lawsuits. Even after all I have been through I don't remember my doctor ever saying he is sorry, even though I have never blamed him but blamed the sutures. He has been a sweetheart through it all but still he has never said a word about being sorry. There was an article in one of the weekly news magazines about doctors and how saying sorry would be enough for many people, because most people understand mistakes can be made. Hope you get some answers but I rather doubt it. Please share what happens when you talk to your PC. Hugs MK


skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 8/31/2005 6:04 AM (GMT -7)   
Brnadette: I really think you need to sit down with your PC too and ask all the questions you have and hopefully he/she will be able to answer them so you can understand, and know the reasoning behind why you weren't informed, make sure they clearly understand that they need to share everything with you no matter how small they think it may be. I think if you talk with them and come to an understanding as to why they choose not to share this with you it will help you move on from this. Also if you don't understand why and how this happened you will never trust your PC again, and that would be hard to continue to have them as a PC if in your mind you will always be questioning all the care you get in the future with them. I would let them know that too, that you need to come to an understand about this cause otherwise you will never be able to have complete trust in the future care they give you.  I know your a very resasonable person and will be able to get past this. Its a shame it happened, you have every right to question and understand why and how this could have happened to you. I would be upset about this too and would want to make sure it never happened to me again...Good luck...skeeter1

Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/31/2005 8:45 AM (GMT -7)   
MK & Skeeter
Thanks for your letters, I feel better just talking about it. I dont think I will ever do anything about it but this makes me feel better just getting it off my chest. The hard part is that I love my PC she is wonderful a and has always been a great dr. When she found out that I had been diagnosed with BC she called me at home to say how sorry she was and to say she would refer me to a surgeon that she liked and trusted. I think the best thing to do right now is put it begind me and just concentrate on my treatments. I have my 2nd chemo on Tues, I still am afraid of another reaction like last time. Thanks again!
Prayers to all who were hit by the hurricane.
Hugs:)
Bernadette


marybee
New Member


Date Joined May 2005
Total Posts : 19
   Posted 9/14/2005 8:06 PM (GMT -7)   
There is a state board of medical examiners you might want to send a letter to.
Mary

Saint T
New Member


Date Joined Sep 2005
Total Posts : 3
   Posted 9/16/2005 12:31 PM (GMT -7)   
Bernadette, thanks for sharing your story. Right now, I too am wondering if I should be aggressively going after the results of a mammogram and ultrasound. After reading your story, I think I should. I am sorry that you had to go through something that could possibly have been avoided. We can also see that doctors are only human and they too can make mistakes.My prayers are with you.
Saint T
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