Had an ultrasound - it's a hamartoma

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Mom_of _Crohnie
Regular Member


Date Joined Mar 2005
Total Posts : 45
   Posted 9/1/2005 10:56 AM (GMT -7)   
Hi,
 
I'm not sure if anyone remembers me but I was here a while ago when I found a lump. The clinic doc recommended I see my doc right away. He said it was most likely nothing to be too worried about but that it needed to be checked. I saw my doc who said there was nothing there - it was just normal breast tissue. confused
 
I just wanted to thank all of you who encouraged me to not accept that and to push for it to be checked out. I did! I had an ultrasound on Monday and was told right then and there that is most definately something there! I have a hamartoma. He said just from a quick glance that it is nothing to really worry about, but to keep an eye on it. If there are any changes or it continues to grow to come back and have it checked again.
 
I was convinced it was a cyst so it was a bit shocking to hear the word 'tumour', even if it is benign. I'm also a little surprised that he said there is no biopsy required.
 
Anyways, I wish you all the best and again I thank you all for being supportive and encouraging me to go with my gut. Afterall...it is my boob and has always been mine...I think I know better then anyone if something is there was never there before!

chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/1/2005 5:49 PM (GMT -7)   

I'm so glad that you've had good news, but I would like to warn you about relying on an ultrasound for diagnosis. When I was pregnant and found a lump the ultrasound doctor assured me that the lump was just a fibroid. I was not convinced, and pushed for a biopsy (which came back as inconclusive, which led to the lumpectomy and so on...). Please, do not wait.
Push for a biopsy and be 100% sure.

Chantry


There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Mom_of _Crohnie
Regular Member


Date Joined Mar 2005
Total Posts : 45
   Posted 9/1/2005 7:29 PM (GMT -7)   
Thanks chantry31,
 
I'm kinda waiting to hear from my doc to see what he has to say. He hasn't called me yet. I'm going by what the doc at the hospital who did the U/S said. From all the research I've done since Monday, it seems like, although hamartomas are apparently one of the rarer benign diagnoses, they supposedly have a very distinct U/S appearence.
 
I'm going to see what my doc says and see how I feel from there, but I may just push for a biopsy just to be sure. I may even ask to have it removed as it is VERY tender.
 
Thanks,
 
Lori

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/6/2005 5:21 AM (GMT -7)   
Again this is a term I have never heard before. All of a sudden we seem to be getting many new terms. I agree that a biopsy would be best. Many have been told by drs they have benign tumors and don't need any further treatment only to learn a year or two later, the doctor was wrong. I guess I will have to google hamartomas to find out what it is. Did you? Can you explain? Hugs MK


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/6/2005 5:25 AM (GMT -7)   
Here is what I found in Google.... that I understood. I still want to know how a dr knows exactly what it is unless they have a biopsy. MK

Brain Tumor Dictionary
... hamaratoma: A mass resembling a tumor that represents anomalous development
of tissue natural to a part or organ rather than a true tumor. ...


Mom_of _Crohnie
Regular Member


Date Joined Mar 2005
Total Posts : 45
   Posted 9/6/2005 9:13 AM (GMT -7)   

I've done oodles of research on hamartomas since my U/S last week. That is the first time I've heard of it being called "not a true tumour". (I like that definition MUCH better :-) )

Basically, what I have found is it can occur most anywhere in the body and is made up of the same tissues etc that make up the organ it is growing in/on. I have read in many places that when found in the breast it is often refered to as a "breast within a breast".

I was initally very concerned that a biposy was not recommended unless there were changes. After reading hours upon hours of everything I could find, I've come to accept that hamartomas are easily identified with U/S. From my understanding cancer does not contain fat (even though it can, on occasion, trap fat). I have read that an ultrasound picture of a hamartoma can be compared to a piece of salami. You can see all the bits of fat speckled throughout the mass. The mass looks like a smaller picture of a breast placed on a larger picture of a breast.

My main concerns now is how much the dang thing hurts, the fear that it could continue to grow and grow (apparently they can get quite large), and the fact that I think I've got a second one in the same breast. There is already a noticable difference in size between my two breasts and if it gets any larger I will look into having it removed. Unfortunately it is really common to have them grow back though.

Also, hamartomas don't increase your chance of developing cancer. There is one condition called Cowden's Syndrome where multiple hamartomas grow throughout the body (including on the skin) that DOES greatly increase the rick of cancer.

I hope that helps,

Thanks,

Lori

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